Bipolar 2 From Inside and Out

Posts tagged ‘coping mechanisms’

Looking Back – But How Far?

Silver pocket clock in wooden box isolated on white“Look at where you are now compared to where you were when we started. Look how far you’ve come.” This is what my therapist frequently tells me. And she’s right.

When I first came to see her I was a total mess. It is a measure of my progress that I no longer refer to myself as “pathetic.” it has been months – years –since I have used that word to describe myself.

And she is right to point out my progress. Not only am I no longer the despondent, distraught, weeping mess that came to her, I am now a person who has acquired coping skills – at least a few – that I can use in everyday life without much prompting from her.

But when I look back at how far I’ve come, how far back should I look?

Do I look back to my childhood, when there was something wrong with me that I didn’t understand? Do I look back to the everyday traumas that a typical person would have dealt with, if not easily, then at least adequately, that often left me a crumpled figure in the corner weeping copiously and, yes, pathetic.

Since those days, I’ve learned what my disorder is, and have learned to anticipate and deal with some of those everyday traumas.

Do I look back to my teenage years, when I had little clue how to make and keep friends? When I was an outcast for my oddities?

Since then I have rediscovered old friends and made new ones that love and support me, many of whom are just as odd as I am.

Do I look back to my college days, when the bright promise of my intellect was dulled by my inner turmoil, when I missed out on opportunities because I was not capable of reaching out to grasp them?

Since then I have tried to make the most of opportunities that come my way, and to use my talents as best I can.

Do I look back to my first significant other and how that relationship shredded what I had managed to accumulate of self-esteem and confidence?

Since then I have been trying to recover as much as I can of what I lost. And I now have a stable, supportive, long-term relationship.

Do I look back to the days when I first lived independently, teetering on the edge of financial disaster? The days when I could barely function in the world of work and living, when the loss of a job put me deep in the Pit of Despair?

Since then, I have learned to accept help from others and to know that the Pit of Despair is not my permanent home.

Do I reflect on the job that sustained me for many years, until my emotional state became so fragile that I was no longer reliable enough to do it?

Since then I have gotten work that I can do reliably and found a niche for myself in the world of work.

Do I look back to that dreadful time when my brain broke, I became unable to work at all, unable to take care of myself, unable to function in anything like normalcy?

Since then, I have been rebuilding my life – not as good as new, but the best I can.

Admittedly, the distance I’ve come since then has been vast. I can’t take the credit for it, however. Medications, therapy, a support system, a supportive husband, lots of reading about depression and anxiety and feminist issues and bipolar disorder have helped me survive and helped me grow.

Like many people with bipolar disorder I often have the sense that all along I was faking it, that during the periods when I seemed to be functioning best, I was actually pretending. Sometimes I think that’s what I’m doing now.

What’s that they say? Fake it till you make it?

But how do you know when you’ve made it?

I guess it’s when you look back and remember, but no longer viscerally feel, what you went through. I still have unanswered questions, unresolved conflicts, and unanswered puzzles from all those former times.

I no longer think that I will get answers to all of them. I suppose their purpose now is simply to be mile markers, measuring the distance I have come. I can look back if I choose to, or not. I can look back at who and what I was, or as my therapist says, how far I’ve come. But I’m not pathetic anymore.

So this is how far I’ve come. Can I look back without fear? Without despair? Sometimes I can. And that’s not something I’ve always been able to say. It’s progress.

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Managing My Anger

Many people need to control their anger by learning not to let it out. They can take anger management courses.

My anger problem is keeping it all in. I never know when it’s safe to let some of it out. And I don’t think they have courses for that.

Why do I need to let my anger out? Wouldn’t I be happier and life be easier if I were pleasant and agreeable all the time?

No. There are reasons I need my anger, and need to express it.A LOADING Illustration with Black Background - Anger

I need to vent. I was at the office once and a coworker had done some crazy thing or other. I went to my boss and spouted off. Wisely, he just tsk-tsked about it and didn’t try to fix anything. He knew that it was just a frustrating situation and I needed to express my feelings.

Stuffing your feelings is unhealthy. It’s especially bad if you push the feelings of anger down and then try to smother them with food or alcohol. A character on Dharma and Greg once said, “If you’re going to bottle up your feelings, you might as well pickle them first.” Taking advice from sitcoms is usually not the best idea.

Swallowed feelings don’t go away. They stay inside you and fester. Sooner or later you may explode and cause real damage – the kind you can’t fix. Better to let off a little anger at times than to save it all for later.

