Bipolar 2 From Inside and Out

Posts tagged ‘my experiences’

Advice for the Bipolar Writer

Writing can be therapeutic – and more.

Writing can save your life – or someone else’s.

Every one of us, depressed, manic, or bipolar, has something to say.

I say, “Say it!”

Although I’ve never been one to respond to that ancient exercise in which you express your unspoken thoughts to an empty chair, I am a proponent of expressing your unspoken thoughts. I just think writing is a better way to do it.

Getting your thoughts and feelings down on paper or preserved in pixels is a positive, life-affirming action, even if your thoughts might not be. Giving voice to your inner workings can help you understand yourself and your brain better.

And if you choose to share them, they can help others too.

There are many different kinds of writing you can explore and experiment with until you find the one or ones that are right for you. Here are a few you can try.

Journaling. Many therapists recommend journaling to keep track of your moods and mood swings. You can also keep track of your exercise and sleeping and eating patterns in your journal. These factors may help you pinpoint physical symptoms that accompany your emotional ones. And you can get a read on how your meds affect your symptoms and how troublesome the side effects are.

Unsent letters. I have a separate file in my computer for these, just so I remember not to send them. I write letters not to send when I need to vent at or about a person, but am not sure whether I’m overreacting. I can express my feelings without taking the chance of ruining a friendship or hurting a loved one.

Sent letters. Sometimes, after you’ve let those letters or emails sit for a while, you decide that you do need to send them – or at least parts of them. Letters or emails are often the best way to communicate regarding difficult topics because you can think about what’s important to say, consider the best way to say it, and revise if your thoughts are not coming out the way you want them to. You still might want to wait a day before you send them, though.

IMs and comments. When you read someone’s post or a comment that really resonates with you, don’t hesitate to let that person know. If you don’t understand something in a post, just ask. If you disagree, feel free to do so politely. These are chances to open a dialogue, get more information, or correct misconceptions. They can lead to friendships if you comment regularly, but even a word or two of support or thanks can mean a lot to the writer.

Blogging. I started blogging because my journaling was boring and whiny, and I decided I had more important things to write about. There are basically two kinds of blogging about bipolar disorder. One is to share your experiences – your mood swings, your triggers, your relationships, your healing, your thoughts and meditations. The other is to write about issues related to bipolar disorder – treatments, stigma, social policy, news items, books, or opinions. Of course, you can combine both types of writing in your blog, which is what I try to do.

Blogging is powerful. It lets both professional and untrained writers speak their truth and share their thoughts. A blog about bipolar disorder has a “niche” audience – people interested in the subject themselves or because they have a friend or relative with the disorder. This means that you will likely never rival the Bloggess in numbers of readers, but you can touch the lives of hundreds of people.

Blogging does not have to be difficult. You can post every day or every week, every month, or just when it suits you. You can write informally or in a more academic vein. There are a number of platforms, such as WordPress and Live Journal, that make it easy for you to get started, and to make changes as your blogging needs evolve. You can add illustrations and video clips, and links to news stories or other blog posts. Eventually, you may want to have your own personal web page to host your blog.

Fiction and poetry. If you don’t want to put your own experiences out on the web for anyone to see, you could try transforming them into fiction or poetry, or inventing characters and plots that resemble you not at all. Many magazines and other outlets use short stories and poems, and works that feature bipolar characters and themes are not common. Fiction and poetry can be ways to reach an audience that might otherwise never learn about the reality of bipolar illness and its effects on people and relationships.

Longer works. You could even write a book (which is something I’m trying to do). There are many genres to choose from, including nonfiction, memoirs, and novels. Aside from Abigail Padgett’s Bo Bradley series of mysteries, there isn’t much fiction featuring bipolar characters that are true-to-life and not stereotyped. These are long-term projects and, truthfully, you (and I) may never finish them or have them published. But just the effort is worthy.

Whatever form of writing you choose, get started! Whether you write for yourself or for a larger audience, you can make a difference. And if you feel the desire, you should definitely try.

