Bipolar 2 From Inside and Out

Posts tagged ‘public perception’

Do It for Yourself

The commercials advise you to do it for them. The family. The children. The laughing, smiling friends who have great social lives and adventurous spirits. You want to join them, don’t you? You have only to take these drugs to alleviate your depression, keep your bipolar disorder at bay, tamp down your manic highs.

Do it for the ones you love, and the ones who love you.

Well, that’s all well and wonderful, but what about you? Maybe you have a family that doesn’t understand mental illness. Maybe you don’t have a loving bunch of children and a husband or wife ready to embrace you if only you’d get cured and be able to do the laundry. Maybe you’re alone with your disorder and your own self.

Do you still have a reason to seek treatment and get relief from your disorder and your symptoms?

Of course you do! Whether or not you have that picture-book family waiting for you to shape up and smile, you are worthy of a better life, one free from the seemingly non-ending drag or jags of mental illness.

It’s just that our society says that one person’s not enough. We must live for others. We must thrive to spread pleasure to and with them. Only in a family, only when we fit in, only when we are properly medicated or counseled, are we whole.

I’m here to call B.S. on that. Many of us live our lives alone, without family who understand us and friends who support us. If you have those resources, great! No one is saying that you would be better off without them. But many of the mentally ill have to make do with no such support system, no back-up for when our brains go wonky, no squad to cheerlead when, at last, things go right.

And I say that’s okay. You are enough. You deserve to have mental health and stability whether or not you are part of a couple or have children. Your family may be estranged from you. You are still worthy of healing and stability. You deserve it because you, by yourself, are a human being who needs that.

Society calls us to sacrifice for our spouses, parents, and children. We are to think of ourselves last, give our all to the ones we love. They deserve our support, attention, and caring. Mothers especially are exhorted to give all for their offspring. But is our mental health truly something that we should sacrifice in the name of others?

Should we not go to counseling because our schedules are full with family activities? Should we not pay for our medication because there are other household bills? Should we not take those medications because they might affect our moods and thoughts?

We are all worth it. We all deserve mental health – the poor, the lonely, the abandoned, the difficult, the single, the friendless. We have value whether or not we are connected to the vision of society we see on our televisions and especially on commercials for psychotropic medications.

I say, do it for yourself. Seek treatment if you need it. You are enough, just the way you are. Don’t let social programming convince you that you are lesser, unworthy, just because you don’t fit into the roles that are deemed suitable for everyone.

If you need help with your mental health, seek solutions. Don’t worry that others have needs. Your need is just as valid. If you need help, go out and find it.

You are enough. Do it for yourself.

Does Immorality Cause Mental Illness?

Aaand…we have a new contender for what causes mental illness.  According to U.S. Attorney General William Barr, it’s a breakdown in Judeo-Christian morality. In fact, he blames a lot of woes on what he calls “secularism”:

Along with the wreckage of the family, we are seeing record levels of depression and mental illness, dispirited young people, soaring suicide rates, increasing numbers of angry and alienated young males, an increase in senseless violence and a deadly drug epidemic.”

Let’s look at that for a minute. Immorality causes wrecked families, depression and mental illness, suicide, violence, and drug epidemics. Lack of religion – or at least the proper Judeo-Christian one – brings on everything but the zombie apocalypse.

Steve Benen, writing for MSNBC, points out the flaws:

For one thing, it’s factually wrong. There are complex factors that contribute to problems such as drug abuse, gun violence, mental illness, and suicide, but to assume these issues would disappear in a more religious society is absurd. There are plenty of Western societies, for example, that are far more secular than the United States, and many of them are in better positions on these same social ills.

http://www.msnbc.com/rachel-maddow-show/ag-barr-blames-moral-upheaval-conspiring-us-secularists

Plus, Barr’s theory would have you believe that in the most religious places in the United States, such ills should not occur. Sadly, we have learned that no community is exempt from these tragedies. And it completely ignores the fact that many mass shooters and bombers cite the Bible as justification for their horrendous crimes.

Ah, but you say, those crimes are attributable to mental illness, which, as Barr tells us, is a product of the breakdown of moral values. It’s a simple equation to him: Immorality leads to mental illness leads to an increase in senseless violence. (As opposed to sensible violence, I suppose.)

And that’s where this slippery slope gets dangerous for those of us who have mental illnesses. Not only are we stigmatized by being blamed for mass violence, we are stigmatized by “ignoring” the cure for our disorders – adherence to the right religious values. (I think it’s fair to assume that Buddhist, Islamic, Baha’i, or Shinto religious values don’t count. In fact, to some religious people, such beliefs are tantamount to mental illness themselves.)