Sometimes, anger is justified. Anger at injustice or when you’ve been wronged is appropriate. If you don’t express it, the injustice or wrongful behavior will simply continue.

Having bipolar disorder makes dealing with my feelings of anger even trickier. I’ve spent too many years not recognizing that I even have anger and that it’s sometimes an appropriate feeling. That leads to being a doormat, which I also have years of experience with.

Dealing with my bipolar issues has meant dealing with anger as well. Here are a few things I’ve learned.

There are people I can vent to. One of them is my therapist; some of my male and female friends provide good outlets too. These are not people I am angry at, at least not at the time I vent. As with my former boss, I just need someone to hear and acknowledge my feelings of anger. I have separate categories – a friend to discuss my husband with, another one for work issues, and so forth – so no one has to listen to too much of my anger spillover.

I need to pick my battles. Living with anyone causes friction, which can lead to anger. Just this week I was mad at my husband. I wanted to shout at him, “If you had done your errands yesterday instead of watching movies, you wouldn’t be jammed up today and laying them off on me!” But really, how would that have helped? Could he go back to yesterday and do the errands himself? Would it have helped to refuse to do the errands and then sulked all day? Was there any real reason I couldn’t help out? Best to let this one go.

I have to measure my words. Perhaps I do this too much, but some amount is necessary. What was helpful this week was to say to my husband (after I had run the errands), “I need to tell you that I’m frustrated that you left all these errands until today and I had to take over some of them. There were other things I needed to be doing today.” (My things could be postponed; his couldn’t.) By that time I had cooled off enough that “frustrated” was more accurate than “angry,” and less likely to trigger a major shouting match. (Also notice the “I” statements that psychologists recommend.)

If I am angry and I do express it, it’s survivable. My husband and I have gotten through some very bad spells when both of us have been extremely angry. Some of them have required couples therapy, while others have been solved through time and negotiation. Other parts of my life have not turned out as well. I had to cut ties with a toxic relative for whom I had an unhealthy level of anger, with no hope of either of us changing.But I survived – and was the better for it, mentally and emotionally. Sometimes that’s necessary, for either your own or the other person’s mental health and safety.

It helps to have a good emotional vocabulary. Seriously. I don’t have to jump straight to anger when something upsets me. Maybe I really am just frustrated. Or disturbed. Or annoyed. Inconvenienced. Irritated. Miffed. Insulted. Disappointed. Cranky. Those feelings are easy to mistake for anger. It may be better for me to step back and ask, “Do I really feel angry?”

It helps to have a repertoire of behaviors. Not all anger has to be dealt with the same way. I could lash out and say something hurtful. But I could also walk away until I calm down, or have a good cry. I could say, “I’m too angry to discuss this now.” I could release my anger in a physical activity (actually, my husband is much more likely to do this). I could write a “never-send” letter (or a “to-be-sent” one).

But the first step to all of these is recognizing that I do indeed feel anger, and have a right to own my anger and express it. Anger may be harmful, but denying it is harmful too.

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How a Cat Helped Me Stay Sane

Queen LouiseAny pet can help with mental health, really. But in my case, it was a cat.

I was living alone after a bad breakup that had shattered me, mind and spirit. After moving twice, once from another state and once from an apartment complex after I lost the job that paid for it.

I was damaged, and I was alone, in the upstairs of a small house in a small town. I asked my landlady if I could have a cat. She was dubious, but said yes.

I found a cat at a shelter. She was an adult tortoiseshell calico named Bijou. She was small and shy and quiet. The first night I took her home, she slept across my throat.

We needed each other. I needed someone to care about, to focus my attention outward on. She needed someone  to draw her out of her shell, to care for and about her.

We took it slowly. At first she didn’t like to be held. When I got home from work she would meet me at the door. I would pick her up, give her a quick kiss on the head, and set her right back down. Soon she learned that being held wasn’t such a bad thing.

Since then I have never been without a cat.

And they have improved my mental health. Pets do.

Pets entertain when we need distraction.  They can make us smile and even laugh.

Petting them brings tactile comfort and purring offers a soothing sound.

Caring for a pet makes us feel – be – needed. Even when we have a hard time caring for ourselves, a pet becomes a responsibility bigger than we are.

Losing a pet teaches us about the process of necessary grieving. Then getting another pet teaches us about the process of loving someone new, opening our hearts again.

