Bipolar 2 From Inside and Out

Posts tagged ‘bipolar type 2’

How I Became a Mental Health Blogger

Of course, blogging didn’t exist when I started writing. It was quite a journey ending up where I am today. Even mental health services were a big blank to me when I was young, something that no one I knew experienced or even talked about, except to make jokes about going to “Wayne Avenue,” the location of the nearest insane asylum (as we called it then).

But it’s hard to remember a time when I didn’t write. Childish poems fueled by voracious reading. Hideously depressive poems fueled by burgeoning bipolar disorder. (I still commit poetry from time to time, writing sonnets and villanelles about bipolar disorder.)

But before I returned to poetry with more structure, I indulged in free verse – unrhymed, unmetered verse that relied on the juxtaposition of images rather than formal style. I studied creative writing in high school and college. But the bipolar disorder was undeniably with me, influencing the topics I wrote about: “Two Ways of Looking at the Same Pain” and “Whiskey on the Knife,” a poem about self-harm, are two examples.

As my poetry developed, it started reading more and more like prose, strung out in sentences that relied on line breaks with twists and jarring pauses to create poetic effects. Eventually, I gave up on poetry and simply gave in to prose. I made my living doing prose, and nonfiction at that, writing for magazines about education, technology, child care, and even martial arts.

Bipolar disorder took that away from me. After being diagnosed with clinical depression for years, I finally was identified as having bipolar 2. It was treatment-resistant for many years and during that time I was often unable to write.

My mental health blog, which you’re reading now, grew out of a journaling exercise. I began by listing what I did each day – not much, as I was stuck in a major depressive episode and not able to do much. But once again, what started as something else turned into prose. And by that time blogging was a thing.

I started blogging largely as an exercise for myself, to explore bipolar disorder, its symptoms and treatments, and my particular version of it. I set myself the task of posting once a week, a schedule that I still keep. I wrote short essays and longer pieces, whatever I was thinking about at the time. Hardly anyone read the blog. I sometimes wonder if the title “Bipolar Me” was a turn-off, but really that summed up my knowledge about bipolar – my own experiences.

Slowly, I started finding my voice. and finding things to say with it. Things other than what was inside my own head. Oh, I still wrote about my symptoms and my meds and my coping mechanisms, major depression and hypomania, mood swings and roller coasters. But I also started approaching the wider world of bipolar. Bipolar in the news. Bad science reporting about bipolar. TV commercials about bipolar meds. Bipolar disorder and gun violence. All of this was still through the lens of my own experience, as I have no degree in psychology, counseling, or biochemistry, for that matter.

And I started reaching a wider audience. My writing appeared in The Mighty, Invisible Illness, IBPF, Thought Catalog, Medium, and as guest posts on other bloggers’ sites. Eventually, I had enough material to make Bipolar Me into a book of the same name. And then a sequel, Bipolar Us. Both are still available on Amazon and through other outlets.

I know I’m not in the same league with mental health bloggers like Pete Earley and Gabe Howard. They are true activists and influencers, as well as terrific writers. Their work reaches thousands of people with information, analysis, inspiration, and more impact than I will likely ever have.

But I won’t give up blogging just because I’m not the best. I’ll be here every Sunday, posting my bipolar thoughts and opinions, sharing my bipolar experience, and chronicling my bipolar life.

Caution: Wide Mood Swings

imageBroker – stock.adobe.com

Mood swings are universal. Everybody has them at one time or another.

Bipolar disorder is not just mood swings. Not everyone has moods that can last for months or years at a time or moods that are so extreme that they interfere with one’s daily life. The depths of despair and the rocketing highs are not what most people experience – and they should be glad they don’t. Bipolar disorder is a serious mental illness (SMI). It can be more or less severe, and it can be well or poorly controlled with medication and therapy, but the reality is that bipolar is a mood disorder, an illness, and a curse. 

Of course, the mood swings of bipolar disorder don’t always last for months or years. Sometimes you go spinning out of control every few weeks. This is called “rapid cycling.”

But even rapid cycling doesn’t describe the lightning-quick mood changes that can happen within a day or two. That’s called “ultra-rapid cycling,” and it’s like being whip-sawed by your brain. Those valleys and peaks come so closely together that you don’t even have time to catch your breath between them.

