Bipolar 2 From Inside and Out

Posts tagged ‘freelance work’

Hypomania and Exhaustion

I’ve done so much. I should feel exhausted. I do feel exhausted. Why do I keep doing so much?

The answer, of course is hypomania, or maybe a mixed state.

I had been thoroughly depressed over my writing, as I sent out query after query to agents, and getting back rejections or the horrifying limbo of “no response means no.” I kept doing this for nearly four months, until I had apparently run out of agents to query. (I know that can’t be literally true. There are thousands of agents in New York alone, but I had been through all the usual lists and gone pretty far down the Google pages.) Yet I trudged along, depressed but pushing myself. Get the queries done. Get my work done. Get these blogs done. Go to bed. The same the next day. Call it functioning depression. I was still in motion, doing what I told myself had to be done, but enjoying none of it (or anything else).

Then I got an invitation to try out for some work-for-hire (which is sort of like ghostwriting, only different). Instantly, preparing submissions (three of them!) for this gig consumed me. And I kept on with the queries, the work, and the blogs. But I was tipping over into hypomania.

I wrote the submissions insanely quickly, when I knew I should have taken the time to analyze them, polish them, try a couple of different drafts. But no. I found myself pushed to get them done and get them out there. Or rather, I pushed myself to do it.

My submissions were rejected, but this time instead of slipping back into a funk of depression, I wrote a nice note saying that if another opportunity like this came up to please consider letting me apply again. They responded to the note, seeming astonished that I had sent it, and complimenting me on my attitude. Nothing like a pat on the head to keep the juices flowing.

It was at about that point that hypomania truly hit. I focused everything on my writing. I reworked the first three chapters that I had been submitting to agents and submitted them to still more. I started taking on extra work assignments. I took only brief breaks to eat a bowl of soup, then plunged back into it again. I had trouble getting to sleep and trouble sleeping, even though I was so exhausted that I turned in early each night. And I woke early, ready to keep on keeping on.

Then the miracle happened. I got a positive response from an agent. They wanted to see more of my work. I tweaked the newly revised first three chapters and sent them in. Now I’m waiting, nearly bouncing out of my chair, for them to respond. I just know that they will want to see the whole novel and become my agents. I do know that the deal is a long way away from being sealed, but hope after so long of slogging through my depression, hypomania has taken control.

I am (sort of) still contemplating my WIP (work in progress, a sequel to the novel that might now become real), thinking I need to rethink it entirely or try a different plot altogether. I am still taking on extra work, though it exhausts me. During my brief breaks from work, I scour the internet for presents for my husband’s birthday, and spend more than I had intended for more presents than I had planned.

And I am writing this blog post the day before I need to post it, rather than the three to four days I usually allow myself to write it. And I still need to polish the post for my other blog. And pay bills. And find a place for us to get a health check that’s required by my husband’s employer. (I have already set up appointments for our vaccine shots.)

I think it is most likely that if the agent rejects my work after all this, I will once again sink into depression – the I’m not worthy anything, I’m a fool to have put this much energy into it, I should just give up kind. Cutting back my activity to the bare minimum – work and blogs. Sleeping more, enjoying it less. Enjoying everything less. My old familiar functioning depression that is only possible because of the meds I take that don’t allow me to swing too far down.

I know people who, when you try to tell them about hypomania, tell you to enjoy it while you have it. They don’t know how wrong they are.

How Depression Sneaks Up

I had a blog post all written and ready to go. It was about my fluctuating moods and my writing, and how they affected each other. Some of what I wrote is still true. The depression I suffered during my early years and the exceedingly depressive poetry I wrote during that time allowed me to learn something about how poetry works and something more about how depression works.

I wrote about how hypomania affects my writing, and that is still true. Hypomania pushes me to do my writing, even when I don’t feel like it. In fact, at times it pushes me into doing more writing than I can probably handle. Case in point: This week I wrote three samples for a work-for-hire outfit when I should have been writing or at least outlining my WIP (Work In Progress), a sequel to the mystery I have already written and have been sending around to agents.