Pets listen. They don’t judge.

Pets communicate with us, and teach us their personal language.

Pets are now being used as therapy animals and comfort animals for the anxious, the aged, prisoners – and psychiatric patients. The laws and policies regarding “assistance animals” are only just beginning to be enacted. They are far from catching up with the need.

Even visits with farm animals – lambs and chickens and ponies – are fulfilling vital roles in people’s lives.

I’ve written about “crazy cat ladies” before and even identified myself as one (http://wp.me/p4e9Hv-bI). There is a stigma that goes along with the label – yet another kind of stigma that we would be better off without. Admittedly, we can become obsessed with our companion animals, even to an extent that is unhealthy. They can be burdens, and annoyances, and expenses.

There are some people – perhaps people with rage issues, for example – who should not own pets. Having pets is a choice that should only be made if they and you fit together well. We’ve all read the stories and seen the pictures online of people who abuse pets horribly. Now those are the ones that I consider crazy.

Pets may not me be the right choice for other reasons. A person who travels a lot, or has extended hospital stays, may not be able to make the commitment. Germophobes and emetophobes may not be able to handle the inevitable messes that come with pets. Even pet fish need their bowls cleaned.

Personally, I would avoid fish, unless the care of, say, tropical fish fascinates you. And their placid swimming can be calming. But for most of us, a pet that interacts with us is preferable. Birds aren’t very cuddly, but they make agreeable (to some) sounds. Reptiles have their own fascination and aficionados. Me, I want something I can pet.

The picture that accompanies this post is of Louise (aka The Queen of Everything). She is 20 years old and, although she is hanging in there, I will be devastated when she goes. My husband’s 17-year-old cat, Garcia, has some health problems, though again, not terrible ones considering his age. Then there are our youngsters, Dushenka and Toby.

I don’t think it’s too much of a stretch to say that they are as much a part of my support system as I am theirs.

 

 

 

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How I Learned a Few Social Skills

I thought my social skills were bad until I encountered a woman who asked me, “Do you have mental problems?” (She recognized me from our mutual psychiatrist’s waiting room, but still….)

expression

With practice, however, I have been able to improve my casual conversation skills, at least enough to get by in some situations, as long as they don’t last more than an hour. Here are my secrets. They do take practice. I have been fortunate to have had people to practice with – friends, coworkers, and of course my husband.

Introductions. Actually, I taught this one to my husband. Often when we met someone that he knew, he would fail to introduce me, leaving me standing there like the proverbial bump on a log. He claimed that the problem was that usually he couldn’t remember the person’s name. “Just point to me and say, ‘This is my wife, Janet.'” Then I will stick out my hand to shake and say, “And you are?” That way we both learn the person’s name. It works like a charm, every time.

Very Brief Conversations. Conversation with strangers – just a sentence or two – is also relatively easy to learn. The trick is the innocuous comment and there are two ways to go about it. The first is to make the comment yourself – “Those are great shoes! They make your feet look really small.” “What a lovely handbag. My mother had one that was similar.” Make an observation and then a related remark, usually complimentary. They don’t even have to be true technically. If you can’t think of anything else to say, a comment on the color of an outfit is usually good. There’s hardly any way someone can take offense at “That’s a great shade of blue on you.”

The other side of the equation is to get someone else to make a comment to you. This requires a prop most of the time. I used to carry a purse shaped like an armadillo, and that proved a great conversation starter. I memorized several responses that I could use when the other person said, “Oh, what an unusual purse!” I could say, “My mother gave it to me for Christmas one year” or “A friend found it in some catalog.” The purse went over  big, especially if there were children present.

Longer Conversations. These require more practice. Luckily at one of the jobs I had, there were a couple of people that I could invite out to lunch and practice conversation with. (I suspect that they knew what I was doing, but they never mentioned it. In effect, they played along.) Mary, for example, had two adopted children, and questions about them we’re always good for a few minutes of interesting listening. They also had a cat and a snake. Pets and children make good topics.

Sometimes it’s best to steer clear of work-related subjects, but if the person is really understanding, you may be able to vent. You should also be able to listen to the other person too. The secret to that is not to try to fix the problem. Simply listen and validate the person’s feelings. “That sounds awful! Does she do that all the time?”