The 5 Stages of Depression

One of my depression triggers has been well and truly tripped and I am experiencing the long plunge downward. It’s been quite a while since this has happened, but oh, how well I remember it.cracked egg conceptual image for birth

In the classical Five Stages of Grieving, depression is the fourth, right before acceptance. For me, in the Five (or however many) stages of depression, the first stage is (duh) depression. I guess the next four would be immobility, numbness, despair, and Total Meltdown.

Right now I would have to say that I am somewhere between depression and immobility. I got out of bed for a few hours today, and I am writing this. I managed to get a big project done before this bout of depression hit, which was a Good Thing. I also now have a good supply of meds on hand, which is, I think, an Even Better Thing.

The Best Thing is that I have Dan, my husband. He just made sure I got a hot meal and is now giving me space and alone time, which is what I need more than attempts at engagement. And a cat just licked my face, which would be comforting if he hadn’t just been licking his butt.

As Jenny Lawson says, depression lies. Right now it’s telling me I’m useless, helpless, guilty, and ashamed. I hope that at least some of these are lies, though at the moment they’re what my brain is telling me is true. Then add in a large helping of catastrophizing, which at the moment is more likely to happen than not. I can’t see a way out.

Since I’ve been through this process before, I know the things that will help (at least a little) and those that won’t. I’ll try to keep my brain engaged enough to continue writing, and I’ll try to intersperse the doom and gloom with some ideas I made notes on before all this hit. I feel a responsibility to this blog and its readers to keep the thing going as best I can.

Based on my estimate, this episode is likely to last a minimum of two months. Maybe this time I can stop the slide before Total Meltdown. Wish me luck.

Self-Care and Sleep: Fact or Fiction?

Every article you see about self-care for bipolar disorder will tell you, Get enough rest or Get enough sleep.

Sleep is that golden chain that ties health and our bodies together.  – Thomas Dekker

But what did Thomas Dekker know? For many of us, proper, beneficial sleeping is easier said than done.

Neon light owlEven with my prescribed Ambien and Ativan, I’ve done the wide-awake-at-3:00-don’t-get-to-sleep-till-5:30 thing. And the unsettled-from-nightmares-afraid-to-go-to-sleep thing. (Also the just-one-more-chapter thing, but that’s my own fault.)

Then the next day I have to take a mega-nap (http://wp.me/p4e9wS-iO), which leads to guess what? More insomnia.

But this coin has another side as well. There are days when all I do is sleep. A full night plus (at least 10 hours), then a mega-nap, then right back to bed after dinner.

I don’t think I was awake for much of my childhood. I did a lot of napping. This might have been a defensive measure against encroaching depression. – Michael Ian Black

I know that part of my problem is my husband’s work schedule – third shift – and wanting to be awake at least at some of the same times that he is.

Another part of the problem is my medication. If I wake at 8:30 (yeah, I work at home) and take my meds, I’m down for the count again until at least 10:30. Or 11:00. Or even noon. I hope my clients think that I run errands in the morning or work on my projects with chat, IM, and phone turned off so as not to be disturbed.

And then there is my meal schedule, which is just as erratic as my sleep schedule. Most days I try to eat at least one good, full, hearty meal (another self-care recommendation, though they usually advise more than one meal). But after I eat – especially a hefty meal – I get postprandial torpor, the technical term for why you fall asleep on Thanksgiving after eating all that turkey. (And you thought it was the tryptophan.) And there comes another nap.

The repose of sleep refreshes only the body. It rarely sets the soul at rest. The repose of the night does not belong to us. It is not the possession of our being. Sleep opens within us an inn for phantoms. In the morning we must sweep out the shadows.  – Gaston Bachelard

But recently, it’s been the not-able-to-sleep thing. There’s a Tarot card that symbolizes the feeling – the 9 of Swords. In the Rider-Waite deck, the image is of a person sitting up in bed, hiding her face, with nine parallel swords floating in the background. I always refer to it as The Dark Night of the Soul. (The 6 of Cups usually means something like Childhood Memories, but for me it means “See Your Therapist.”)

(Note: I had a rather irregular introduction to the Tarot deck, and for me it acts sort of like a Thematic Apperception Test. I apologize to those of you I have just offended in one way or another.)