And last night, that’s where I hit the wall. I figured out that I have sent out about 180 or so query letters and gotten only the most minimal results – rejections that said I had an interesting premise that was not right for them. Most, though, have received plain rejections or the dreaded “no response means no.” I am now second-guessing myself and everything about the manuscript.

Last night, the depression caved in on me. I spent the night in bed, not sleeping except for nightmares, and not wanting to get up in the morning.

Because my identity is invested in being a writer, though, I did get up (late), sent a few more queries, and got to work on rewriting my blog posts, which I had determined were wretched. In the blog post that I abandoned, I had pontificated about how keeping a schedule kept me going with all the writing projects and various other work I do. 

I had also crowed about my relative stability and how that was helping me keep that schedule, which was supposed to be keeping depression at bay. I found out that I lied. The fact that I have maintained functionality for some time did absolutely nothing to prevent the depression that hit me.

Admittedly, this is probably a reactive depression, with my lack of success being the trigger. The thing is, it’s awfully difficult to tell apart from endogenous depression. In fact, I have known the first to melt into the second. At first you have a clear cause that would depress anyone, then you find it clinging to you long after what would seem to be reasonable. (This is subjective, of course. What is the “right” length of time to be depressed over 180 rejections?)

What’s left? Self-care, of course. Trying to sleep if I can, and squeezing in a nap if possible. Eat something, even if it’s only some guacamole and chips or a bowl of soup. Take my meds religiously. Try to cling to that schedule even when I don’t want to.

But the truth is, I’m running out of agents to submit to. I’m running out of energy to try. And I’m running out of the frame of mind to keep me functional. I’ll be okay, I know, but it may be a long, hard climb. 

Workplace Adjustments I Would Like to Have Had

by Chinnapong / adobestock.com

I missed out on the heyday of the ADA. People didn’t become as conscious of accommodating people with disabilities until much later. And even then, the most common accommodation was wheelchair ramps. But there are some workplace adjustments or accommodations I wish I had available to me, back when I worked in an office.

According to the Americans with Disabilities Act (ADA), persons with disabilities are entitled to accommodations to make it possible for them to work. Most of us think about certain kinds of lighting, closed captions, or specialized chairs. But what about when you have an invisible disability?

The ADA definition of a disability is one that impairs an individual’s ability to – among other “major life activities” – learn, read, concentrate, think, communicate, and work. Certainly, a number of psychological or psychiatric conditions qualify as producing trouble in these areas. In my case, my bipolar disorder made it difficult to do many of those in your standard office work environment.

But would the ADA have made accommodations available to me? The ADA does include some mental illnesses in its list of disabilities. Examples of mental disabilities commonly considered under the ADA are:

  • Major depressive disorder
  • Bipolar disorder
  • Post-traumatic stress disorder
  • Obsessive-compulsive disorder
  • Schizophrenia

Examples of accommodations or work adjustments for those with psychological disabilities include, among others:

  • Flexible Workplace – Telecommuting and/or working from home.
  • Scheduling – Part-time work hours, job sharing, adjustments in the start or end of work hours, compensation time and/or “make up” of missed time.
  • Leave – Sick leave for reasons related to mental health, flexible use of vacation time, additional unpaid or administrative leave for treatment or recovery, leaves of absence and/or use of occasional leave (a few hours at a time) for therapy and other related appointments.
  • Breaks – Breaks according to individual needs rather than a fixed schedule, more frequent breaks and/or greater flexibility in scheduling breaks, provision of backup coverage during breaks, and telephone breaks during work hours to call professionals and others needed for support.

Of course, in order to receive accommodations or adjustments, it’s necessary to reveal to someone – at least your boss or maybe the HR department – that you have a psychological or psychiatric disorder.

My own experience of needing accommodations at work was not great. In the job I held the longest, I only mentioned my depression (as it was then diagnosed), to my immediate supervisor. He was sympathetic, but the work environment was not exactly conducive to my needs.