Formal Settings. Mary also provided me with the opportunity to learn about a sometimes-necessary but difficult situation – funerals. Mary and a few other people invited me to go with them to the viewing of a person that I knew only slightly in a work context, so the stakes were low. From watching Mary and her friends, I learned that the proper procedure is to stand briefly at the coffin looking solemn, then go to the bereaved, shake hands or hug (depending on whether they proffer a hand or two arms), and say, “I’m sorry for your loss” or “My deepest sympathy” and at least one remark about the departed. It can be as simple as “He was a pleasure to work with” or “Everyone at work is going to miss her.”

Not Melting Down. Another important social skill is not having a major meltdown in front of other people. When I first visited my husband’s family, I became very uncomfortable quite often because everyone seemed to be yelling at each other. Loud, angry voices tend to upset me, especially if they continue for any length of time. The technique I developed was to go into the other room and make a cup of tea. Making tea is socially acceptable. (If you’re in the kitchen, go to the bathroom or step outside for fresh air.)

Much later I learned that my husband didn’t realize that his family reacted to even minor questions with argumentative responses in loud voices. To him, and to them, this was simply the normal style of conversation. It wasn’t what was normal in my family, and it triggered my aversion to confrontation. I guess whatever you grow with grow up with seems normal to you.

One other piece of advice: Don’t attempt flirting unless you have a coach. It’s really tricky and possibly dangerous. Not for the novice (especially not the kind of novice who wears a habit).

 

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A Bipolar Child

I suppose I was a bipolar child. I don’t really know, but I assume I was, because now I’m a bipolar adult.

I think I was more of a depressed child, which actually makes sense, since I have bipolar 2, with depressive episodes far outnumbering hypomanic ones. There were some times, though, when I would laugh loudly and inappropriately in class, triggered by a word that reminded me of something funny I’d read. There were times I’d walk around with a village-idiot grin because of some minor accomplishment like winning a live goldfish at a school fair.

Depressed child with toyBut mostly I remember misery. Tears. Loneliness. Hysterics. Confusion. Isolation. Hurt. Despair.

I’m fairly sure my depression wasn’t reactive, mostly, although parts of it surely were. The bullying, betrayals by friends, not understanding social conventions – all these were things that could easily make a person depressed, regardless of brain biochemistry.

But by and large my life was what would be considered pretty damned idyllic. I had stable, loving parents, a comfortable home in the suburbs with good schools, all the food I wanted, and as many toys as I could play with. I had a sister and a neighborhood full of children my age, but I remember being perpetually lonely. I had a good education, but looking back I realize that my illness prevented me from getting the most from it. There was no sexual or physical abuse or neglect. No one close to me died or suffered major trauma, at least until I was in high school and my parents suffered illnesses. Even then, they did a good job of keeping life as normal as possible. At the time we never felt it was a tragedy. It was just something we got through together.

That just leaves endogenous depression. Or at least the depression half of bipolar disorder. I remember one day walking home from elementary school and thinking, “All these houses look so pretty, but the people in them aren’t all happy.” It was somewhat of a revelation to me.  I had several major meltdowns, which I’ve written about before, and hundreds of smaller depressive episodes (http://wp.me/p4e9Hv-6J). I had nervous twitches and tics, and was prescribed Valium for them.

During my high school years, it was suggested that perhaps I ought to go to the school district’s psychologist. (This was probably during the episodes of inappropriate laughter in class.) My parents, who were not really familiar with mental illness and psychiatry, asked me if I wanted to go. I didn’t. I probably should have, although back then – the seventies – it’s fairly unlikely that I would have been diagnosed with bipolar disorder, of any type. I might have gotten some help for the depression, though. They might have taken me off the Valium.

Like most lonely and misunderstood kids, and perhaps most depressive children, I found my salvation in books. They were friends, distractions, instruction manuals on how to survive, food for my emptiness, a place to lose myself when the world was too much with me. By and large it worked, at least as well as anything could – a self-prescribed and self-regulated form of instinctual bibliotherapy.

These were not books on how to make friends, or ones that promised to teach a child how to cope with emotions. They were for the most part pure escapism. Fantasy and science fiction, mysteries and adventures, literature and bestsellers – a complete mishmash of classics and trash. Those were my doctors, my therapists, my Prozac, my mood stabilizers.

I look back now on myself as a child – mentally disordered, undiagnosed, untreated – and wonder how I survived  as much as I did.

If I were a child these days, would I get the help that I needed then? Would my parents recognize that I was not just odd and unhappy, but mentally ill? Would I have been diagnosed properly? Medicated properly? Counseled properly?