Sleep is when all the unsorted stuff comes flying out as from a dustbin upset in a high wind. – William Golding

Anyway, a recent event caused me a fair amount of trauma that I had to suppress at the time, and it came out immediately as bloody horrible nightmares the next time I slept. I haven’t had any more of those since, but I suspect they’re still lurking at the back of my brain.

That we are not much sicker and much madder than we are is due exclusively to that most blessed and blessing of all natural graces, sleep. – Aldous Huxley

I guess what I mean by all this is that sleep as self-care is wonderful, if it cooperates. But there are so many things that can go wrong and screw it all up – grief, guilt, depression, sorrow, anxiety, fear, loneliness, restlessness, obsessive thoughts, worries. It doesn’t feel like something that I have much control over.

Reaching the End of My Cope

Helpless Woman Holding RopeAnymore, I don’t very often have days when I can’t get out of bed, but this week I had one. It doesn’t matter now what caused it, but I am feeling the lingering aftereffects. Today I had no choice but to get out of bed, and I thought as long as I’m up, I might as well blog.

(Actually I can blog in bed too, since my tablet will take dictation, but it’s not optimal.)

I had been headed for bed-bound all week – the slowly creeping whelms; the feeling of being nibbled to death by mice; the recent trauma of two pets’ deaths; a game I couldn’t win, couldn’t break even, and couldn’t get out of. Expected relief came three days too late.

Aside from not eating, not getting out of bed meets many of my needs – quiet, rest, naps, not having to fight off the numbness and care about anything. And yes, there’s some feeling sorry for myself in there too. I won’t try to deny it. Staying in bed is a big messy wad of self-pity, anhedonia, lack of energy, trying to stave off thoughts, and generally not being able to give a shit about anything. It is more than sadness. It is as J.K. Rowling described the Dementors: You feel as if you will never be happy again. In other words, there’s nothing worth getting out of bed for.

When I was searching for images to go with this post, I entered “end of rope.” I guess I expected to see cute kittens dangling and inspirational quotes like “Hang on Baby, Friday’s Coming!”

Instead, what I found were endless images of nooses. Nooses by themselves or with people in them. Overturned chairs under nooses. Photos, illustrations, every conceivable image of nooses. According to the visual imagination of illustrators and photographers, “end of one’s rope” means suicide. There were some images of frayed or broken ropes, but the nooses were in the lead by at least four to one. (There were also a few nautical pictures with coiled ropes, but they weren’t statistically significant.)

That’s not what I mean by “end of my rope” – not dangling kittens OR nooses. Staying in bed all day, being unable to function, is a long, long way from suicide. Indeed, I find it a mechanism that staves off thoughts of nooses. Staying in bed admits of the possibility that tomorrow, or maybe the next day, I will have the wherewithal to drag myself out of that bed. Or that something will force me out of the bed and I will have to respond, as it happened today.

Hence the title of this piece. I have not reached the end of my rope – certainly not to find a dangling noose at the end of it. I have not reached the end of my hope, because I believe that some day (I hope soon) I will be out of the bed (at least as far as the sofa, and then who knows?). But when I stay in bed all day, I have reached the end of my cope.

This is not exactly the same as reaching the end of my spoons, because I don’t use up any spoons by lying in bed. And I don’t really know, or perhaps don’t believe, that I will have a new supply the next day.

I expect that some people will beat me up for being so useless as to give up for even a day, to be unable even to try. I know I’m beating myself up over it too. But today I am out of bed, for at least part of the day, and I am writing. That means there’s at least an inch of rope left. An inch of cope.

A Crowd-Hater at a Conference

“I’m gonna kick butt at this writers’ conference!”

I was a wee bit manicky.

“I am a writer and I know it! I’ve had articles published in lots of magazines! I have two blogs and I write in them every week! I can do this!”

It was a conference for humor writers.

“I know I can do this! I’ve written funny things about ratatouille (http://wp.me/p4e9wS-2z) and possums (http://wp.me/p4e9wS-46) and being burgled by Frenchmen (http://wp.me/p4e9wS-1B).”

So, comes the conference…at a time when I’m not the least bit manicky.