One of the things that I could have used in dealing with the anxiety that went along with my depression was privacy. At first, that was not even possible, since my entire department was located in a cube farm, where no one had any real privacy. Even the fact that I was an editor and needed to concentrate on my work did not win me a private space.

Later, when we moved to an office that had actual offices, I snagged one with a door. The only problem was that I was not allowed to close the door, or at least looked askance at when I did.

An ideal situation for me (aside from being allowed to close my door) would have been permission to work from home. There was one person at this office who had this privilege, but it was never considered for me. Admittedly, this was very much pre-pandemic, but most of my work was done on a computer, and I had one at home that was compatible with the office computers. It wouldn’t even have been necessary for the company to supply me with one.

Another accommodation that would have helped lots would have been a hotel room to myself at business conventions, which would have allowed me time and space to decompress after a long day of being “on,” meeting and greeting, and being sociable and respectable. Unfortunately, that was a privilege reserved for the men. (As I understood it, the salesmen were booked into double rooms as well, but winked at when they rebooked them into singles.) This may have nominally been due to my sex rather than my mental condition, but not having a solitary retreat from the clamor of a convention definitely had a deleterious effect.

After 17 years at that job, I was let go, most likely because I was considered “unreliable.” At the next office where I landed, I had a boss who understood bipolar disorder (as I was then diagnosed) and who was satisfied with my work.  Never a bad evaluation – until that boss left. “I’m going to miss you,” I said. “I know you will,” she replied.

I realized what she meant when I revealed to my new boss that  I had bipolar disorder. “What does that mean?” she asked. Taken aback, the only reply I could think of was, “Sometimes I have good days and sometimes I have bad days.”  It wasn’t a great description of my condition and set me up for problems. After one year of my mother’s health and my psychiatrist appointments requiring me to miss work, and my missing work in winter owing to living at the bottom of a snowy, icy hill, I received my first bad evaluation. Nothing about my performance had actually changed since my work with the first boss. I could have easily worked from home and occasionally was permitted to, but my work was dubbed sub-par once I did.

(Not that it’s a big thing, but I would also have appreciated being able to take a “brain break” such as doing a crossword puzzle, instead of a cigarette break, since I don’t smoke. And not being asked work questions when I was on the toilet.)

After that, I went freelance, worked at home nearly all the time, and was only required to attend a meeting at an office once or twice a year. I have worked that way since and it suits me. It’s only now that I’ve become my own boss that I’ve been able to get what I really need when it comes to work.

 

References

https://www.eeoc.gov/statutes/americans-disabilities-act-amendments-act-2008#:~:text=The%20Act%20emphasizes%20that%20the,shall%20not%20require%20extensive%20analysis.

https://www.sfglife.com/blog/top-10-causes-disabilities-us-and-why-you-need-disability-insurance/

https://adata.org/factsheet/health

https://www.dol.gov/agencies/odep/program-areas/mental-health/maximizing-productivity-accommodations-for-employees-with-psychiatric-disabilities

https://www.shrm.org/resourcesandtools/tools-and-samples/hr-qa/pages/cms_011495.aspx

https://www.ada.gov/pubs/adastatute08.htm#12102

I Hate My Job, But I Don’t Hate My Life

The other day I found myself thinking, “I hate my job. I hate my life.” But then I stopped. The truth was that I do hate my job, but I don’t hate my life.

There have been times when the two thoughts absolutely went together. I well remember getting up in the morning and thinking, “Now I have to go to the bad place where they make me unhappy.” Unfortunately, the thought would color my whole day. Instead of unwinding after a rotten day – or a whole series of them – I brooded about what came before and dreaded what would come the next day. I was caught in a loop of bad thoughts and they wouldn’t let me go, or enjoy, or relax. My life seemed to stretch out into an unending series of more of the same.

Of course, that was when I was deep in bipolar depression, improperly medicated, and unaware of self-care. Oh, the job was indeed pretty terrible. I was an editor, a writer, and a proofreader, tasks and occupations I normally enjoy. There’s something wonderful about taking something mediocre and making it good, or even taking something bad and making it better. Once or twice I even got compliments on the job I was doing.