With all that needs to go right and all that can go wrong during the process, it feels like getting help for a bipolar child certainly was – and perhaps still is –pretty much of a crapshoot. I made it through, but I hope it’s easier for a kid like me these days.

 

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The Week of Living Alone

Sometimes, when I get tired of my complicated life, I imagine what it would be like to start over someplace new, or what it might have been like if I had made different choices. I envision myself, living alone (well, with one cat), in a small town like Benson, AZ. I would have a small used book store or secondhand shop and live in a small apartment over it or behind it. I would have a couple of friends I met in my shop and go out to lunch or dinner once in a while, but mostly spend my free time listening to music, watching TV, or on the Internet.

Sounds simple and peaceful, doesn’t it?

Portrait of a young woman drowning, shark fin on the backgroundThis past week has convinced me that even such a stripped-down existence would not be possible for me. My husband was out of town for nine days, and I could barely manage.

Those of you who follow this blog know that my husband is my rock and my support. I often say I could not get through without him, and my recent experiences only reinforce that.

I didn’t begrudge his leaving, though I wish he had not been gone quite that long. His mother needed him to help her get ready to sell her house and move, and nine days was barely enough time to start on all that needed to be done. There are times she needs him as much as I do.

But coping on my own was difficult. I have paid work I have to do. It matches perfectly with my skill-set and I’m grateful to have it, but sometimes it’s just plain hard to do and hard to make myself do. And I have two blogs (the other is at janetcobur.wordpress.com) that I have made a commitment to posting in once a week, each. Plus, I have started writing a novel.

We have four cats, two of them ancient, and one dog, also ancient. I was afraid that one of them might die while my husband was away. (None did.)

As scary as the idea of coping with a dying or dead animal on my own was, just caring for them was difficult. They keep demanding food several times a day, you see, and they have no thumbs to open cans with. Then there’s the water bowls and the litter boxes. I used to live alone with one cat and manage okay, but that was many years and many meltdowns ago.

Then there was feeding me. Dan had stocked up on things I like before he left, but after the French bread pizzas were gone, I lived largely on salami sandwiches, cheese and crackers, and cereal. (I did eat vegetables. I had a small tray of sliced veggies and dip.) Once I made a couple of baked (frozen) fish sandwiches early in the week, but later I had devolved to the extent that my evening meal was peanut butter on a bagel. Another night I had mashed potatoes and a glass of red wine. Other meals I simply skipped.

Then there was Dealing With Stuff. Life Stuff. You know. The Stuff that happens to everyone sometimes piled up on me. I had to talk to (argue with) the utility company and the IRS. I had to pay bills. Life stuff leaves me exhausted.

Plus, I kept having to Go Out. Deposit my check. See the doctor. Pick up prescriptions. Buy cat food when I ran out. I wore pants more days last week than I had in the previous month. (Dan wanted me to water his butterfly garden daily, but it rained every day or night, so I didn’t have to put on pants and go out for that.) I treated myself to lunch twice when I had to go out to do those errands, but it was nearly impossible to decide where to eat.

Now Dan is back. I had to put on pants again so we could return his rental car.

But you see what I’m getting at here.

My fantasy of retreating to a simpler life is not feasible. It simply wouldn’t work. The everyday tasks and trials of managing a shop, caring for myself and a pet, negotiating all the stuff of life would overwhelm me. Oh, when I’m hypomanic and can sometimes focus, I might do all right for a while, but life – even a very basic one – would eventually overwhelm me. There are so many things I can no longer do, at least not without serious amounts of help and support.

I can muddle through for a while mostly on my own. I am getting better. But not better enough to live independently, at least not right now.

 

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Who’s a Spoonie?

With all the talk about cultural appropriation lately, I’m hesitant to wear Kokopelli earrings or eat at the Chinese buffet. I understand that some people object to Canadians playing Englishmen who are pretending to be Japanese for a production of The Mikado is offensive or racist. I don’t always agree, but I understand the principle involved. Even I, a WASP, find Mickey Rooney’s character in Breakfast at Tiffany’s to be egregious, appalling, and insulting to everyone involved, including the audience.

Hand XrayBut recently there’s come the claim that those who are not entitled to it are appropriating Spoon Theory language. And in this case, “entitled to it” means someone with an “invisible illness” – chronic pain, chronic fatigue, and other conditions that do not announce themselves to the public with visible cues such as wheelchairs, crutches, missing limbs, or guide dogs.