Forget what I said about having developed a few social skills (http://wp.me/p4e9Hv-2M). I was there alone, and confronted with a large group, not small groups or individuals.

And I had paid a lot of money to attend.

Yellow ladybird is marginalizedIt was noisy. It was people-y. It had multiple panels scheduled all day. Every day lunch was an Event with big round tables. Every dinner was an Event with big round tables and important speakers. Everyone there blogged daily or had three blogs, an agent, and/or a book contract.

What to do?

Give myself permission to do what I could do. And skip the other stuff. Ignore the money. Build in breaks. Find quiet spaces. Admit when I’m exhausted and go home. (I lived in the area. If I had stayed in the hotel, that would have been “take naps” and the quiet spaces would have been easier to find. If I had better social skills, I might have made a friend and asked to borrow her hotel room.)

This is how I got through it all. Or most of it, anyway.

Do what I could. I combed the program book for Sessions I Must Attend, Sessions I Would Like to Attend, and Sessions I Can Skip. Then I looked for sessions that were offered more than once and decided which offering fit my schedule better. I tried to avoid more than two back-to-back sessions.

Ignore the money. Yeah, I paid quite a chunk of change for this. But it would have been ridiculous for me to calculate how much money each session was worth and try to make back my investment. I had to tell myself that I spent a lump sum and that whatever I got from the conference was worth it.

Build in breaks. The conference had what they called breaks – 15 minutes between sessions when everyone rushed the snack tables, compared schedules, and chattered up a storm. My idea of a break was to sit in the lobby in a comfy chair, stare at the program book so no one interrupted me, and carry snacks with me (boxes of raisins are good).

Find quiet spaces. When I needed something quieter than a hotel or conference center lobby, I searched for unused classrooms. In a hotel, the bar is usually pretty empty during a conference and is a good place to sit and relax with a nice glass of iced tea and maybe even complementary peanuts. Sometimes I was lucky enough to find that if I went to the room I wanted for the next session, it would be empty or contain only a few people. When all else fails, there are always the restroom stalls. (Unless there’s a line.)

Leave when exhausted. On the last full day of the conference I found myself slumped in a chair in the lobby, totally wrung out. There were events scheduled that evening that sounded fun and that I had signed up for while manicky (see above). But I just couldn’t. The events were mostly entertainment rather than educational anyway, and I was not in a headspace where I could absorb entertainment. The fact that there was a flu going around made my disappearance more understandable (even though I wasn’t physically sick).

So did I learn anything at the conference? Did I make new friends? Did I come back revitalized?

Sort of. I learned that the one-on-one “speed dating” with experts was perhaps the most valuable thing I did. I learned that showing up early for a session allowed me the opportunity to meet one of my idols (the speaker) and spend a little time with her and a small group before the session started. I learned that if I sat near the door it was easier to slip out when panic struck.

I even learned a thing or two about writing – how to write a better query letter, how to improve my blogs, when to consider self-publishing, and so forth. I learned that, despite my manicky expectations, I was no better or worse than the other attendees. We all had skills and valuable experiences and we all had things to learn.

Did I make a lot of new writing friends? No. At least not then. The conference had a Facebook page for attendees and I got involved afterward, online, where I am more comfortable than in crowds. I recognized names I had seen on nametags and had conversations with them. I posted some material from my blogs and read what others posted. I commented and read comments. I “followed” some of the instructors. I read books that attendees had recommended.

To tell the truth, I think I got more from the conference after it was over than when it was going on.

Am I glad I went? Yes. The experience was good for me in more ways than one. Paying attention to my own limits and not trying to live up to artificial expectations made for a good – and survivable – learning experience.

Struggles and Tears

In the past week I have had to deal with:

  • My husband being out of town
  • Said husband driving home for 10 hours with faulty brakes
  • My insurance company going belly-up
  • My meds running out before new insurance could be implemented
  • My cat going missing
  • My check being late, so I could not pay mortgage, pay new insurance, pay for meds, pay power bill
  • Being immobilized and unable to leave the house

Out of all of those, which do you think came nearest to breaking my brain, causing me to catastrophize and dissolve into prolonged fits of weeping?