If mental illnesses can be cured by inculcating appropriate religious values, why are we spending so much money on psychologists and psychiatrists, medications, and hospital beds? According to Barr’s theory, that money would be better spent on religious indoctrination, especially for young people. There are many, especially in the halls of power, who agree with him.

You’d think that with the crumbling of the “pray away the gay” philosophy, these people would be hesitant to attempt changing someone’s internal constitution and thought processes simply through the exercise of religion.

Make no mistake, it’s an exercise that is doomed to failure. God does not miraculously grant the right balance of neurotransmitters to the faithful. He does not prevent or cure schizophrenia in those who pray to Him. He does not see to it that tendencies to mental disorders are not handed down through the generations in godly families. Mental illness can strike anyone and does afflict one in four people at some time in their lives. Surely that 25% of people are not all secularists. Just because people with mental disorders are sometimes shunned by faith communities (and that does happen) doesn’t mean that they aren’t religious enough.

Morality is not just for the mentally healthy and mental illness is not just for the immoral. If we let this absurd statement go unchallenged, we are setting ourselves up for more stigma, less funding, less freedom, less choice, and less dignity. If we make sure to oppose this dangerous notion whenever we encounter it, we are doing ourselves, our families and friends, and our nation a service. Educating people about mental illness may begin at home, but it needs to spread to society at large or we will be bombarded by more of these ridiculous, dangerous theories.

Should You Lie About Your Disorder?

We all know that when writing a resume, you should write either “good” or “excellent” when you refer to your health. Any other response will make it certain that your resume will be headed straight for the circular file.
But what about your mental health? Most resumes and most job applications don’t include a space for that, but what if they did? What would you answer? What should you answer? And should you tell the truth if you do answer?
 
In one corner of England, job seekers were encouraged to hedge their bets or to flat-out lie. The British newspaper The Guardian reported that welfare personnel “have urged jobseekers who have depression to hide their diagnosis and only admit on work applications that they are experiencing ‘low mood.'” 
 
Fortunately, there has been a backlash from mental health organizations, who describe the advice as an “outrage” likely to increase stigma. They point out that “the law provided protection to disabled people, including those with mental health problems, if their disability has a substantial, adverse, and long-term effect on normal daily activities.”
 
The welfare department in question brushed off the controversy by saying the suggestion was only “well-intentioned local advice” and encouraging people seeking jobs to “speak freely about a health condition or disability.” But that’s not a choice that everyone is willing to make.
 
Whether or not to disclose one’s mental health condition when applying for a job is not an easy decision. American law (at the moment) protects employees and potential employees under the Americans with Disabilities Act (ADA). But many people are rightly suspicious that disclosing a mental illness at the application is a one-way ticket to unemployment. Even when applications invite you to disclose and pointedly proclaim that they abide by EEOC regulations, many people choose not to disclose.
 
Disclosing after you’ve been hired or have been working at a place for a while is another matter. Many people (including me) have lost jobs because their bosses and coworkers don’t understand mental illness. There is plenty of motivation never to mention it.
 
That may not always be possible, however. Sometimes, the symptoms of bipolar disorder or another serious mental illness are obvious and negatively affect work. (I’m included here, too.) If a person isn’t able to do the work – for whatever reason – it’s understandable that they will be let go.
 
That brings us to the subject of accommodations that permit a person to do the work. Under ADA law, persons with disabilities, including mental disorders, are to be given “reasonable accommodations” to help them perform their job duties. For blind, deaf, or mobility-impaired workers, these accommodations are obviously necessary and most employers can and will provide them. (There is also no question as to whether to disclose these disabilities or not. Visible disabilities are more widely understood than invisible ones.)
 
Accommodations for mental disorders need not be difficult, either. Solutions such as flextime, work-at-home situations, or time off for appointments are more and more being offered to all employees, regardless of ability level, and these can certainly help people with mental illness, too. Other reasonable accommodations might include flexible break times, an office with a door or full-spectrum lighting, or the understanding that phone calls and emails need not be returned instantly. Of course, to receive these accommodations, one must disclose the disorder and negotiate the possible solutions, which can certainly be daunting, if not impossible, for those with anxiety disorders, for example.
 