If you don’t already know Spoon Theory, you should. You can find the explanation here: http://www.butyoudontlooksick.com/articles/written-by-christine/the-spoon-theory/. Basically, “spoonies” have only a limited amount of energy units per day, represented by spoons. Spoonies must use a ridiculous amount of spoons to get through tasks that others accomplish normally in the course of life – showering, driving to work, driving home, fixing dinner, et endless cetera.

In fact, on any given day a Spoonie may not have enough spoons to get out of bed and get showered and dressed. It’s not that Spoonies are lazy; they may have only three metaphoric spoons that day, compared to a non-Spoonie’s typical, oh, I don’t know, 20? 30?

A few weeks ago, I wrote about whether bipolar disorder and other mental disorders are invisible illnesses: https://bipolarjan.wordpress.com/2016/03/06/is-bipolar-disorder-an-invisible-illness/. (I said they mostly are.) As far as I’m concerned, we’re Spoonies and “entitled” to Spoonie language. Most of us have had the experience of not having enough spoons to spend on a morning shower, having to choose between hygiene and, say, eating breakfast.

So now, apparently, the general public is picking up Spoonie language – saying “I’m out of spoons” when they simply mean “I’m tired” or “That was an exhausting day. I’m done.” And some Spoonies resent that. See http://m.dailylife.com.au/news-and-views/dl-culture/stop-appropriating-the-language-that-explains-my-condition-20160113-gm4whc.html

I have two things to say about it. The first is that language is always growing and changing. But it does it on its own, without our control. (Unless we’re France. France at least tries.) We may wish to eradicate the “n-word,” but we can’t. It’s less socially acceptable to use in polite company, but you know people still use it. Read the comments section on any social media post about President Obama if you don’t believe me.

The second thing is that at least Spoon Theory and language are entering the mainstream. People without invisible illnesses are at least getting a clue of what it means. They may not have the details right, but at least now when we explain it to them, they won’t be starting from scratch.

And after all, isn’t that how Spoon language started – as a way to begin a conversation on what invisible illnesses are and how they affect our lives? Not a secret language that only those who know the password and handshake can use.

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Is Bipolar Disorder an “Invisible Illness”?

Empty Chairs Laid Out For Meeting

Yes and no.

First, a little on the concept of invisible illnesses. These are the sorts of afflictions that are not apparent on first looking at a person – conditions such as fibromyalgia, chronic fatigue syndrome, celiac and Crohn’s diseases, diabetes, epilepsy, lupus, Lyme disease, and many others.

Disabled-world.com says, “Many people living with a hidden physical disability or mental challenge are still able to be active in their hobbies, work and be active in sports. On the other hand, some struggle just to get through their day at work and some cannot work at all.”

Most mental disorders are invisible illnesses by that definition. There isn’t a sign around our necks that proclaims “Bipolar,” “Social Anxiety Disorder,” “PTSD,” “Depression,” or even “Schizophrenia.”  The word “Crazy” isn’t tattooed on our foreheads. Our mere appearance doesn’t give away our “secret.”

We have a lot of the same problems that people with other invisible illnesses have. Spoon theory, for example. For bipolar people, simply taking a shower requires so many spoons that we seldom go out. (I count myself among that number.) People who don’t know or understand Spoon Theory often don’t understand why we don’t accept their invitations or cancel at the last minute, or simply don’t show up. You lose a fair number of friends that way.

On the other hand, a mental disorder is not always invisible. People can see us burst into tears for no apparent reason, or go into the bathroom at a party and never come out. They can see our shaking hands, confused looks, and depressed expressions. They can hear our awkward attempts to socialize “appropriately.” They may not know what is wrong, but they can often tell something is.

When we realize this is happening, there are various strategies we try. We can leave the situation – entirely or partially (my go-to is to leave the room on the pretext of needing to make a cup of tea). We can try to brush it off or laugh it off (“Sorry. My nerves are bad today” or “I don’t know why I said that. Must be a brain-fart”). We can try the half-truth/half-joke (“Oops. Guess my meds just haven’t kicked in yet”). We can ignore whatever is happening and hope everyone else does too.

Or we can own it. “I have social anxiety disorder and need to be in a less crowded space than the mall.” “I won’t be able to go to the carnival with you because my PTSD is triggered by loud noises.” “I may come to your party if my bipolar disorder will let me.”