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Woodcut by Peggy McCarty. Used by permission.

If you guessed the missing cat, you’re right. One day she trotted out the deck door while I was feeding the dog, a thing she had never done before. I scooped her up and put her back inside, and resolved to close the door further in the future. Louise is 20 and rather thin, so it’s easy to misjudge what she can squeeze through.

When my husband got back (safely), he took over feeding the dog. Then the next day, Louise didn’t show up for her morning breakfast. Or lunch. Or dinner. She usually has a hearty appetite and meows quite loudly if a meal is late.

Naturally, I thought she had gotten outside again and was lost. We searched through the house, calling her name, and went around outside the house doing likewise. My husband thought she might be feeling poorly and holed up somewhere, most likely in the basement, which is also the garage and not easy to search because of all the clutter.

I thought she must have gotten out and succumbed to some fate out in the woods – a dog or other animal, the rain, hunger, illness and debilitation.

I was convinced she was gone for good. And I had thought I still had more time with her, despite her advanced age (20+). I was inconsolable. My precious cat, gone. No knowing what had happened to her. No chance to say goodbye. No way to comfort her in her last hours on earth.

Dan told me that everything would be all right, but I didn’t believe him.

Then, the next day, she showed up at mealtime, bellowing that she wanted food NOW! Dan had been right. She had hidden somewhere in the house and came out when she was ready to.  I had my darling Louise back, for however long she still has.

Then, after the long holiday weekend, the check came and I paid the bills and set up the new insurance and got my meds and went out to lunch with Dan and everything was all right.

Just a little while ago, I wrote about how having a cat saved my sanity (http://wp.me/p4e9Hv-jS) and how they can be good for people with mental disorders. I even said that losing a pet could teach us something about the grieving process.

But when my own cat disappeared, all that philosophizing went out the window (or the deck door). Louise was gone and I was bereft. Nothing anyone could say could make it better. And the situation was complicated by the fact that both one of our other cats and our dog are also ancient. I know I will go through their loss, and likely soon.

Will I hold up any better?

I really don’t know. The other cat and the dog are my husband’s, bonded to him the way Louise is bonded to me. Likely his grief will be greater than mine. Or maybe when they pass they will remind me of how close I came to losing Louise. Maybe I’ll be able to support him in his loss, or maybe my brain will break again. Maybe it will happen when I am more stable, with fewer disasters and near-disasters clustering around my head.

That’s the thing with pets. You never know how long you have with them. You never know whether you’ll be relatively stable when you have to face their loss.

But I know I won’t give them up. The loneliness of not having them is even worse than the pain of their going.

ETA: Dan’s ancient cat Garcia passed away peacefully at home this morning (Saturday). We were both with him at the end.

Managing My Anger

Many people need to control their anger by learning not to let it out. They can take anger management courses.

My anger problem is keeping it all in. I never know when it’s safe to let some of it out. And I don’t think they have courses for that.

Why do I need to let my anger out? Wouldn’t I be happier and life be easier if I were pleasant and agreeable all the time?

No. There are reasons I need my anger, and need to express it.A LOADING Illustration with Black Background - Anger

I need to vent. I was at the office once and a coworker had done some crazy thing or other. I went to my boss and spouted off. Wisely, he just tsk-tsked about it and didn’t try to fix anything. He knew that it was just a frustrating situation and I needed to express my feelings.

Stuffing your feelings is unhealthy. It’s especially bad if you push the feelings of anger down and then try to smother them with food or alcohol. A character on Dharma and Greg once said, “If you’re going to bottle up your feelings, you might as well pickle them first.” Taking advice from sitcoms is usually not the best idea.

Swallowed feelings don’t go away. They stay inside you and fester. Sooner or later you may explode and cause real damage – the kind you can’t fix. Better to let off a little anger at times than to save it all for later.

Sometimes, anger is justified. Anger at injustice or when you’ve been wronged is appropriate. If you don’t express it, the injustice or wrongful behavior will simply continue.

