Bipolar 2 From Inside and Out

Posts tagged ‘my experiences’

I Have This Friend . . .

To have a friend, be a friend.

That’s how the saying goes, and it goes double for friends with mental disorders.

But.

There are limits. Boundaries. You may call them self-serving or self-saving, but there they are.

When you are depressed, you neglect friends, and I have certainly done that. I permanently lost one friend over it. But another kept reaching out to me and I eventually responded. (We then had a good game of “I’m a bad friend.” “No, I’m a bad friend.” She thought she hadn’t reached out often enough. I was glad she put up with my silence as long as she did, until I was able to reach back.)

But I have this friend. We used to be tight. When we were both depressed, we shared our misery and so lessened it. But now that the Pit of Despair is no longer my permanent abode…I have to limit my contact.

Why? My social skills have never been terrific, but now I frequently find myself walking that invisible line between Bad Friend and burnout.

Why is it so hard to be a Good Friend?

First, there is the Disaster Report. Whenever I talk to her, I hear a litany of all that is going wrong in her life. Almost never anything else. I’m no fan of relentless positivity, but its opposite is sometimes hard to bear too, even though I’ve been guilty of the same.

Then there is the fact that any suggestions are pushed away, denied as impossible, dismissed as unworkable. Granted, we have completely different styles of coping, but I feel discounted, unheard. Eventually I gave up sharing anything but a few of my own tribulations, some awful jokes, and commiseration.

Then I get off the phone or off Facebook, usually after half an hour or so. That’s about my limit.

I still keep reaching out. I don’t want to be a Bad Friend. I know I can’t fix her, or even her day-to-day difficulties, the kind even non-depressed people have. But I sure wish there were a way I could help, short of climbing down into the Pit with her. I hope that listening, even half an hour at a time, does some good.

And when I talk to other friends of mine, I try to remember to ask how their day was and what’s new in their life and have they seen any good movies and what is a mutual friend doing. I try to listen if they have something to share, good or bad, and I try not to overwhelm them or play whose-life-sucks-the-most. I try to be a Not-Bad Friend, even if I do have to lean on my friends, at times pretty heavily.

And they do likewise, when they can.

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mental health

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Depression Hurts

You’ve probably seen those commercials where the announcer and the actress playing the part of a depressed person try to answer the question: Does depression hurt?

Once when we saw this commercial, my mother turned to me and asked whether my depression hurt me physically.

I had to say yes. I don’t think I ever took Cymbalta, the medication that the commercial was touting, but I was clear on the fact that physical pain is involved along with the psychological suffering of depression.

My head and eyes hurt from all the crying spells. My back hurt from lying in bed all day. I had painful knotted muscles from the anxiety that went with the depression. I had intestinal cramps because my overactive nerves led to irritable bowel syndrome. I had headaches and eye strain from the over sensitivity to light and noise. And I had the general flu-like malaise that is practically the hallmark of depression. You know the one. Every bone and muscle aches, but you can’t think why.

Were these aches and pains psychogenic? Undoubtedly some of them were. But others, like the irritable bowel, were all too demonstrably physical phenomena.

The mind and body and soul are inextricably intertwined. We know this to be true. Depression affects them all.

And it does hurt.

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mental health

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Mr. Fix-It

Him: I just groomed the cat. I used a cat-a-comb.

Me: *total silence*

Him: Hey, honey! I just groomed the cat – with a cat-a-comb!

Me: *more silence*

I was depressed, and he was trying to cheer me up. Using exactly the same joke that had gotten no response only seconds before. I don’t know why he thought it would work better the second time.

Many men have the instinct that, when confronted with a problem, they will try to solve it. When something is broken, they will try to fix.

I wasn’t broken, exactly, but I was deep in the Pit of Despair, aka the lower mood swing of my bipolar disorder. At that stage I am immobilized, uncommunicative, and utterly humorless.

The fact that Dan had worked in hospitals and psychiatric facilities was actually a bad thing, despite what you might expect. He had run laughter therapy groups, he knew the jargon, and he sincerely wanted to be helpful.

But he didn’t know – viscerally – what depression was like. How it felt in your body and mind and soul, how it damped down your personality and blunted your reactions and removed your ability to view life as anything other than miserable. Certainly not funny.