But at that time, when I hated it, the job was a misery. A reorganization had put the editorial department under the marketing department, which had been true in fact for a long time but was now formally acknowledged, with a resulting new chain of command. Anything I wrote was essentially a puff piece for some advertiser. Three senior editors were fighting over my time and attention, each determined that I should work on their project first and foremost.

I wasn’t quite ready for a major breakdown, but I was close. I hated both my job and my life.

Now I have a tedious and basically unfulfilling job. I transcribe audios of boring business meetings and lawyer consultations, relieved only by the occasional podcast. On top of that, I’m a really crappy typist, so it takes me hours to do a job that others could zoom through. Add in foreign accents and mumblers, and you get a job that brings me no joy, but only a modest paycheck.

But for some reason it also suits me. I work four days a week, at home in my pajamas. No one is looking over my shoulder. If I make my deadlines (and I do), I can expect fairly steady work, except during the holiday season. I earn enough to supplement my social security without going over their limit on extra income.

I also have medications that stabilize me and a much better knowledge of self-care. Working at home for only one boss is part of that. So is taking meal breaks whenever I want them and spending that time with my husband. Eating nutritious meals. Letting myself say, “I hate it! I hate it!” after a particularly trying assignment. Reading a book before I go to bed. Snuggling with the kitties. Allowing all these things to seep beneath my skin and feed my soul.

I don’t belong to the regular-massage-and-decadent-chocolates school of self-care. Maybe I’m a simple soul, but I prefer the everyday comforts that make my life not a misery and help me appreciate what I can of my situation. Not that I’ve got anything against either massages or chocolate. But to me, they are special indulgences rather than a part of my daily self-care.

In the end, medication and self-care are what keep me going, hating my job, but not my life.

The Perils of Working Full-Time Again

 

Working full-time is a bitch. Working full-time while mentally ill is even worse.

I work as a writer and editor, but lately I’ve been working mostly as a transcriptionist. Dan works as a clerk in a big box store and grocery. Neither one of us makes very much money at this.

Both of us used to work in more professional settings. Neither one of us is able to now. Working at home in my jammies suits me fine. I don’t know that I’m capable now of dressing up like a competent businesswoman and going to an office where it’s all people-y and I have to be professional and appropriate for eight hours straight. My husband suffered serious burn-out and depression and can no longer handle a managerial position.

The freelance lifestyle has been a godsend for me. Mostly, when bipolar depression hit, I could declare myself a “mental health day” and not work. Most of my deadlines used to be flexible enough to accommodate an iffy schedule. Now not so much.

The transcription job changed from part-time to full-time when the financial crunch crunched. It involves listening to the audio of assorted business meetings, podcasts, and the like and typing them. And there are definitely deadlines. Often very tight ones, but always very specific. I can’t get away with saying, “I’ll have this for you Monday, or Tuesday at the latest.” In fact, I have to take the tightest deadlines I can get because they pay better. I’ve been taking extra work on my days off, too, just for the extra bit of money. But it’s wearing me down, mentally and emotionally. (Sitting at a desk all day isn’t doing wonders for my back either.)

So here I am, dealing with many of the difficulties of full-time work – setting an alarm to wake me up, working when I don’t feel well enough, not being able to take breaks when I need them, fighting the stress of tight deadlines. I am fortunate, and I know it, to be able to work at all, what with the bipolar and the anxiety. I shouldn’t complain. But the freelance market is tight these days and transcription is almost all I can get. It’s leaving me feeling battered and afraid. The work is said to slow down drastically between Christmas and New Year. But the bills don’t, of course.

Dan’s work is less mentally stressful but more physically challenging. Working third shift requires him to sleep most of the next day just to recover and his depression is kicking in as well. His brush with mortality and enforced inactivity depressed him further. Plus, he has to deal with me and my mood swings, from resigned numbness to hypomanic panics. We’ve often said that when both of us are emotionally afflicted at the same time, things get pretty ugly. Neither one of us can truly be there for the other, or only in small bursts.

