Bipolar 2 From Inside and Out

Posts tagged ‘being overwhelmed’

Mr. Fix-It

Him: I just groomed the cat. I used a cat-a-comb.

Me: *total silence*

Him: Hey, honey! I just groomed the cat – with a cat-a-comb!

Me: *more silence*

I was depressed, and he was trying to cheer me up. Using exactly the same joke that had gotten no response only seconds before. I don’t know why he thought it would work better the second time.

Many men have the instinct that, when confronted with a problem, they will try to solve it. When something is broken, they will try to fix.

I wasn’t broken, exactly, but I was deep in the Pit of Despair, aka the lower mood swing of my bipolar disorder. At that stage I am immobilized, uncommunicative, and utterly humorless.

The fact that Dan had worked in hospitals and psychiatric facilities was actually a bad thing, despite what you might expect. He had run laughter therapy groups, he knew the jargon, and he sincerely wanted to be helpful.

But he didn’t know – viscerally – what depression was like. How it felt in your body and mind and soul, how it damped down your personality and blunted your reactions and removed your ability to view life as anything other than miserable. Certainly not funny.

Later Dan learned all this when he experienced his own bout of clinical depression and became another one of my Prozac pals. But until then, he would occasionally come shrinking at me, until I had to tell him to stop. I could accept a hug, but not a joke or a “remedy.”

But all that was early in our relationship and before I had begun to heal or even get proper treatment. And I literally would not have made it this far without Dan. I need him and likely always will.

When it’s Pit of Despair time again (which it sometimes still is), he checks on me to see if I need that hug, or some food, or a kind word, or just to be left alone. When I am better, he still does the cooking and shopping, and reminds me to eat regular meals and take showers and tells me I smell nice after I do. Sometimes he can coax me out of bed with a tape of The Mikado or out of the house with lunch at Frisch’s. If I’m too nervous to drive to my appointments, he takes me. When I’m together enough to work, he keeps the house quiet and fixes food when I need a break and validates me for being able to bring in money, even when it’s difficult.

But he can’t fix me. And now he knows that.

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Churchill’s Dog

Winston Churchill famously compared depression to a black dog. Here’s a video that takes that metaphor and runs with it.

Andrew Solomon, author of The Noonday Demon: An Atlas of Depression, says, “Depression minutes are like dog years, based on some artificial notion of time.” He goes on to describe how the simple act of getting out of bed and taking a shower can consume hours, leave you exhausted, or be simply impossible without help.

The Noonday Demon

There’s even a Black Dog Institute in Australia, which is a non-profit organization that provides information about depression, bipolar disorder, suicide, and other topics.

Home

There are other metaphors. J.K. Rowling, creator of Harry Potter, talked about depression and dementors. Here’s a link to a post I wrote about that.

Read Your Way to Sanity

The black dog is with me now.

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Not Waving but Drowning

Consider this a trigger warning. The third section is going to talk about some difficult stuff, although in mostly general terms.

Here’s a list of how I know how bad my mood disorder is at any given time. Being bipolar, I cycle in and out of these phases, along with periods of reasonably competent functioning and even, occasionally, contentment or even happiness.

There are basically three stages of increasing dysfunction.

Starting to Sink
My sense of humor takes a hike.
I need more alone time.
I take mega-naps.
I forget that music can help.
I snap at my husband.
Noises irritate me.
I can force myself to work.

Floundering
I don’t want to eat.
I turn off my phone.
I sleep up to 14 hours a day.
Attention span is one hour (or one average book chapter).
I can trick myself into working.

Going Under
Can’t sleep.
Can’t work.
Can’t read.
Attention span: 15 minutes max.
Thinking “Maybe the plane will crash and I won’t have to deal with this anymore.”
Regretting I flushed my stash of pills.
Urge to cut.

Fortunately, I am well-medicated enough that category 3 doesn’t happen nowadays, though I remember it clearly and am appalled. At that point, the only things I can do are keep seeing my doctors and taking my meds. And remember to thank my husband when I come out of it.

(The title of this post is from a poem by Stevie Smith. The last two lines are: I was much too far out all my life / And not waving but drowning.)

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The Universe vs. Me

I set out Friday to drive from Ohio to Michigan – about a 3-4 hour drive, depending on traffic.