Later Dan learned all this when he experienced his own bout of clinical depression and became another one of my Prozac pals. But until then, he would occasionally come shrinking at me, until I had to tell him to stop. I could accept a hug, but not a joke or a “remedy.”

But all that was early in our relationship and before I had begun to heal or even get proper treatment. And I literally would not have made it this far without Dan. I need him and likely always will.

When it’s Pit of Despair time again (which it sometimes still is), he checks on me to see if I need that hug, or some food, or a kind word, or just to be left alone. When I am better, he still does the cooking and shopping, and reminds me to eat regular meals and take showers and tells me I smell nice after I do. Sometimes he can coax me out of bed with a tape of The Mikado or out of the house with lunch at Frisch’s. If I’m too nervous to drive to my appointments, he takes me. When I’m together enough to work, he keeps the house quiet and fixes food when I need a break and validates me for being able to bring in money, even when it’s difficult.

But he can’t fix me. And now he knows that.

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mental health, Uncategorized

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Fun’s Fun – Until It Isn’t

When my husband, Dan, and I were dating, he would sometimes tickle me, or poke me, or make embarrassing jokes about bodily functions. And I would shut him down. “Stop that!” in the tone of voice that says, “I mean it and I’m angry.” If he persisted, I put my foot down even harder.

“You know what’s wrong with you?” he would say (and don’t you love sentences that start that way?). “You’ve forgotten how to have fun.”

I had to admit it was partly true. I had just come off a relationship in which I could set no boundaries. Rex would tickle me, for example, past the point of enjoyment until it was actually physically painful. I taught myself to shut down my tickle response (and who knows how many other responses along with it). I was depressed and I was damaged and I didn’t know what fun looked like anymore. But I knew that for me, tickling was not it, and that I had to clamp down on it or it might turn into pain.

A Facebook post brought this all back to me. Judi Miller, an awesome teacher of troubled teens, told of a time when a male student, “Johnny,” was teasing a girl, poking and tickling her and saying he wanted to handcuff her and tickle her till she screamed.

Judi objected. She explained, “Johnny, when you say to a woman who says ‘No’ to you that you’re going to restrain her with handcuffs and touch her without her permission until she screams, that sounds really rape-y to me.”

The boy protested that he hadn’t done anything wrong, and Judi took advantage of the teachable moment for a lesson on bodily autonomy: “That means you have a say in who touches you and how far you’re willing to go. In my family, if someone says ‘Stop tickling,’ we do, because consent is important to fun. If it’s all fun for you, and not for your partner, you aren’t listening to her needs.”

She added, “If you don’t respect her bodily autonomy when she says no tickling, or no touching, or to leave her alone, then will you respect her saying no when she doesn’t want to hug, or kiss, or get it on after a date? The pattern is the same. There’s the connection to rape.”

As with most teachers, she had no idea whether her message had an effect.

Until later that day, when a boy from a different class started an argument with his girlfriend, and grabbed her wrist, because she wouldn’t hug him.

Johnny was right there. “That ain’t cool. If she doesn’t want to hug right now, you got no call to get mad at her. You don’t own her ass, or her. She gets to decide if she feels like hugging you, kissing you, whatever. It’s called BODILY AUTONOMY, asshole. No wonder she don’t want to hug you if you won’t take NO for an answer!” Johnny said.

Judi thanked Johnny for listening to her and said she was proud of him. In fact, she later described this as her proudest moment of teaching all year.

Dan and I worked through our problem, I’m glad to say. I learned that I could say “no” and he learned not to push it. We both learned how to do things that were fun for both of us. Back then, I had never heard about “bodily autonomy.” We learned.

I wonder if Rex ever did.

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mental health

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Mind Like a Steel Trap

Rusty. Unhinged. Not really good for trapping things.

Especially memories.

That’s not quite true. I have that uncanny ability that all depressed people seem to have to remember every stupid, clumsy, embarrassing thing I’ve ever done, as well as every trauma. It’s like a mental DVD that stores them up, then plays them at random moments. Or maybe not so random. Maybe just when I think I’m doing okay.

The memories can be as traumatic as the time other children threw rocks at me or as trivial as the time one person asked for a glass of water and I gave it to someone else.