Having bipolar disorder makes dealing with my feelings of anger even trickier. I’ve spent too many years not recognizing that I even have anger and that it’s sometimes an appropriate feeling. That leads to being a doormat, which I also have years of experience with.

Dealing with my bipolar issues has meant dealing with anger as well. Here are a few things I’ve learned.

There are people I can vent to. One of them is my therapist; some of my male and female friends provide good outlets too. These are not people I am angry at, at least not at the time I vent. As with my former boss, I just need someone to hear and acknowledge my feelings of anger. I have separate categories – a friend to discuss my husband with, another one for work issues, and so forth – so no one has to listen to too much of my anger spillover.

I need to pick my battles. Living with anyone causes friction, which can lead to anger. Just this week I was mad at my husband. I wanted to shout at him, “If you had done your errands yesterday instead of watching movies, you wouldn’t be jammed up today and laying them off on me!” But really, how would that have helped? Could he go back to yesterday and do the errands himself? Would it have helped to refuse to do the errands and then sulked all day? Was there any real reason I couldn’t help out? Best to let this one go.

I have to measure my words. Perhaps I do this too much, but some amount is necessary. What was helpful this week was to say to my husband (after I had run the errands), “I need to tell you that I’m frustrated that you left all these errands until today and I had to take over some of them. There were other things I needed to be doing today.” (My things could be postponed; his couldn’t.) By that time I had cooled off enough that “frustrated” was more accurate than “angry,” and less likely to trigger a major shouting match. (Also notice the “I” statements that psychologists recommend.)

If I am angry and I do express it, it’s survivable. My husband and I have gotten through some very bad spells when both of us have been extremely angry. Some of them have required couples therapy, while others have been solved through time and negotiation. Other parts of my life have not turned out as well. I had to cut ties with a toxic relative for whom I had an unhealthy level of anger, with no hope of either of us changing.But I survived – and was the better for it, mentally and emotionally. Sometimes that’s necessary, for either your own or the other person’s mental health and safety.

It helps to have a good emotional vocabulary. Seriously. I don’t have to jump straight to anger when something upsets me. Maybe I really am just frustrated. Or disturbed. Or annoyed. Inconvenienced. Irritated. Miffed. Insulted. Disappointed. Cranky. Those feelings are easy to mistake for anger. It may be better for me to step back and ask, “Do I really feel angry?”

It helps to have a repertoire of behaviors. Not all anger has to be dealt with the same way. I could lash out and say something hurtful. But I could also walk away until I calm down, or have a good cry. I could say, “I’m too angry to discuss this now.” I could release my anger in a physical activity (actually, my husband is much more likely to do this). I could write a “never-send” letter (or a “to-be-sent” one).

But the first step to all of these is recognizing that I do indeed feel anger, and have a right to own my anger and express it. Anger may be harmful, but denying it is harmful too.

I Got Away Successfully!

Last week I mentioned that my husband and I were planning a day trip to Cuyahoga National Park to see Brandywine Falls. This was based on a sudden, nearly inexplicable urge to get out of the house, get some fresh air, and see nature, despite my aversion to exercise. Maybe I was a little manicky. Who knows?mesign

I’m happy to report that the trip was a success, as you can see from these pictures. The drive up was long and hot (so was the drive back), but that gave us plenty of time for conversation. We got lost a couple of times in the park area (it’s a big, oddly shaped park), but with a little help we found the right parking lot and even grabbed a space near the trailhead. As advertised, there was a boardwalk that led right to the falls, or at least to an overlook with a great view.

stairsThere were also 69 steps leading down to the falls, or, more to the point, 69 steps leading back up to the boardwalk and the overlook. I declined to attempt the stairs, but my husband did, and got some pretty good pictures. janfalls

Since it was Father’s Day, there were a number of families there, but not so many that the trail seemed like a line for the rides at DisneyWorld. The weather was ungodly hot – in the 90s as we were driving home – but the boardwalk was shady and there was a bit of a breeze.falls3

So, what did I learn from this little adventure? First, that travel, at least on a small scale, is possible for me. I liked it so well that I am looking forward to taking another such trip, though most likely when the weather is cooler.