Five miles out, the Saturn stopped working. Called husband and AAA. Towed to local mechanic. Probably bad clutch.

So we switched my luggage to my husband’s Blazer. About 30-40 miles away from home, car stopped working. Called cell phone emergency road service. Towed to nearest garage. No idea what’s wrong with it, or if the random mechanic is any good.

So my husband picked me up and put my luggage in the back of his ’84 pickup. Halfway home, the radiator blew. I had a meltdown. Called AAA. Towed home. Had pizza delivered.

That’s it on the vehicles. Not even a bicycle left.

Also, there is No Money, except maybe enough to pay the mortgage and health insurance for February.

I have my Abilify, but it hasn’t kicked in yet.

A couple of friends suggested that this was the universe’s way of telling me not to go to Michigan, thereby avoiding something even more heinous that would happen there.

My questions regarding this theory are:

Did the universe really want us both stranded at home, with no way to get to the store or pharmacy, or for that matter, to the other cars?

Did the universe really want Dan to miss more work and lose more pay, especially since he lost nearly a month’s pay going to stay with his mother while she recovered from surgery?

Did the universe really want us to invest yet more money in the cars, when we just bought two of them new wheel bearings?

My answer: No.

The universe is not conspiring against us. This is not divine retribution for a life of sin. This is not bad karma because I was a cannibalistic serial killer in a past life. This was not caused by some higher power that knew I shouldn’t go to Michigan because the place where I was going to stay would spontaneously burst into flames in the middle of the night.

But sometimes it sure feels like it.

I believe there is no larger “because.” Just the fact that we have crappy vehicles and can’t afford the upkeep.

I have no idea what to do, except go to bed, finish having my meltdown, and stay there till the Abilify revs up.

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The Abilify Saga Continues

It turns out, Abilify works for me. Except now I have to work for Abilify. To afford it, I mean.

I now wake up around 7:30 or 8:00 instead of 10:00. I can concentrate long enough to read whole chapters of books, and am enjoying that immensely. I am able to get showered and dressed and go out to run a few errands. I can decide what to eat and even recognize when it’s time for me to eat.

And I can work. I have taken on a mega-project, which has required my attention up to eight hours a day, researching, writing, editing, and proofreading. I don’t know how well I’m doing (there are some differences of opinion about that), but I’m doing it, goddammit.

I may be pushing myself a little too hard, despite the new energy and focus. The other day I had to force myself, one pitiful step at a time, to address a dozen Christmas cards. “You have the list, you can put the addresses on the envelopes. You’ve got enough stamps, you can surely put them on the envelopes. (Don’t call me Shirley.) Better put return addresses on. You can do that much, then stop. You can slip the cards into the envelopes. How hard can that be? You had them printed with your names, so you don’t really have to sign them if you don’t want to and won’t have to fake your husband’s signature because he’s not here. That would be too much. Now lick the envelopes. All you have to do is stick out your tongue. Might as well take them to the mailbox. You need to get cat food out of the car anyway. Okay, now you can crash. Egg sauce, Ted.”

Many’s the year when all that was Just Too Much. According to the Mystic Law of Reciprocal Cards, we get about four nowadays, and are very grateful for those.

And grateful for the Abilify. Except it’s $800 a bottle, even for the tiny dose I’m taking. I got one free month and one discounted month ($650) from the manufacturer and have spent a lot of time since worrying and seeking solutions.

There will (we hope) be a generic in April. Yay.

I know someone who was taking it and has some left over.

I know someone in Canada.

Will my doctor prescribe a higher dosage so I can break them in half and stretch them (and the cost) out?

I may have at last solved the problem. After hours on the phone and hours more on hold, we finally have new insurance. It costs about as much per month as a bottle of Abilify, but the drug benefit kicks in before we’ve paid the deductible (which is way lower than previously). So our many, many other drugs will magically shrink to $15 per – or less with mail-away – and we’ll come out ahead. A little. Probably. If I can keep up the pace on work.

Plus, now we have dental, and oh lord do I need that. But that’s another story for another time.

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Happy Humbug

It’s a truism that holidays are difficult, not to say hazardous, for those of us with mental disorders. But there are a variety of reasons and a variety of reactions and – dare I say it – a variety of coping mechanisms.