But until or unless our circumstances ease up, here we are – fighting our way through full-time work and part-time mental function. I just keep pounding these keys and he just keeps stocking those shelves. There’s no time off for bipolar and depression.

 

The Golden Glow and the Spoons

art board cooking flowers

Photo by Aphiwat chuangchoem on Pexels.com

Hypomania is as insidious as it is enjoyable.

I remember when I quit my 9–5 office job to go freelance. I remember when I made the decision. I had gotten my first bad review, ever, shortly after disclosing my bipolar disorder to my new boss.

I remember driving around shortly thereafter, running errands in the middle of the day. I felt the warm, golden glow that goes with either happiness or hypomania. I could wake when I pleased and work when I pleased. I could run those errands when I wanted. I could take my mother to her doctor’s appointments whenever I needed to. I could make and go to my own appointments as necessary.

Best of all, I felt as though I had enough spoons to do all this. I was able to keep up with the work and the errands and the appointments and, hey, if I got tired I could take a nap in the middle of the day.

But.

Eventually the glow wore off and the spoons ran out. Hypomania dumped me back into the depression I was oh-so-familiar with. I had more work to do and less energy to do it. My mother’s problems increased and I had to take over her finances as well as my own. I was teetering on the edge of a major depression, and then I fell off that cliff.

Anymore I don’t trust hypomania. First of all, I can’t distinguish it from actual happiness, competence, or satisfaction. I always question its sincerity and watch out of the corner of my eye for the coming crash. In other words, when I’m happy I can’t even enjoy happiness without reservation.

One way I keep track of my hypomania is by being aware of the number of spoons I have. If I’m flying on a hypomanic cloud, I feel replete with spoons. It never occurs to me that I will run out. When I’m experiencing garden-variety happiness, I still suffer at some point from lack of spoons. No matter how many pleasing things are scheduled for the day, I know deep inside that I cannot simply dive into all that bounty. My joy is measured out, as the poet said, in coffee spoons or in this case metaphoric spoons which I always visualize as small white plastic ones.

Stability for me does not mean that I can ignore my supply of spoons, either. I may be on an even keel, able to do most of what I want, but inevitably the spoon depletion hits, sooner or later. There is simply no more that I can do, much as I want to. And if I force myself past that point, I will surely pay for it in exhaustion, irritability, or isolation.

Spoons, therefore, run my life. If I am too happy, I have to watch for incipient spoon depletion.  If I am level, I know that I must still keep track of the spoons I use. And if I am low, my spoons can disappear altogether, to the familiar point of not being able to get out of bed.

I think the trap of hypomania is the worst of all. On a high like that I can lose track of my spoons – even forget that they are necessary. Fortunately, I don’t get the full-blown version of mania. I fear I would squander spoons recklessly, leaving me a terrible absence of any.

Spoons are a useful way to explain the energy demands of chronic and/or mental illnesses. My husband and I speak spoonie shorthand. But I wish I could experience that golden glow, that haze of happiness, that feeling of floating, without having to keep one eye on the spoon-meter.

 

The Disability Tapdance

man in brown long sleeved button up shirt standing while using gray laptop computer on brown wooden table beside woman in gray long sleeved shirt sitting

Photo by rawpixel.com on Pexels.com

Once I applied for disability for my bipolar disorder and I was turned down Then I took the process as far as I could with a lawyer and he eventually advised me to give it up too. Here’s my story.

I had gotten to the end of my proverbial rope and we had gotten to the end of our money. For over a year I had been sidelined by unremitting depression. There was nothing I could do and nothing my psychiatrist prescribed or my therapist said had helped. We had been living on my husband’s salary and what was in my 401K from when I had last been able to work.

At last my husband pointed out that we couldn’t hold out much longer. He encouraged me to apply for disability. I knew that there would be lots of hoops to jump through and that there was no guarantee of succeeding. But Dan was willing to go with me to the Federal Building and help me get through it. I certainly wasn’t capable of managing it on my own.

Between the two of us, we had looked up what sorts of documents I would need and had acquired them. I was glad we were able to do this because going back again and again for missing documents would have been a horror. I had my appointment with the intake person and went back home to wait.