I drove the whole way up and back and was not bothered by my fears of drivers in the other lanes or railings and concrete dividers being too close to our car. (This is a thing that used to happen, even when I was a passenger. Driving was out of the question back then.)

Second, that I could make this trip with only minimal panic. I did have a moment on the way home. We stopped to eat, and as I rummaged in my bag for my regular glasses, I couldn’t find them. I thought they were pretty likely to be in the car, though I had visions of the case lying on one of the benches along the boardwalk. I was even trying to figure out whom to call or write that might be in charge of lost and found.

However, I managed to suppress the feelings, read the menu with my sunglasses on (that actually may have been the hardest part), resist the urge to ask Dan to go out to the car and check, and get through the meal.

The glasses case proved to be in the car and I managed to avoid either panic or mini-meltdown. I call that success. I finished driving home, we fed the animals, and then collapsed. It was exhausting and exhilarating and adventurous and restorative, and most of all, proof that I could travel again, at least for a medium-short jaunt. Travel was one of my greatest joys and one of the things I’ve missed most since the bipolar stole so many parts of my life. I am delighted to be able to say that I am beginning to reclaim it.

All photos by Dan Reily

 

 

 

Out of the House – At Last

Brandywine Falls

Brandywine Falls

If everything goes according to plan (which we all know it never does), this post will be publishing itself while I am at or on my way to this scenic location, Brandywine Falls in Cuyahoga National Park.

I was attracted to this particular location when I read on the Internet that, in addition to access via a 1.75-mile hiking trail, the falls could also be reached using a wooden boardwalk from a nearby parking lot.

This easy access appeals to me because I have balance problems and sometimes use a cane, as well as because I seldom leave the house and have difficulty walking any distance. My husband encourages me to get out and walk, reminding me that exercise is good for depressive episodes, but just getting out of the house for doctors’ appointments and a few errands leaves me with no spoons for recreational walking. It’s a pretty dreary life, though there is a nice window in my study, through which I can see shrubs and trees, the occasional hummingbird or squirrel, or that stupid bird that sometimes flies straight into the glass and bonks itself silly.

There were actually tears in my eyes when I mentioned the expedition to Dan.

“What’s the matter?” he asked.

“Would you drive a long way with me to do something that requires very little time to do?”

“What do you want to do?”

“See this waterfall,” I said, pointing at the screen. I explained about the parking lot and the boardwalk.

“How far is it?”

“Near Cleveland. About three hours. Each way.”

It sounded ridiculous even as I said it. A six-hour drive to walk a very short distance and look at a waterfall.

“We could stop along the way to get something to eat. Or we could pack a picnic. You could bring your camera and take nature photos.”

I needn’t have worked so hard to make it sound attractive. Getting out of the house to go see something scenic and outdoors is something my husband has been longing for us to share.

Naturally, as soon as we agreed to go, my brain went into overdrive, doing my usual job of trying to anticipate everything. We would need to GoogleMap directions, of course. We would need some kind of waterproof bag with cold packs and bottles of water. Bandanas to moisten and wipe our sweaty brows (the temperature will likely be in the 80s and I don’t do well in heat). Bug spray. My cane and maybe a walking stick for him. At times like this, I tend to plan the Normandy Invasion.

This is a ridiculous idea/plan. After the last month and a half I’ve had, it’s a wonder that I’m not just crouched in a corner going beeble-beeble-beeble. But if it works, we may make the same drive in a few weeks to go to a horticultural center and canopy walk, if only so I can make the old, bad joke (You can lead a horticulture, but you can’t make her think) and we can meet up with some Cleveland-area friends we haven’t seen in far too long.

So. Getting out. Exercise. Nature. Relaxation. Fresh air. No computer access. Potential socializing. I don’t know whether these things will have any actual positive effects, but I like to think that my therapist will be proud of me.

Never mind that there are plenty of places nearer – even locally – to walk short distances and see nature. Never mind that my therapist often recommends that I take baby steps. This is a baby step. For God’s sake, I used to be able to hike in the Adirondacks. To travel. To Europe. By myself.