First, let me say, that despite the fact that I was already depressed or bipolar as a child, the holidays were marvelous. Our granny, maiden aunt, and uncle lived a few hours away and we spent Every Holiday there. (My uncle drank, but not when we were kids.)

On Thanksgiving, we’d arrive, the adults would eat themselves into a coma, and then nap while we kids were sent of to the movies.

Christmas was similar, except that we’d get up, open presents from our parents (and “Santa” for the biggies), pile into the car, and head to granny’s. The adults would eat themselves into a coma, and then nap while we kids were sent of to the movies. (I specifically remember The Sting and The Andromeda Strain, during which I saw my first picture of a naked male butt.)

There was no tension involved – no grand dining table, no fancy dress, no distant relatives, no formal manners. We’d simply fill a plate with home cooking, perch on a sofa (which was called the davenport) or chair, and chow down.

My birthday falls between Thanksgiving and Christmas, but poised well enough between the two that it was never combined with either one. Back then, birthdays were simple – cake and frosting from box mixes, four to six neighbor kids, presents (no gift bags), and maybe a couple of party games. (It was at someone else’s birthday party that I was traumatized during a game of Pin the Tail on the Donkey.)

How could anything in later life measure up to those?

Well, it couldn’t. My first Thanksgiving away from home was when I was at college, and we ate lasagna, not turkey. I believe it was the first time I had lasagna. Ever.

Since then all the holidays have gone downhill, or I have.

Any more, they’re a chore, a relentlass gray blob from November through January. (Halloween starts it off. I can’t get with that either.)

For years, I kept up some of the traditions for my parents’ sake. My mother in particular loved everything to do with Christmas – the Macy’s parade, the tree with my father’s favorite old smudge-faced angel on top, crocheted holiday sweaters and snowflakes and handmade ornaments from her foreign penpals and neighbors and church friends.

.muzz3

My first Christmas in my own apartment, I had a small fake tree. When I got married my husband and I tried to get into the spirit with surprise gifts and selecting and decorating my mother’s tree and inviting a divorced friend to dinner with us.

But I was sinking rapidly. At various places I worked, all the ladies sported store-bought Christmas sweaters and sweatshirts (Halloween ones, too) that I thought were just awful. But one year, in a desperate attempt to fit in, I bought holiday sweaters on sale in January to wear the next year. Of course, by then I had lost the job.

Dan and I continued the tradition of dining with our friend John, but our venue changed to Chinese restaurants, where we were kept company by Jews, pagans, atheists, and, no doubt, other depressives and bipolars.

One year Dan was visiting his mother and I was on my own. I tried. I really did. I trotted out a festive holiday sweater and little wrapped-present earrings, and went out to a buffet that offered turkey and beef and ham. But I sat by myself and listened surreptitiously to my iPod. And not holiday music, either. By then about all I could stand was the Christmas jazz from the Charlie Brown TV show.

This year, we ate out on Thanksgiving – but not at the swanky hotel buffet we sometimes took my mother to, or any of the other mega-buffets. We went to a diner that John used to love. I had pork chops and lemon pie. On Christmas I’m likely to be by myself again and may just get festive with a Stouffer’s mac-n-cheese.

Comfort food seems appropriate, and the cats like to lick the dish. Then for dessert – Zoloft and Ativan and Lamictal and Abilify and Ambien. Yum. Visions of psychotropics dance in my head.

 

P.S. I wrote about a Thanksgiving with John on my other blog. If you’d like to see it, go to http://janetcobur.wordpress.com/2014/07/25/thanksgiving-ratatouille-and-a-near-death-experience/

And if you’d like to see my rant about the “War on Christmas,” go to http://janetcobur.wordpress.com/2014/11/09/lets-call-a-truce-on-christmas/

 

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Missing Friends

Last week I wrote about the controversial subject of self-harm. In my post, I said:

One of my dearest friends once said that if he ever found out I was a cutter, I would never hear from him again. Except for his publicly mocking me for being so stupid.

Naturally, this sort of reaction, though common, is not helpful. I didn’t tell him (or practically anyone else). And I didn’t tell him that at least two other people he knew – one fairly intimately – were also cutters.