There were more forms to come. My psychiatrist had to fill out a long one, of course, or write a letter, I don’t remember which. I had to pay him for his time and trouble in doing that but at that point it was just another step that needed taking.

The big step was the psychological interview where I had to perform my little song and dance and convince someone that I was truly disabled. Fortunately, the appointment was not downtown in the Federal Building but in a relatively nearby office building that I knew how to find. Then the hoop-jumping and tap dancing really began.

They tested my memory. They told convoluted stories and asked me questions about them such as the order in which things happened and why the characters did what they did. They were confusing.

They tested my spatial perception. They had me put together those cubes with triangles on them to match patterns they showed me. I still don’t know what that had to do with bipolar disorder.

Then came factual knowledge. I was good at that one. I admit I guessed when they asked me how big around the equator was. I knew the easy stuff like who wrote Tom Sawyer and such.

By the time they got to the word association test, I was very tired. First they gave a pair of words and asked what they had in common, easy ones like truck and train. Later they gave difficult pairs of words that seemed to have nothing in common, like acceptance and denial, but I was supposed to come up with a commonality anyway.

Finally, an interview. I remember the woman asking me if I knew what the saying, “What goes around, comes around” meant. I replied, “As you sow, so shall you reap” and she looked at me funny.

A seemingly endless time later my claim was denied and I got a lawyer to pursue it. By that time so much time had passed that I was coming out of the depression and was able to work a few hours a week. How much did I get paid per hour? he asked. “Thirty dollars,” I said, explaining that I could only work a very limited number of hours. It didn’t matter. As soon as I said thirty dollars the judge’s head would explode, evidently. Lawyer Joe recommended I drop the claim and I did. At least I was getting some work and some income even without disability.

It seemed that for me to get disability I would have had to be together enough not to need it, but sufficiently disabled that I would. Catch-22, as Joseph Heller said.

 

 

Back to Work – Full Time

business clean computer connection

Photo by Ken Tomita on Pexels.com

As is true with many of us who can manage to work only part-time while dealing with bipolar disorder, I was always one paycheck away from financial disaster.

Then the checks stopped coming.

When my main source of work dried up, that financial disaster loomed closer. I knew that it was time to try to go back to regular work. Full-time. Outside in the world, if need be, rather than in my home office, in my jammies.

Looking for work was a job in itself (https://wp.me/p4e9wS-zY). It turns out I’m overqualified for many things and underqualified for others, sometimes both at once.

And the specter of bipolar reared its fearsome head. Even if I found full-time work, could I do it? Especially out there where it’s all people-y? It’s been years since I’ve worked in such an environment and my last few years at it did not go well, as I was beginning to slide into a major, long-lasting bipolar depressive episode.

Looking for work at home was not much better. Even telephone jobs (customer service or order handling, please, not sales) required some experience and my Girl Scout cookie days were back when we still thought it was safe to go door-to-door. When I responded to work-from-home jobs, many of them turned out to be Uber or Lyft, which is hardly the same as work-at-home, if you ask me.

I found a couple of small gigs to tide me over. Then I found one that was really promising.

Proofreader.

They warned me during the phone interview that I was vastly overqualified. I told them that this kind of job was exactly what I needed at this point in my life and please to keep me in mind if any of the other candidates washed out.

The job was with a transcription service, proofing scripts of meetings and reports that other people had typed up from audio files. But there wasn’t much of it, and it didn’t pay very well.

Then they asked me if I would move up to typing. And whether I would do it full-time.

Those were separate questions. I’m not a fast or good typist. I never took typing in high school (though I discovered that I needed it once I got into college). All these years I’ve been faking it, looking at the keyboard and using at most six or seven fingers to type with. But I said I’d try and I did. I’ve been sweating over these typing jobs and they take me lots longer than they do for other, ten-fingered, trained typists, but I’ve been hitting my deadlines.