I think that the official criteria miss the mark on this. Many of them define rapid cycling as experiencing four mood swings within a year. Ultra-rapid cycling seems not to have a specific definition, but I and a lot of other people with bipolar disorder experience moods that swing not over the course of months, but over the course of weeks, or even days.

Ultra-rapid cycling blurs the lines into mixed episodes. Those are occasions when high and low moods occur at the same time. For many bipolar sufferers, this means simultaneous exaltation and despair, which is a terrible combination and a bitch to experience. For me, a person with bipolar type 2 whose hypomania expresses most of the time as anxiety, a mixed episode is a frightening blur of defeat and nervousness, a simultaneous feeling that the worst has already come and that it is about to descend to even lower levels. It’s like ricocheting off the insides of your own skull.

What to do at a time like this is a puzzle. Do I try the things that soothe me when anxiety strikes? Do I try self-care for depressed moods? Do the two strategies cancel each other out, leaving me swinging helplessly? Do I try to suppress both moods, knowing that the consequent numbness will make it all the more difficult for me to feel “normal” moods again? Once those walls are built, they are hard to tear down.

Ultra-rapid cycling and mixed episodes may be handy jargon to describe mood swings that don’t fit the common mode of bipolar disorder.  But they’re hell to live through. And since mood levelers, antidepressants, and anti-anxiety meds generally take a while to build up in the bloodstream enough to have an effect, there is little in the way of pharmaceutical help. An anti-anxiety pill may relieve the jitters and racing thoughts, but may also leave you more susceptible to the inevitable lows.

I don’t know if there’s much research going on regarding rapid cycling and mixed episodes. It seems like they’ve barely been named, much less defined or studied. And it’s true that there is a lot about plain old garden-variety bipolar disorder that remains to be understood and treated.

But for those of us who don’t fit the mold of months-long or years-long mood states, rapid cycling can be an uncomfortable way of life. When I was undiagnosed and unmedicated, I experienced those long, interminable lows. They did last months, years, until the depths of hell were all that I could see. The jags of ambition seldom visited me, but the creeping, lingering anxiety could easily take over. Now that I’m no longer subject to those excruciating extremes, I still am subject to the quick-change, rapid-fire series of moods. My mood levelers do work, in the sense that they reduce the peaks and valleys, but they never seem to put me on a totally even keel.

Perhaps that’s too much to expect. I’ll have to admit that I prefer a life of rapid- or ultra-rapid-cycling bipolar to the monotonous despair of long depressive cycles. At least now I have a firm conviction that the moods will end, or at least shift, to something more tolerable, and that that will happen sooner rather than later.

Given the choice between the lingering depths and the more rapid changes, I’ll take the one that doesn’t leave me in misery for years at a time.

 

Hitting the Plateau

Back in September, I wrote about my bipolar disorder being in remission and how much I loved that feeling. Now I’m not so sure. Maybe I’m not in remission. I’ve had significant setbacks, though not long-term ones. At one point I felt broken, but when that lifted I felt jazzed. Maybe I’m on a baseline and never wander too far off it. Maybe I’m stuck on a plateau, halfway between mental illness and mental health.

I ask myself, will I get any better?

It’s like when I had my second back operation (micro-laminectomy). When I went for a follow-up visit to the surgeon, I was no longer in pain. But I was slow and uncertain when walking and felt keenly that my physical capacities were diminished. “Will I get any better, or is this it?” I asked.

“You’ll improve,” said Dr. West. “It will take a while, but you’ll feel better.” And he was right. I did. But I still have some pain at times and sometimes I walk with a cane. I may be better, but I’m clearly not totally well. I’m not bitching (much). I know that once your back goes out, it never gets back to 100%. And I am truly grateful every day that I don’t suffer the excruciating pain of a bulging disk and a pinched nerve.

My bipolar disorder is like that. I am no longer suffering on a daily basis. My meds are working and haven’t changed much in years. My mood levelers are doing their job. But I still have symptoms. There are still things I can’t do, or do only with great mental effort. I’ve never been at 100% and don’t ever expect to be. And I am truly grateful every day that I don’t have the in-the-depths lows, the ever-edgy anxiety, for more than a few days at a time.