Anyway, Tom, if you’re reading this and still feel the same, I guess this is goodbye – just not the long goodbye. I would rather skip the public mocking, though. I’ll just assume you’ve done it while I wasn’t there, mm-kay?

Finally, I got tired of wondering, withholding a part of my past from someone with whom I have practically no secrets, sometimes to the point of TMI.

So I called him and asked, “Are we OK?” At first he didn’t know what I meant, since he hadn’t read the post, but after a brief nudge I could tell he knew exactly what I was referring to.

Just as a (very rational) mutual friend had predicted, Tom chalked it up to the hyperbole of his callow youth and reassured me that we were fine.

Still.

I had lived with the fear of losing that important relationship (and being publicly mocked) for over 20 years. I had never dared mention it to any people in our circle either.

And, let’s face it, I have lost other friends and can attribute at least some of these losses to my bipolar disorder. It harms me, but it also harms those around me, and especially relationships.

I have shot my mouth off and driven away friends and colleagues with bitterness and sarcasm but without realizing how I sounded.

I have ratted out a friend to his therapist and his wife when he was suicidal, which he found unforgivable.

I have turned down invitations to go out or agreed to and then backed out one too many times. My friend gave up the effort since I wasn’t responding.

I have abused the hospitality of friends. When I was at my still functioning moderately well, I would visit and we would enjoy activities, food, conversation, and music. When I was near or at the depths, I would invite myself to visit and turn into an uncommunicative, disengaged, immobilized lump. I was a mooch and a leech, and a real downer generally. I didn’t like spending time with myself, so it’s no wonder they didn’t either.

And I miss every single one of them. I wish I hadn’t driven them away. I wish I could make things right again, now that I’m functioning at a higher level. But I can’t. And that hurts.

In some cases, I’ve tried – sent brief notes of apology. They have been acknowledged with cold politeness that does not invite more contact. I don’t know what else I can do.

Bipolar is a cyclical illness and, though I’m much improved, I can’t promise that I will never sink that low, be that inconsiderate, offend those I deeply care about again. And I can’t blame them for not wanting to deal with that. I don’t want to deal with it.

But I have no choice in the matter. And that hurts too.

Fortunately, there’s one friend I cannot lose, no matter what – my husband. He’s ridden the roller coaster with me, put up with the huge mood swings, ignored the irrational remarks, offered to help in any way, encouraged me to go out but understands when I can’t, and dispensed hugs on a regular basis. He respects alone time and is there when I need company or distraction. If things are really bad, he gets me to eat and helps me shower and takes care of the pets and picks up my refills and does whatever else needs doing.

He’s a man who takes “in sickness and in health” seriously. I wouldn’t have made it this far without him. And I won’t ever lose him, till death do us part.

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Cutters

If that title wasn’t enough of a trigger warning, well, here goes:

TRIGGER WARNING: Self-Harm

Recently a small discount store a couple of miles from my house was caught up in a furor because a “Princess Wand” toy they were selling (ominously named an “EvilStick”) would reveal a hidden image of a teenage girl cutting her arm with a knife. Here’s a link to a local news story about it, and the snopes.com report verifying it. If you want to, you can easily search out a copy of the image, but I don’t recommend it.

Self-Injury

http://www.snopes.com/photos/odd/evilstick.asp

The “toy” is in horrifically bad taste (so, for that matter, is the snopes article’s headline, “Wristcutters – A Toy Story”). But items that adults consider dreadful can attract kids (remember the Garbage Pail Kids trading cards?). The image of the teenage cutter looks like a macabre Halloween costume rather than anything realistic (I’ve seen it), but we don’t really know whether a mistake, an error in judgment, a misunderstanding, or a prank at the factory that went way over the line resulted in the image on the toy. I kind of hope so, because if it was intentional, that’s way worse.

But bad taste is the least of the problem. The toy and the reaction to it have introduced the subject of cutting to a wider audience, if they choose to look beyond the squick factor and think about what the image really means. Cutting is a reality that’s mostly hidden from view.

Of course, it’s not always cutting. Burning is popular too. But cutting is perhaps the most common name. There are websites devoted to it, some offering help, facts, and information on quitting (see below) – but others glorifying it as, I don’t know, a creative expression of teen angst or something.