Full-time was another issue. I said I’d try, with the understanding that I’d go back to part-time if I couldn’t handle it. It’s certainly been a challenge, forcing myself to spend six or more hours at the keyboard five days a week (and then using my days off to write blogs and work on my novel). It’s exhausting. But at least I’m still in my jammies and ready to go to bed afterward.

And I’ve learned a few things. One is “Never volunteer.” Often the company has extra work with even tighter deadlines that pay more per minute and are up for grabs. I made the mistake of grabbing a couple. It nearly did me in, combined with my regular work. (I did get an Amazon gift card for working on the Fourth of July.) Full-time work is hard enough. Full-time plus is a meat-grinder, or I should say a me-grinder.

So now for the big question – did I disclose my bipolar disorder?

I did not. As long as could do the work, it didn’t seem relevant. Work-at-home is not the sort of gig where they make accommodations or modifications for those with disabilities. And if I can keep up my stability and relative mental health, and get time off for doctor’s appointments, my mental status shouldn’t be relevant.

But I’m thinking I may have to cut back to four days a week. Five days is running me ragged. And then in December, when I retire, I can give it up altogether or work only a couple of days a week.

I will have a fixed income, which has both good and bad points, but at least it will lift from me the crushing anxiety of “Will we make the mortgage this month?” (I never was able to get disability.)

So, for now at least, and for the next few months, I will be working full- or almost full-time, if only my bipolar disorder will let me.

Wish me luck.

(Full disclosure: That photo is not an actual representation of my writing space. Mine is littered with legal pads, stuffed animals, Kleenex, and water bottles.)

Do I Disclose or Don’t I?

As I’ve mentioned before (even on my other blog https://wp.me/p4e9wS-zY), I’m running low on money and clients in my freelancing business. Therefore, I’ve taken up searching job ads online for part-time, work-from-home gigs. (So far, Indeed is the only service that has presented me with reasonable options. I sometimes apply for as many as three a day.)

It’s filling out the applications that has me stumped. Oh, I’ve got a fine resume – one on Indeed and another file I can send to jobs not listed with Indeed. I can write a decent cover letter. If there are editing or writing tests, I can handle them too. I have way more education and experience than I need, but I explain in the cover letter that part-time, contract, or freelance work is what I really want at this time in my life.

Then come the other questions that many ask.

Am I a veteran? No.

Am I a U.S. citizen or do I have the necessary documents to work in the U.S.? Yes.

Is English my first language? Yes.

Am I male or female? Yes.

What race do I identify with? Yes.

(Those aren’t really yes/no questions and are usually marked as optional, but I answer them anyway.)

Then comes the real stumper. Am I disabled? Well, that depends.

Most of the application forms state that they abide by EEOC regulations. Some of them even have a handy list of what are considered disabling conditions – and bipolar is one.

So. Do I take them at their word and believe that they do abide by EEOC regulations, in which case I can reveal my bipolar condition without penalty. In fact, if the company is trying to prove to someone that they are abiding by those regulations, the answer is probably yes, I should.

But we all know that such questions, while well-meaning on the surface, may actually be used to screen out disabled candidates. So perhaps I should answer no.

The deal with the regulations is that employers must offer “reasonable accommodations” to let disabled employees do their jobs, unless the accommodations for that condition are not feasible because of expense or other reasons.

So, as a person with bipolar disorder, what actual accommodations would I need?

The main ones I would need are the ability to work remotely, from home, and to have flex time. Those cost an employer nothing, usually.

And those are precisely the kinds of jobs I am applying for – work-remotely jobs in which you can make your own hours, or at least partially.

So when it comes to “The Question,” I have been answering “yes.” For the purposes of work, I am at least partially disabled by my bipolar condition. I cannot work full time. I have trouble working in a bustling office with lots of people around. I need flex-time to work around my symptoms. (I can still meet deadlines, though.)

Funny, but the forms don’t have spaces or yes/no questions on those subjects.

I have considered the idea that I am doing this all wrong. That I should not disclose my bipolar disorder until I have the job (and for those who don’t ask the question, that’s what I’ll have to do). That after I have the job is when I should discuss accommodations.