We can also address the subject when there isn’t a situation looming. During a phone conversation or an IM chat, we can let the other person know that we have a mental disorder – an invisible illness. It doesn’t have to be dramatic and dire. Casually may be the best way to handle it. “I know you’re wondering why I didn’t go to the movies with you last week.” “When I saw my doctor yesterday we talked about my physical health and my mental health too.” “You know that character on that show that has PTSD? I have that too, but it’s not exactly like on the show.”

If that sounds risky, you’re right. It can be. There will be people who still don’t get it. People who “don’t believe in” mental illness. People who try to brush it off. People who offer the latest vitamins or super foods or Eastern philosophy as the cure-all.

But you’ll also find people who say, “Oh, my brother-in-law has that too” or “Okay. But I’m still your friend” or “What can I do to help?”

So those are the choices, basically.

Take a chance. Or stay invisible.

Neither choice is right or wrong for everyone. Mental illness is very personal.

You decide.

 

 

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I May Have Miscounted My Spoons

This week I actually got out of the house, going for lunch and a little shopping with an old friend. (Another friend of mine calls these “pants days” because they obviously require putting on pants, for going out farther than the mailbox.)

After less than three hours I went home, did some work, and promptly collapsed. All told, I think I was either active, sociable, or some combination thereof for at most five hours – most likely more like four. That for me is an exceptional day of fortitude, stamina, spoons, and hypomania.

However, I have gotten myself into a situation that will require much more than that. I am going to a writer’s conference – three days of thrill-packed seminars, lunches and dinners, and other business and social-type events. I’ve done half-day business meetings lately, but nothing so extended, crowded, or spoon-depleting. It will hit a lot of my anxiety triggers – crowds, noise, small talk, social events, and more. I know that by the time we gather for dinner in the evening, I’ll already be extra crispy.

The three days of the conference will not allow for much of any downtime – although I have fantasized about asking someone who’s staying in the hotel if I can borrow a room for an afternoon nap. (The conference is local so I don’t have a room of my own or it wouldn’t be a problem. Less of one, anyway. All I’d have to do would be pick which seminars to skip. But the idea of asking a relative stranger for the use of a room or the idea of a relative stranger letting me use a room is pretty ludicrous.) Fortunately, I have to get the car home by 10:00 so my husband can go to work. That means I can’t stay for the after-hours socializing, even though that’s said to be one of the highlights. But it does mean I get a few more hours in pjs instead of pants.

Back before I had my most recent major meltdown, I was able to attend business conventions and do at least most of the requisite functions. I could and did give little talks at power breakfasts or afternoon cocktail parties – even opened with a joke. I could meet and greet the public at our booth – “howdy and shake,” as my father would have called it. I could have lunch with potential writers. I could almost interact with our sales force.

Those days are long past. So now I ask myself, how can I build up my stamina for the writers conference? Maybe it’s time for me to try to reclaim some of those parts of myself.

It feels like I’m going to be training for a marathon – or maybe the Normandy invasion. I know that in order to get through it, I will have to prepare in advance: writing my Sunday blog posts before the conference starts, assembling my wardrobe, checking out the parking situation, stocking up on business cards, and all the other little details that make me so frantic at the last minute.

Perhaps during the next two months I can keep track of how many pants days I’m able to have and gradually increase them. Perhaps I can arrange more lunches and shoppings. Perhaps I can improve my usual record of doing only one major thing per day. Perhaps I can try to work up to three pants days in a row.

The conference itself is certainly a massive and major incentive. Plus I’ve already paid for it – yet another reason to get myself in shape to take advantage of it.

Right now the conference looks like rather an ordeal, but I hope that by the time it rolls around I’ll be in good enough shape to both enjoy it and benefit from it. At least it’ll be a group of writers, and humor writers at that. They’re known for being at least a little odd. Maybe I’ll fit right in. I’ll be the one napping on a couch in the hotel lobby in fuzzy slippers. And pants.

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Bipolar Basics for the Newly Diagnosed

If you have recently been diagnosed as bipolar, there are a few basics you should know. You’ll likely find them out on your own, but it might take a while.

So, here are some tips.