Unfortunately, the recording feature only works for bad memories. A lot of the good ones are MIA. I don’t remember huge chunks of my childhood, except as stories that family members have told me. I don’t really know if the memories are mine or theirs. And I’m scared to compare notes.

My theory about these childhood memory deficits – and to tell the truth, all the way through my teens and early twenties – is that when you are profoundly depressed, memories don’t imprint the way they’re supposed to. Whatever synapses and neurochemicals are involved in memory are out of whack. I’m also afraid to do the simple Googling required to find out whether this is even a plausible theory. If it’s not, I don’t think I want to know. I have an explanation that makes sense to me, and the memories won’t come back if I learn my theory is wrong.

Later in life, medication has helped controlled the depression and, after it was diagnosed, the other effects of bipolar 2. But if I thought my memory was going to function properly, I was wrong. Some of the drugs left me with a memory like Swiss cheese.

My memory lapses seem more random now. Good things, bad things, neutral things, all disappear into the Pit of Unavailability. Sometimes they are embarrassing – I forgot a friend’s father had died and asked how he was. Other times they are more distressing – mere scraps left of trips I’ve taken. Sometimes they’re heart-searing – total nonrecall of a never-to-be-repeated sexual encounter.

Good and bad, gone.

(“Oh, yes,” said the doctor. “That drug will do that. You can stop taking it now.”)

I guess I’m lucky. If I’d had the electroshock, my memory would probably be as raggedy as old underwear. And about as useful.

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mental health

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Churchill’s Dog

Winston Churchill famously compared depression to a black dog. Here’s a video that takes that metaphor and runs with it.

Andrew Solomon, author of The Noonday Demon: An Atlas of Depression, says, “Depression minutes are like dog years, based on some artificial notion of time.” He goes on to describe how the simple act of getting out of bed and taking a shower can consume hours, leave you exhausted, or be simply impossible without help.

The Noonday Demon

There’s even a Black Dog Institute in Australia, which is a non-profit organization that provides information about depression, bipolar disorder, suicide, and other topics.

Home

There are other metaphors. J.K. Rowling, creator of Harry Potter, talked about depression and dementors. Here’s a link to a post I wrote about that.

Read Your Way to Sanity

The black dog is with me now.

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mental health

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Sensation in the Brain

I know there is no physical sensation in the brain. It cannot feel pain. It cannot feel touch. Even in a car accident when the brain sloshes from side to side and bashes against one side of the skull and then the other, the brain sustains injuries, but feels nothing.

That notwithstanding, twice in my life I have felt physical sensations in my brain – or at least what felt like them.

The first time was at the dentist. I am terribly phobic about dentists, so even for routine procedures I need anti-anxiety medication. This was not a routine procedure.

The dentist was very understanding. He put me in the children’s treatment room, which had brightly colored designs of cactus, coyotes, cowboys, all painted on the walls in comforting colors and playful attitudes.

He also brought in a traveling anesthesiologist so that I could be unconscious during the procedure instead of terrified. My husband was there with me, of course, both to drive me and to give me moral support. (It also turned out that he had to give permission for one of my teeth to be removed in the middle of the procedure while I was unconscious.)

While the anesthesiologist was putting me under, my husband and the dentist were casually chatting. My husband made a remark and the dentist said, “Oh, she can’t hear us now. She’s already pretty far under and won’t remember a thing.”

“I bet she will,” my husband replied. The bet involved giving me a word to try to remember when I awoke. They selected the word green.

“You mean like the color of my pants?” I said. They were actually more like olive drab.

“Yes,” the dentist replied. “Green – the color.”

Just for the hell of it, as I was sinking into unconsciousness, I silently repeated to myself the word green in a slow and steady manner: green green green – until the drugs took me under.

An unknown time later I awoke. The dentist asked me, “Is there something you were supposed to remember?” I shook my head groggily.

As soon as I did, I felt an odd sensation in the back of my brain. It was like a little bubble rising up through liquid. When the bubble reached the surface of whatever the liquid was, it burst and released the word green. “Green?” I said uncertainly.

“See?” said my husband. “I told you she would remember.”