But I wonder, am I stuck on this plateau forever? Is this as close as I’ll ever come to mental wellness? Or maybe, I think, mental health is an illusion. I can’t remember a time when I was unaffected by my disorder. The plateau itself may be an illusion. Maybe I am still improving, in such tiny steps that I can’t see the change. Maybe a new medication or treatment will come along and remove more of my remaining symptoms. (I’m not counting on that, though.)

My bipolar disorder feels like it’s running a low-grade fever. I can get done my work and my blogs, but little more. I don’t feel in the least joyful. It may be that this is just real life getting me down –  the weather, politics, the endless details and frustrations I have to deal with while we’re rebuilding our house. Perhaps this is just a normal mood swing like everyone gets or a reactive depression to the aforementioned stressors.

That’s one of the constant worries once you have bipolar disorder – not trusting your feelings or your feelings about your feelings. Every setback scares me that I’m teetering on the edge, ready to plunge off that plateau. Realistically, I know that I am as stable as I’m likely ever to be.

My superpower seems to be overanalyzing. I may really be in remission.

Depression lies. Anxiety lies. So, perhaps, does the plateau.

Hypomania, Shopping, and Sleep

I hate shopping. Loathe it. Grocery shopping. Clothes shopping. Shoe shopping. Practically the only thing left for me is online shopping, and that can be treacherous – and not because I can so easily spend too much money.

Online shopping can push me over into hypomania. So can thinking about online shopping.

Recently, our house was destroyed by a tornado. We lost everything. And we have to replace everything. (Fortunately, our insurance company is paying for most of the lost items, as well as rebuilding the house.)

When I first got the inventory of things that needed replacing, I was too overwhelmed to do much about it. A window-shopping trip to La-Z-Boy left me bereft of spoons, as shopping always does. So I turned to the internet.

Do you have any idea how many companies are willing to sell me chairs, sofas, rugs, computer desks, jewelry armoires, electric fireplaces, and even walking sticks (to mention but a few items)? Lots. Lots and lots. Now I even get messages from many of them on my email and Facebook feed.

I have spent literally hours browsing online. And then I try to sleep. It’s an instant case of “Hamster Brain,” as my friends and I call it. I can’t sleep, even with my prescribed sleep aid and prescribed benzo. My mind starts whirling and my thoughts start racing.

Hypomania takes over. Oh, I don’t run to my computer and start ordering stuff. I’m keeping hands off my PayPal account, for the most part. But I lie in bed, eyes closed, trying to picture every purchase in what will be its new setting. I compare various color schemes for each room in the house, then change them each night – gold, brown, and cinnamon for my study? Blue and green with coral for the living room? And, oh, God, what about the bathrooms and the kitchen? I even arrange the furniture in my head – which wall will the computer desk go against? What will go beside the chairs? Tea cart? End table? Should we have a corner breakfast nook or a proper dinette set?

And how do I explain to my husband what my visions are? I can’t even decide between boho and country comfy. I can’t even define for him what I mean by boho. How do I keep him from sprinkling the house with 50s pieces (now called mid-century)? How can I integrate his treasures without spoiling my visions?

Most nights now I am up until 2:30 at least, which is when I take the benzo. When I wake, though, the hypomania is not over. It’s back to the computer with a new thing to search for, adding item after item to my favorites lists, comparing prices. I spend hours doing this. I email pictures back and forth with my husband as he gets caught up in my frenzy. This afternoon I spent several hours online buying replacements for books that were ruined. Tonight may be another case of no sleep till who-knows-when.

I’d like to stop, or at least slow down. Realistically, I don’t have to do anything now. I certainly don’t have to order or even browse choices. The house will not be rebuilt until at least the spring and we have no place to store any purchases until then. It’s silly to make decisions now, when between now and then thousands more choices will become available.

If I keep going at the pace I’m at now, I will be supremely sleep-deprived by the time I actually need to make purchases. And between now and then I see myself with a copy of the floor plans, making little cut-outs of different-sized furniture and trying them out for size and fit like those sliding puzzles we used to do as kids.