    1. Being bipolar isn’t necessarily a tragedy. It’s a chronic illness. At times it’s better, at others, worse. It’s not a death sentence and it’s treatable. You can still live a reasonably full and satisfying life.
    2. You need help. To live with bipolar disorder, you need a support system. Unfortunately, your friends and family may not be all that supportive. Fortunately, there are online support groups. But the most important parts of your support system, at least at first, are your psychiatrist and your psychotherapist. I recommend having one of each – psychiatrist for medication, therapist for talk or cognitive behavioral therapy, or whatever works for you.
    3. You will most likely need medication. And the odds are good that you will need it for the rest of your life. Don’t panic. After all, diabetics need insulin, usually for life. You may hate taking pills, you may hate the idea that you are dependent on them, you may hate the fact that they remind you of your brain’s difficulty functioning. But realize that meds will make your brain’s functioning less difficult. They are worth the hassle.
    4. Everyone is different. Everyone’s symptoms are slightly different. Everyone’s medications are slightly different. Everyone’s reactions to their medications are slightly different. A support group can help you with general information, but they cannot tell you what is ultimately best for you. Your particular symptoms and your unique version of bipolar disorder may well require different medications, in different amounts, than your friends. And you may have different reactions to them. Some pills have no effect at all on one person and are life-savers for another.
    5. Getting better takes time. Once you have your diagnosis and your medication, don’t expect to feel better quickly. Most medications for bipolar disorder take a while to build up in the body. Six weeks is not unheard of. Then your doctor may assess how well the medication is working, and change the dose or even the medication itself. Then you may go through another six weeks of waiting for the new dose or drug to take effect. Each case of bipolar disorder requires a medication regimen tailored specifically to the individual, and that often takes some doing.
    6. There are several different types of bipolar disorder. The two main types are called type 1 and type 2. Type 1 is the classical bipolar disorder, which used to be called manic-depressive illness. Type 2, a more recently identified version of the disorder, often manifests as mostly depression, possibly with hypomania, a less severe version of the ups that accompany bipolar 1. Other forms of bipolar disorder are rapid cycling, in which one’s mood states alter quickly, even within a few hours. Another version of bipolar disorder is called mixed states. Mixed states occur when a person experiences both extremes of emotion at the same time – for instance, depression and irritability, or fatigue despite racing thoughts.
    7. The odds are that you already know someone with bipolar disorder, or at least some kind of mood disorder. One in four Americans will have a psychiatric or emotional illness at some time during their lives. Because we don’t talk about it, though, no one may ever know. Especially when the disorder is treated properly, a person with bipolar illness can maintain function in society and choose whether or not to share the diagnosis with friends and coworkers. Many people choose not to because of the stigma surrounding mental illness. It’s a valid choice, but it cuts the bipolar person off from possible support and understanding from others who may share the disorder.
    8. Relationships can be difficult but not impossible. Relationships are difficult for everyone. People with bipolar disorder have relationships that are difficult too. The disorder may make the relationships even more difficult, especially when the family member or loved one or even close friend does not understand the symptoms, the medication, the mood swings, the anxiety or fatigue, or all the other facets of bipolar. The best cure for this is education. However, it may not be possible for a relationship to survive bipolar disorder, just as a relationship may not survive trauma, grief, addiction, infertility, incompatibility, meddling relatives, infidelity, parenting, or a host of other conditions. It may be better to look at all the circumstances surrounding a troubled relationship rather than automatically blaming bipolar disorder for difficulties.
    9. Learn all you can. Because bipolar disorder is so little understood by the public, because it manifests differently in nearly every case, because a person can be actively suffering or in remission, because a person may have any of the different types of bipolar disorder, because everyone is different – the need to educate yourself and probably those around you is essential. The more you know, the less you’ll panic when a symptom you haven’t experienced before suddenly hits. Rely on reputable sources. Medical, psychiatric, or psychological websites are usually the best. Support groups can offer much information, but the people in a support group may not be any more well-informed than you are. And there are lots of people selling “miracle cures” that can lure a person away from needed medication and other services.
    10. Keep trying. It’s hard. It’s frustrating. It’s difficult. It’s painful. It’s confusing. But bipolar disorder is something you can live with, and even something you can rise above. The secret is to keep trying. Keep seeking out therapy and friends who support you. Keep taking your medication, even if you don’t want to. (Stopping your medication without advice from your doctor can be dangerous, so don’t try that.) Be stubborn. When you feel like giving up, tell yourself that maybe things will get a little better in the morning. Hang in there. You may not realize it, but there are people who need you in the world, who need you to be functioning and happy, who need you to keep fighting the disorder.

Do you have any other tips for the newly diagnosed? Please share them in the Comments section.

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