The other sensation in my brain came about six weeks after beginning a new psychotropic medication. I had gone through a long, miserable time of trying drug after drug after drug – tapering off on one and ramping up on the next – all with no effect, except unpleasant ones.

Dr. R. was ready to recommend electroshock for me. And after such a long time – I think it may have been two years – of trying and failing with different medications, I was ready to take the plunge. I admitted as much in one of my sessions.

“There’s one more thing I’d like to try before we do that,” said Dr R. “Here is a prescription for lamictal”.

“Okay,” I said. “How does it work?”

“We don’t really know,” he replied. This was our standard conversation whenever he prescribed a new drug. I was used to it, but I always asked anyway.

So I tried it. And felt the usual nothing for almost six weeks. Then one day I was in my husband’s study and we were talking, when I felt it.

It was the physical sensation in the back of my brain of a light switch being flipped. I thought I heard an internal click. When that switch flipped, suddenly something in my brain changed. It remembered how to think and to feel and to not be miserable.

“Oh!” I said. “I remember this. This is the way my brain is supposed to work.” Since then it has kept working – not continuously in the proper manner – but often enough that I consider the drug a success.

I know that in both of those cases nothing happened in my brain that caused a physical sensation. Both times, my brain gave me a metaphor for what was happening. In the dentist’s office the metaphor was a bubble rising to the surface to explain coming out from under sedation – and a little bit of self-hypnosis.

In the case of the drug, the metaphor was the cliche of flipping on a light switch. This time something had changed in my brain, something biochemical. I should not have been able to feel it, but according to my brain, I did.

It seems I have a clever brain. It gave me ways to understand what was happening in terms I could relate to. The fact that I know the brain can have no physical sensations did not matter to my brain.

Human brains are amazing – and sometimes even in a good way.

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mental health

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The Creative Bipolar Brain

Sun or shade
feel or know
safe or strayed
stall or flow

Thought or whim
drought or rain
sink or swim
heart or brain

Stop or start
bound or free
light or dark
bipolar me

I have a lot of friends who are creative – writers, musicians, singers, woodworkers, knitters, and other craftspeople. I also have a lot of friends who have assorted mental or emotional disorders – depression, bipolar, PTSD, OCD, autism spectrum disorders, and probably many more that I don’t know about. In many cases, the two categories overlap.

Common wisdom holds that there is a link between creativity and madness. Look at Van Gogh, for example. People have spent years debating what specific disorder he may have had, but nearly everyone agrees that he had something. The question is, would he have been the great artist without the mental or emotional disorder? Or, perhaps, would he have been an even greater artist if his brain functioned in a more typical matter? Science so far has given us no answers.

Many creative people realize that their everyday functioning is impaired, but they are reluctant to seek treatment for it. They fear that tampering with their brain or thought processes will somehow inhibit their creativity – make them less than they were in some fundamental way. When you start tampering with brain chemistry, who knows what will happen?

It’s a valid concern.

Throughout my life, my brain has been all that I have, or nearly so. My intelligence and creativity were the things I was most proud of. How could I risk losing those simply because I was eternally miserable? The question seems absurd now.

Eventually I decided that I had plenty of brain cells to spare, and that if taking Prozac took away a few of them or lessened their ability, I could live with that. (Just in case, I took up pursuits that are supposed to strengthen the brain – math puzzles in addition to word puzzles, music in addition to writing. Not everything I tried was a success, but I hope they stretch my brain muscles.)

My experience with that first psychotropic med convinced me that Better Living Through Chemistry is not just a chemical company’s slogan. It turns out that – surprise, surprise – thinking more clearly and feeling more well-adjusted actually empower one’s creativity. My output changed from poems full of young adult angst to creative nonfiction, personal essays, and the occasional short story. I now make my living doing freelance writing and editing – an unstructured process that I couldn’t have made a go of before having my mood disorder treated. The ability to concentrate – to focus – is what enables me to sustain a creative effort.

So to all those people out there who wonder if they are sabotaging themselves and their creative impulses by seeking treatment, I say go for it! You have nothing to lose but your immobility. You have everything to gain – the ability to create, to express yourself and do it clearly, and the possibility to create something truly wonderful.