But what we’re talking about here is not whether to disclose a disability on an application or to an employer. What we are talking about is misrepresenting a potentially disabling condition – or to use the less polite term, lying about it. I don’t have “occasional mood swings,” I have bipolar disorder. My depression is not simply a “low mood,” it can be debilitating. And I suspect that even admitting to a “low mood” might be greeted with something less than understanding by a potential or actual employer.
 
Ayaz Manji, a senior policy officer at a mental health charity in England, said of the semi-disclosure policy, “Anyone who discloses a mental health problem at work deserves to be treated with respect, and jobcentres should not be reinforcing stigma by advising people not to disclose.”
 
He’s right, of course. Disclosing or not disclosing is a hard enough choice for the mentally ill. Lying about one’s condition should not even be a consideration. And isn’t lying on resumes and applications an automatic cause for dismissal? 
 
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Why People Don’t Believe in Mental Illness

Some people just don’t believe that mental illness exists. There are reasons for this. Not good reasons, but reasons.

I recently saw a meme that blamed mental illness on capitalism. There was no mental illness per se, only the toxic effects of a culture that compels us to put up with overwork and underpay, exploitation and inescapable drudgery. The stress of dealing with these conditions is what causes us – an increasing number of sufferers – to feel depression and anxiety.

There may be something to this, sort of. Environmental conditions that lead to stress and anxiety can certainly make mental illness worse, particularly those like bipolar disorder and other mood disorders. And, while capitalism may or may not be the cause, the majority of us are working harder with less to show for it than ever before. But the majority of us are not mentally ill.

My mother may have bought into this philosophy. She knew I had mental troubles, but she thought that if only I got a better job, I would be all better. Admittedly, finding a better-paying job that was less stressful would improve anyone’s mood, but it can do little or nothing for a clinical mood disorder.

Then there are people who seem to “believe” in mental illness, but really don’t. These are the people who acknowledge that mental illness exists, but think that it is a “choice” – that any person can choose happiness, health, or sanity merely by an effort of will. Those of us who can’t “pull ourselves up by our bootstraps” are simply not trying hard enough. The “choose happiness” people don’t seem to get that for most of us, our only choice is whether to get help from someone else – a doctor who prescribes a psychotropic, a therapist or counselor who listens or advises, or even a friend who reaches out.

And, of course, there are people who acknowledge mental illness, but think it is a good thing, the fount of creative brilliance. They point to Vincent van Gogh and his amazing art. They forget about the suffering, the self-harm, and the suicide.

But, romanticizing mental illness and even revering it do nothing to help people who actually have psychiatric conditions. It’s true that some people with mental disorders – Sylvia Plath and Dale Chihuly, to name two in addition to van Gogh – have created works of great art, beauty, and significance. But it’s certainly valid to wonder what they would have produced if they had not had the trials of mental illness to deal with. Would their work have been less inspired or more? It’s impossible to say. Personally, I believe that mental illness interferes with creativity more often than it enables it.

But the most common reason, I believe, that people don’t recognize the existence of mental illness is that it has never touched their lives, isn’t a part of their perceptions. A relative of mine once watched a talk show where women recounted dire experiences of having hysterectomies. “Those women are such liars,” my relative said. “I had a hysterectomy and it was nothing like that.” Her perception of reality – her personal experience – was extended to the whole world.

Similarly, when someone has no direct experience of mental illness, either by having a disorder themselves or by knowing someone very close to them with the disorder, the reality of mental illness itself comes into doubt. “No one I know has it, so no one does.”

Sometimes people who believe such things are capable of changing their minds, though. If a woman goes through a profound, long-lasting exogenous depression after the death of her husband, she may have more sympathy and understanding for people who have profound, long-lasting endogenous depression, or major depressive illness, as it’s more commonly known. Or a dear friend’s struggles to help a schizophrenic son may awaken her to what mental illness truly can be. Once it touches her life in some way, mental illness becomes real.

And since, according to statistics, one in four or five Americans will experience some type of mental or emotional disturbance in their lifetimes, the odds increase that people’s personal experience with mental illness will also increase accordingly.

In the meantime, those of us in the mental health community can help spread the word that mental illness does exist, that it affects the lives of millions of people, and that even people who are not directly affected need to understand how easily it can happen to someone they know.

Blaming mental illness on capitalism, overwork, or an insane world may be easy and may make us feel better by comparison, but it will do nothing to address the actual problem.

Nothing to See Here

Many people with SMI are afraid that it shows, that other people can see automatically that there is something wrong with them. They feel as though they stand out in a crowd. Everyone notices them, and probably talks about them.