I see my pdoc this weekend and I’m going to ask him what to do about the hypomania and the lack of sleep. I get hypomania so seldom and it usually goes away so quickly. It’s impossible to think about it continuing at this level and going on for months.

Of course, it’s too simple for someone to tell me to calm down, not to think about it until the time comes. This is hypomania. That’s exactly what I can’t do. Once again, my brain is in control and running riot. And it won’t shut up, not even when I really need it to.

Riding the Mania

This has been a couple of good weeks for me. Either that or I’ve been riding the wave of mania.

In the past, I’ve written about how fleeting the feeling of hypomania can be (https://wp.me/p4e9Hv-df). One pinprick and it bursts, leaving nothing but the air. Maybe that’s because I was hypomanic or rapid cycling at the time. Or maybe it was just a temporary feeling of joy that lasted only a few minutes and then retreated in the face of disappointment.

It’s difficult trusting your feelings when you have a mood disorder. I always have to ask myself, is this feeling a reaction to the real circumstances that surround me, or is it just a glitch that occurs between my synapses? It’s tiring questioning all your emotions all the time.

I’ve been stable for many months now. I’m not symptom-free. I still find it difficult to do daily tasks or leave the house, though lately, I have gotten up, groomed, dressed, and out of the house – including a record of three or four times in one week, rather than once or twice a month. But I have been feeling what feels like genuine happiness.  Contentment. Energy. Productivity. Engagement. Can I trust this?

Since over-thinking is one of my superpowers, let’s take a closer look. Do I have any of the symptoms of mania or hypomania to go with my lightened moods? Hypersexuality? No. Racing thoughts? No. Risk-taking behaviors? No.

But I have been overspending. Maybe. Our finances have improved of late, so there’s no real harm in buying a few things that I’ve been putting off. And my purchases have not been excessive – nothing over $30, and that was a birthday present for my husband. Still, I have been beset by the feeling, right before I hit checkout, “I shouldn’t be doing this,” or “I don’t really need that.” Again, my feelings are questionable. Maybe my purchases are influenced by hypomania and the stable part of my brain is warning me. On the other hand, the purchases may be modest and reasonable, and my questioning a holdover of “shoulds” and “shouldn’ts” from when our budget had no room at all for discretionary spending.

Then there’s my writing. I’ve written a couple of extra essays and guest blog posts in addition to my regular two blogs per week. I’m getting them done early, too. Once I even decided a post I was working on wasn’t very good, so I wrote a new one to take its place in a single day. I renamed and redesigned my other blog (newly christened “But I Digress…,” still available at janetcobur.wordpress.com). But is what I’m writing any good? It’s hard to tell. My stats on blog readership haven’t been as good as usual, but the editors were happy with the guest posts I wrote. The rewritten post was selected for special treatment on Medium.

It’s been observed that I could over-analyze a ham sandwich. But I am tired of examining every mood and emotion to be sure it isn’t pathological. Having unstable emotions is not a pleasant thing to live with, but neither is this level of self-doubt.

I saw my psychiatrist last weekend and he thought there were plenty of good things happening in my life – my published book (amzn.to/2RLU8hP), the extra writing, an upcoming podcast (https://wp.me/p4e9Hv-Pi), a science fiction convention to attend – to explain my good mood. If he isn’t worried, why should I be?

All in all, I’m very tempted to say, “what the hell,” and ride this wave until or unless it crashes.

Good Enough

I know a man who used to be caught in all-or-nothing thinking. Anything at all – a dinner, a gift – had to be “fantastic” or it was “wrecked.” “Okay” wasn’t good enough. “Fine” wasn’t good enough. “Nice” wasn’t good enough. “Good enough” wasn’t good enough. He heard them all as “wrecked.”

Fortunately, over the years, he learned to accept compliments that were lesser than “fantastic.” He could even understand “needs work” or “meh” without feeling that those meant “wrecked.”

There was I time when I thought my life was wrecked. Irretrievably, permanently wrecked. All I had to look forward to was someone recognizing my wretched wreckedness and having me committed. Fantastic was never even an option.