But dammit, all evidence to the contrary, I am a cock-eyed optimist. Those EEOC rules are there for a reason and I am that reason. I know that when most employers think “disability,” they think “wheelchair” or “impaired hearing.” But there it is, listed right among the possible disabling conditions – bipolar.

So far I’ve gotten a few form rejection letters and mostly a resounding silence. And in the meantime I’ve been scrambling for other clients and other assignments.

But I hope the day will come when just one of my potential employers means what it says about disabilities.

Shortchanged: Bipolar Disorder and Money

I don’t know any rich people with bipolar, aside from the celebrities who struggle with it and go public. There may be some out there – there must be, statistically – but I don’t know any of them. I’m relatively well off – home, car, most bills paid, work – but even I live paycheck to paycheck. And have lived no-paycheck-to-no-paycheck in the past.

Let’s face it, having bipolar is expensive. And not conducive to making money. Here are some of the hurdles that I’ve noticed.

Insurance. The biggie. Right now I have insurance and, thanks to the Affordable Care Act (Obamacare), it covers mental health conditions. My previous insurance, which was more expensive, and crappier, and came through my husband’s employment, did too, but not nearly as well.

So, I’m covered, but not all my doctors take my brand of insurance. Some of them will accept reduced fees (if you ask) or have a special self-pay rate. But even that doesn’t always help much. My previous psychiatrist charged me $95 and my current one $75 – and those are just for 15-minute med checks, not full 50-minute sessions. My therapist accepted $30 per for that, so I was lucky, but had no official insurance document stating that she had to give me that rate.

Medication. The other biggie. I am currently on four or five psychotropic medications, depending on how you count (and no, you don’t need to know what they are: http://wp.me/p4e9Hv-u1). One of them – you can probably guess which one – cost $800 per month when it was first prescribed to me. I got a coupon from GoodRx.com that brought it down to around $200 per month which was, if not exactly reasonable, more doable. Finally, a generic came out and the ACA kicked in, and I get the drug for $45 per month now. That would have seemed high at one time, but now sounds comparatively reasonable. But if you’re on a fixed income, watch out. Fixed income and no insurance, you’re screwed.

SSDI. Which brings us to the topic of Disability, the “safety net” that’s supposed to catch those of us who are so disabled by our mental (or physical) conditions that we’re unable to work. Good luck getting it. Most people who apply are rejected, sometimes more than once. Practically speaking, you need a lawyer to navigate the shoals for you, and one who works on contingency at that. The hoops and red tape are massive. If you’ve got depression, to pick just one example, cutting through and jumping through may be beyond your capabilities. You’d think they planned it that way, just to cut down on the number of claims they have to pay.

Mental illnesses are particularly difficult to get SSDI for. They’re “invisible illnesses,” not like blindness or paraplegia that one can’t help but notice. When and if you do get approved, the monthly payment is meager and fixed (see above), unless there is a cost-of-living raise which, given the current economy and political leadership, is increasingly unlikely.

Bipolarity. Then there’s the disease itself. Anyone with mania can probably tell you about the sometimes-ruinous spending sprees that accompany racing moods. Hell, I only get hypomania and I’ve got five custom-made dresses in my closet that I’ve never worn and now can’t because of weight gain from my psychotropics.

You’d think depression would not have much effect on your spending. But it does have a profound effect on your income. People with bipolar depression who can work part-time or from home are lucky. Others not so much. There was a period of several years when I was unable to work at all, and we ran through our savings and retirement accounts rapidly. My husband could still work, but one income quickly became insufficient to meet the bills. (Fortunately, my bipolar depression lifted enough that I’m now able to do part-time, at-home, freelance gigs, which are about as unstable as I am.)

Retirement. No IRAs left. No savings. That means Social Security, delayed as long as possible, and the aforementioned fixed income. Basically, I can never retire. I can’t afford to.

Frankly, I can’t see any of this changing anyways soon. Money trouble is just one of those things that you have to deal with along with your mental disorder. And there’s nothing like stress to make your symptoms worse.

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