I have the opposite problem. My bipolar depression makes me feel invisible. It’s not just that SMI is often an invisible illness. It’s that I myself seem to become invisible. I think of myself as a particularly ineffectual ghost, frightening no one and unable to affect anything in my environment. Some people call this dissociation.

At first, I made the best of it. I’m especially invisible when I’m out in public and reading a book. So I found that if I was at a business convention and wanted to remain invisible, my best strategy was to sit alone at a table and read a book. Only once did a man approach me while I was so engaged. No one else ever did.

Apparently, though, I don’t need a book to disappear. Maybe it’s anxiety that makes me keep quiet when people around me are discussing something interesting. Maybe it’s my instinct not to be noticed so I won’t be subject to derision or worse. Either way, I can’t seem to catch anyone’s eye or add my bit to the conversation. I blend into the crowd, even if it’s only a crowd of three or four.

It’s almost like there’s some aura around me when I’m out in public that says, “Don’t notice me,” like Harry Potter’s cloak of invisibility. I do not use my invisibility for pranks or mischief, though. I don’t use it intentionally at all (except for using a book, as I mentioned).

Why do I think this invisibility is part and parcel of my bipolar disorder? It could be imposter syndrome at work. I feel so unworthy that I don’t want anyone to see me for what I am. Or it might be the anxiety component of my hypomania that keeps me from presenting myself more assertively. Or maybe people can see that I have a troubled mind and simply look away.

I am slowly learning to make myself seen and heard. I find that calling people by name makes it easier for them to see me. It seems to signal them that there’s another person in the vicinity. And once I even set up an occasion where I would be the center of attention, speaking about my bipolar disorder at a signing for my book.

I also use my writing to make myself “visible.” This blog (and my other one) and my books give me a presence, though not a physical one, even at a distance. When I see likes and follows and sales, I know that someone has noticed me, or at least discovered that I exist.

I sometimes think that going out in public more – practicing being visible – might help. But actually, that’s when I feel the most overlooked, the most unseen and unheard. The most lost.

Perhaps what I need is to go out and meet a specific person, someone who expects to see me. Then I could be guaranteed of one person who would see me.

But it has been suggested to me that I may not want to be seen at all – that I would prefer to fade into the background, not put myself forward and disappear from the stresses of being seen. Perhaps that is true, or at least once was.

Now I think I would prefer to be seen, flaws and all. If someone cannot tolerate the sight of me, a mentally disordered person, or glances over me as if I did not exist, I think I shall insist on being seen. I will use my voice, my (admittedly glitchy) brain, and my human physicality to assert that I exist, that I matter, that I have something to say.

And in social situations I will try to assert myself (if politely) to join the public discourse and add my two cents, whether the subject is mental illness or the latest bestseller.

I exist. I deserve to be seen. I will not remain invisible.

Do I Have PTSD?

Once a therapist I was considering going to put down on my form that I was suffering from PTSD. She based this on the fact that I was having nightmares and flashbacks to the toxic relationship that I counted as a significant part of my past.

It was rubbish, I thought. I had never been in the Vietnam or Iraq war. And her idea of my trauma was that I supposedly had been coerced by an older man into doing sexual things that, had I been in my right mind, I would have objected to.

I chose a different therapist, who was bemused, to say the least, at that therapist’s notes. I had had a relationship with an older man and done sexual things that were not precisely the plainest vanilla, but I had surely not been coerced into them. (The gaslighting was a separate issue, one I did not recognize at the time.)

I still have the dreams of being back in his house, and I am occasionally triggered by things that remind me of the relationship, especially when I am depressed or otherwise vulnerable, but by and large, I don’t think that I have PTSD based on that.

Then, recently, I was hit with a more physical trauma. I survived a tornado that destroyed the house I was living in, taking the roof off the second floor where I was sleeping. I have also had nightmares about that and anxiety whenever there are storms and lightning. So, do I have PTSD now?

Let’s see. For starters, mirecc.va.gov provides a “civilian checklist” of PTSD symptoms:

  • Avoid activities or situations because they remind you of a stressful experience from the past
  • Trouble remembering important parts of a stressful experience from the past
  • Loss of interest in things that you used to enjoy
  • Feeling distant or cut off from other people
  • Feeling emotionally numb or being unable to have loving feelings for those close to you
  • Feeling as if your future will somehow be cut short
  • Trouble falling or staying asleep
  • Feeling irritable or having angry outbursts
  • Having difficulty concentrating
  • Being “super alert” or watchful on guard
  • Feeling jumpy or easily startled

To begin with, many of the symptoms which I have are also indicative of depression, anxiety or bipolar disorder – loss of interest in enjoyable pursuits, sleep problems, difficulty concentrating. And I have noticed a few of the other signs – jumpiness and irritability, for example.