Later I learned that my life wasn’t wrecked, though it surely hit some rough patches and there were a few things that were wrecked along the way – friendships, my self-esteem. But gradually I learned that the problem was not wreckage, it was bipolar disorder.

And now my life is not wretched and wrecked. Bipolar disorder has backed off.

I don’t think I’ve been cured of bipolar disorder, because I don’t think that’s possible. I think that the most that you can say is that I’m in remission.

And that’s okay.

I’m content with the idea that I’ll have to take medications for the rest of my life. They’re what got me here and they’re what keep me here, in the land of Good Enough.

I don’t ever expect to be normal – whatever that means – but I do expect to remain reasonably functional. I have a good marriage. I can do paying work. I have a comfortable home. I’m stable most of the time. I go to a psychiatrist only for med checks.

I have just enough symptoms to remind me how I used to be (that is, dreadful, miserable, and sometimes numb). I still don’t like to go out of the house, but I can if I need to. I still have to lean on my husband for support. I still get free-floating anxiety at times. But those are symptoms I can live with.

Of course, the road to remission has been very (very) long. I’ve fought my way through meltdowns. I’ve had to learn coping skills and some degree of self-care. I’ve tried nearly every combination of medications on the market, except for the newest ones – I’m not switching from what works now in hopes of getting a little bit better. Because that might not happen.

And because I’m good enough.

I’m good enough to write blogs. I’m good enough to write a book (I wrote a book!). I’m good enough to have lots of friends, both online and off. I’m good enough to help other people who are going through the same things I did.

I’ll never be perfect, but let’s be honest, that was never a goal of mine or even a possibility, really.

But I feel I have beaten this bipolar disorder; it hasn’t beaten me.

And that’s good enough for me.

No Resolutions – Just Memories and Hopes

I don’t make New Year’s resolutions. But since January is named after Janus, the two-faced god that can look both ways, I do look to the past and the future just to see what I can see.

Last year was a very mixed bag. It brought the heights of joy and the depths of depression, along with a little hypomania and dysthymia thrown in just because my brain does that.

The big negative this year was my husband’s heart attack in August and all the medical and financial repercussions that entailed. He’s back at work now, though he’s having difficulty managing the mental and physical stresses of it, so much so that he hasn’t made it to cardiac rehab in over a week. Rehab is not just a good thing physically; Dan said it made him feel energized, productive, and cheerful. I know, I know, exercise could do the same for me.

Still, there have been good things. My book, named after this blog, has now been published. This is a huge event in my life that lifted me temporarily out of depression and into (possibly) hypomania. And I have retired, meaning only that I will start collecting Social Security next year. It will not alter my blogging, writing, or other pursuits, since what I make from them won’t be over the “allowed-to-make-in-addition” line.

As for next year, I expect to see more of the same (minus, I hope, the heart attack). There will still be problems paying the bills, including the massive hospital one, but at least I will have a steady, fixed income. It will help me with my anxiety over potential financial collapse and my unreasonable fear of losing the house.

I’m also planning to get away for another long weekend at a bed-and-breakfast on a working farm. The last time we did it, it proved enormously soothing and relaxing. Another such mini-vacation would be ideal. We certainly won’t be able to take a full vacation, so I won’t even hope for that.

The other good news is that my second book, Bipolar Us, will be published. It may not be attended with the same level of hypomania that the first one was, but at the very least there will be real joy. Also in the coming year, I plan to finish my mystery novel and place it with an agent.

As far as my bipolar disorder, in the coming year, I will still have it. I expect that my meds will change not at all, or minimally since I’ve been relatively stable for so long. But I know it won’t go away just because I’ve crossed “publishing a book” off my bucket list. That’s not the way it works.

If this sounds like my 2019 will be more of the same, well, that’s because that is truly what I expect. Of course, my expectations will have no influence on the outcome. The year will be what it will be, as rife with unexpected events as this one was. My main hopes are that my husband’s health and my writing both improve.

I’ll try to remember the lessons learned from this year – that we are both strong and good things can happen to us. And I’ll try to plan for some positive accomplishments in 2019 and hope they’re within our reach. I won’t call them resolutions, though. Resolutions are so easily broken and I don’t like to think that my plans and hopes are.

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