I don’t know why I was able to do that then, but can’t now. Bipolar disorder didn’t strike me suddenly, after I had done all those things. Maybe back then I was better at functioning. Maybe life and bipolar had not yet overwhelmed my ability to cope. Maybe I was in remission (or whatever they call it). Maybe I was hypomanic. It’s a mystery to me.

But maybe, just maybe, I can take this baby step toward reclaiming some of the things that used to bring me pleasure. It’s about damn time.

 

 

Forced to Face My Fear

A little while ago, I posted about my severe dental phobia (http://wp.me/p4e9Hv-cG). So of course fate pushed me to the wall and left me no choice but to confront it.

tooth fairy illustrationHere’s the backstory. My teeth are awful, and my dental phobia has a lot to do with it. Realizing this, we borrowed some money and put it aside for my dental work. The reason that we had to borrow that much money was not just because we’re broke (we are) or that our dental insurance is so crappy as to be nonexistent (it is), but the fact that the last time I got any dental work done (years ago), I was so terrified that I had to have a traveling anesthesiologist brought in to put me completely under. And that approximately doubles the cost of already-pricey, though necessary, procedures.

Then another disaster ate the money we had put aside. There was no choice in the matter. The dental money had to be sacrificed.

Then fate stepped in. Last Saturday I got a toothache. Of epic proportions. Not realizing that the dentist had a 24/7 emergency number, I toughed it out till Monday, when my face was hideously swollen and the combined powers of Anbesol and Tylenol were insufficient to let me sleep. I got in to see the dentist on Tuesday.

That one tooth was definitely going to have to come out and the abscess drained (did I mention there was an abscess?). And there were a few other highly recommended procedures that needed doing as well. None of which the crappy insurance would pay for.

But that wasn’t the real problem, or at least not the only problem. The traveling anesthesiologist was out. The dental slush fund no longer existed. Normally (that is, for normal patients) the dentist offers “oral sedation,” which turns out to be triazolam (Halcion). But since I already take lorazepam (Ativan), that wasn’t considered safe.Apparently the two don’t work and play nicely together.

“You’re going to do this without anesthesia AND without oral sedation?” the dentist said.

“I have no choice,” I replied. He had given me Vicodin for the pain (as well as an antibiotic for the abscess), but I couldn’t really take that long-term. And so I was cornered. I had to have the procedure, no matter what. (My husband offered to get a rubber mallet and knock me out, or knock the tooth out, or something. I politely declined.)

The plan we worked out was this: On Thursday, when they were to do the procedure, I would take two Vicodin and increase my lorazepam from .5 mg to 1.0 mg. (with my pcp’s permission). Then I would have nitrous oxide, which had never worked for me before, but hey, worth another try, right?

And I would have my husband there in the procedure room, as my comfort animal. He had to stay out of the way, but was able to reach over and pat me on the ankle. Which was comforting, actually.

Double Vicodin (I was permitted two but had been taking only one) and double Ativan (plus one prophylactic Immodium) left me suitably stoned. I was totally confused when the hygienist asked me, “Bubble gum or orange creamsicle?” I was stoned, but that made no sense. Turns out nowadays they have scented nose cones for the nitrous. (I chose mint.) I could barely feel the numbing shots, and the extraction went smoothly. I didn’t hear/feel the terrifying, sickening crunch that went from my jaw directly through my brain when I had my wisdom teeth out. My husband said I didn’t even flinch. He patted my ankle anyway.

Then we paid about the same as we recently had for two vet visits for our ancient cat, but nowhere near what we had borrowed, put aside, then spent.

I didn’t even disgrace myself, though I had spare underwear in my purse, just in case.

All in all, it went way better than I expected. Have I conquered my fear? I don’t honestly know, and probably won’t until the next time. (And there will be a next time.)

But at least I’ve proved that I can do it. I can have a dental procedure done without anesthesia and without oral sedation, if it’s really, really necessary. Pain is surely a great motivator. I am no longer a huge wuss, I guess – just a regular wuss. I do hope, however, that when the clot heals and the infection clears up, and the swelling has gone away, that I do not have to go through this again for a very, very long time.

(At least this time I did better than when I faced my apiphobia (http://wp.me/p4e9wS-7H).)