But, by and large, aside from the dreams and flashbacks, I have few symptoms that are attributable to PTSD but not to bipolar disorder.

I was talking with my therapist the other week and posed the question to her: Could I have PTSD?

“There are all kinds of trauma,” she said, “and all kinds of reactions to it.” I think what she meant was that I didn’t need to worry about having a specific label. I have been through traumatic events and I have had reactions to them. The reactions and symptoms may not rise to the level that constitutes clinical PTSD, but I have been affected by them nonetheless.

I don’t want to minimize the suffering of those who have been diagnosed with PTSD or those who are suffering from it without ever acquiring the label. I know that what I have experienced cannot compare to what some of them have experienced, and I can only hope it never does.

But still I think there are a lot of us out there who could count ourselves among the “walking wounded,” who have experienced physical or psychological traumas and still have adverse reactions to them. Call it borderline PTSD or some other type of stress disorder, if using the label PTSD seems arrogant or insensitive.

But know that there are other traumas besides war that can leave a person damaged, struggling to find themselves among the shards of a shattered world. We may not have lost a part of our physical selves, but the damage to our psyches can be just as real.

 

 

Wounded People, Invisible Scars

Let me tell you about the time I got stoned in third grade. I was a weird kid – smart, scrawny, emotionally out-of-step, lonely. I dressed funny. I was no good at sports. In short, I was bully-bait. One day I was waiting at the bus stop with some other kids. They decided it would be a fun game to throw rocks – broken pieces of macadam – at my feet. I jumped over them easily, laughing along.

Then one of them threw a rock and hit me in the head. As I was sobbing and bleeding, a passing teacher rescued me and called my mother. The kids ran off, yelling, “We didn’t mean to hurt her!”

I was wounded, nonetheless. Three stitches later, I was, if not as good as new, at least able to carry on. The scar on the outside has since faded to invisibility. The scar on the inside is invisible, too, but very much still with me.

A lot of us have invisible wounds and not all of them come with physical scars. There’s a whole category of conditions called “invisible illnesses.” They’re the ones that don’t come with wheelchairs or crutches or seeing-eye dogs. People who look “normal” on the outside but are fighting like hell on the inside. Some of these conditions are autoimmune disorders. Others are caused by developmental difficulties, uncommon viruses, and even hormonal disruptions.

Then there are the ones that live in the brain. In memories. In scars no one can see. In mental illnesses. What was wrong with me was mental and emotional, inside my brain. Maybe the other kids could sense that and that was what made me a target.

There are a lot of the walking wounded among us, along with non-ambulatory people who are also wounded in other ways. People with brain injuries or PTSD. These disorders can strike anyone and you can’t tell who those people are simply by looking at them.

In cases of serious mental illness, in particular, the wounds and scars, while internal, can be deadly. At least once, my own brain has tried to kill me. Bipolar depression, combined with irrational thinking and problems in the world outside my brain, left me with seemingly only one choice. Fortunately, I didn’t act on the pain. I lived through it.

Too many of us have invisible, internal wounds. Too many of us spend enormous amounts of time and energy pretending that we don’t. For some reason, internal wounds seem more shameful, less understandable, than external ones. A broken leg elicits sympathy. A broken brain, not so much.

I know that the rock that hit my head wasn’t what broke my brain. Bipolar disorder is much more subtle than that. Whatever its causes – and the jury seems to be still debating that – a minor physical impact is not considered to be one. The seeds of my bipolar disorder were likely already there, lurking in my differentness, my emotional oddities, my uncooperative but active brain.

But the incident sure didn’t help. It made me more vulnerable to the shocks and disappointments of life as a weird kid. It took a pothole-sized chunk out of what should have been my developing self-esteem. It opened up crevices in my brain where the doubts, fears, insecurities, and excesses of bipolar disorder could lodge.

Wounded people surround us every day. Sometimes the pain leaks out around their eyes. Other sufferers are more adept at hiding it. The important thing to know is that anybody – anybody – you see on the street or meet at work or at church or at the gym could have one of those invisible scars.

Not all the broken look broken. Not all wounds are visible. Not all scars are external.

Be gentle with other people. You never know who’s hurt inside.

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