Sylvia Plath was a poetic genius. But she could have given so much more of her talent and vision to the world if she had not killed herself. Perhaps her poetry, had she been treated for her mood disorder, would not have been as searing and powerful. The point is, we will never know. Would she have become more ordinary, or more extraordinary? Dying young obviates the answer.

I believe – for me – that psychological treatment, appropriate medication, and more stable moods have expanded my creative process. And I try to prove it every week when I post in this and my other blog. Whether I succeed is for you to determine.

Have I lost a step? Maybe. But two forward and one back beats the hell out of one forward and two back.

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mental health

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Yes, I Am Crazy. Thanks for Asking.

I’ve been called a lot of things in my time, from schoolyard taunts (loony tunes, weirdo) to psychiatric labels (clinically depressed, bipolar 2). This used to bother me, but anymore, I don’t mind.

It’s not because of the old saying, “Sticks and sones can break my bones, but words will never hurt me. We all know that’s a damn filthy lie. I think it’s because I’ve developed a sense of humor about the “crazy” thing. If Al Yankovic can embrace “Weird,” I can embrace “squirrel-bait” or “wacko.” Even “bat-shit” or “bug-fuck” crazy don’t get me riled, though many find them offensive – and I can’t fault them for that. Everyone has a different level of tolerance and sense of what’s funny.

Take, for example, the time when my sister Kathy gave me a t-shirt that said, “Leave Me Alone. I’m Having a Crisis.” Her husband was dubious about the gift, thinking that I would be offended. I wasn’t. Kathy thought it was a hoot and so did I. (I just bought a t-short that says, “You Won’t Believe the Crazy Shit That Happens Next…” I’m going to wear it to my next psychotherapist appointment.)

I admit to being disconcerted when publicly confronted by a person who asks “Are you the one there’s something wrong with?” or “Do you have mental problems?” (In the first case, the elderly gentleman was thinking of my sister-in-law, who had MS, and in the second, the person recognized me from the psychiatrist’s waiting room.) But I’m not offended. Mostly I regret that I didn’t have snappy come-backs. (I thought of some great ones later.)

There are still some assumptions that do offend or at least irritate me. Here’s a link to an article that enumerates a few of the touchy subjects and unwelcome phrases.

10 Harmful Myths About People with Bipolar Disorder

That sums it up pretty well. I’m not going to walk into a fast food outlet and start shooting up the place. Mania is not fun. I’ve decided not to reproduce, but nobody can tell me that I shouldn’t.

Oh, and there’s one other thing. In the past, when I’ve mentioned my mood disorder to acquaintances or co-workers, they feel obliged to take my emotional temperature five times a day. “Are you okay? How are you feeling?” So I would add to the list: Not all people with bipolar disorder are rapid cycling.

So, am I crazy? Yes. But I don’t think that’s necessarily a bad thing. Most people use the word “crazy” to describe how they feel when they’re in love. And I’m good with that.

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mental health, Uncategorized

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Not Waving but Drowning

Consider this a trigger warning. The third section is going to talk about some difficult stuff, although in mostly general terms.

Here’s a list of how I know how bad my mood disorder is at any given time. Being bipolar, I cycle in and out of these phases, along with periods of reasonably competent functioning and even, occasionally, contentment or even happiness.

There are basically three stages of increasing dysfunction.

Starting to Sink
My sense of humor takes a hike.
I need more alone time.
I take mega-naps.
I forget that music can help.
I snap at my husband.
Noises irritate me.
I can force myself to work.

Floundering
I don’t want to eat.
I turn off my phone.
I sleep up to 14 hours a day.
Attention span is one hour (or one average book chapter).
I can trick myself into working.

Going Under
Can’t sleep.
Can’t work.
Can’t read.
Attention span: 15 minutes max.
Thinking “Maybe the plane will crash and I won’t have to deal with this anymore.”
Regretting I flushed my stash of pills.
Urge to cut.

Fortunately, I am well-medicated enough that category 3 doesn’t happen nowadays, though I remember it clearly and am appalled. At that point, the only things I can do are keep seeing my doctors and taking my meds. And remember to thank my husband when I come out of it.

(The title of this post is from a poem by Stevie Smith. The last two lines are: I was much too far out all my life / And not waving but drowning.)

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