The name does keep changing. The last I heard, the “approved” psychiatric term was “Non-Suicidal Self-Injury” (NSSI). Self-mutilation, deliberate self-harm, non-fatal self-harm, self-destructive acts, self-inflicted violence, parasuicide, and self-wounding are all names for the dangerous practice performed by desperate people. The subject still isn’t talked about much and carries a huge stigma. As if the mental and physical scars were not enough.

Some facts: Self-harm is not attempted suicide, though with some miscalculation it can lead to serious permanent injury or death. Most people associate it with teenage girls, but I’ve know at least one man in his 50s who cut himself fairly regularly. It is not a matter of attention-seeking, since most cutters hide their physical wounds.

As I understand it, the practice results from one of two phenomena: the build-up of painful pressure such as perfectionism, or a feeling of severe alienation to the point of numbness. Cutting is a coping mechanism, though a dangerous, dysfunctional, and unsuccessful one, to deal with pain.

In my case, it was probably the numbness. I was feeling a lot of psychological pain at the time (college age) and irrationally wondered if physical pain would lessen that, or increase it, or feel any different. Like I said, irrational. All this was before I was diagnosed bipolar, had a therapist, or was medicated.

I made a few small cuts on my wrist to watch the blood well up. (Ironically, they became mildly infected; I neglected to sterilize the knife.)

I wasn’t suicidal. They weren’t that kind of cuts. I do know the difference. (I didn’t realize that I could have damaged tendons or nerves in my hand or arm, perhaps permanently.) It was more like when you stand on a bridge or balcony and look over the edge. You walk away. But you know the bridge is always there.

All told, I cut myself maybe three or four times. The scars are very faint now, white against my pale inner wrist, almost invisible. The memories are vivid. A friend who’s a psychologist once asked me why I stopped. “Because I didn’t need to any more,” was the only answer I could give. I’ve only felt the urge once since, and it was easy enough to push aside. But I recognized it.

I hesitated to write and post this, though I knew I would have to sooner or later, if I meant this blog to share my experiences truthfully. One of my dearest friends once said that if he ever found out I was a cutter, I would never hear from him again. Except for his publicly mocking me for being so stupid.

Naturally, this sort of reaction, though common, is not helpful. I didn’t tell him (or practically anyone else). And I didn’t tell him that at least two other people he knew – one fairly intimately – were also cutters.

Anyway, Tom, if you’re reading this and still feel the same, I guess this is goodbye – just not the long goodbye. I would rather skip the public mocking, though. I’ll just assume you’ve done it while I wasn’t there, mm-kay?

Cutting isn’t going away if we ignore it. It won’t go away even if we do talk about it. (Or mock it, or gasp in horror.) But understanding self-injury is a big step.

If you’re a cutter, or know someone who is, here are some places you can go for information, hope, and help:

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Suffering and Train Wrecks

What doesn’t kill you makes you stronger.

Right.

This is one of the world’s biggest falsehoods, right up there with “Sticks and stones may break my bones, but words will never hurt me.”

But it’s a platitude we hear all the time, particularly those of us with mental illnesses.

And it’s about time to call bs on the saying. Here’s why people say it:

Suffering hurts. It grinds you down. It makes you less able to function. It keeps you from being the person you want to be.

Except in literature. There, suffering ennobles one – makes one a finer person, a more worthy person, and, yes, stronger.

Once in a graduate-level literature class, I objected to this. I said the thing about suffering hurting and grinding you down.

I got called a sociologist, which apparently is a terrible insult in literary circles. But they were talking about literature and I was talking about real life, so maybe we both had a point.

But back to the saying. There are lots of things that don’t kill you, but also don’t make you stronger. Train wrecks, for example. If they don’t kill you, they can leave you on the brink of death or physically maimed or with PTSD. You may recover some, with help, but your back will still hurt and your leg won’t regrow and you can suffer from memories and dreams.

I’ve compared some relationships with train wrecks – probably most of us have. They simply cause you to suffer and the memories of them may always pain you like a damaged joint in bad weather. One can come through ordinary bad relationships and be stronger for it. But train wreck relationships, the toxic ones that erode your soul, do not ennoble or strengthen you.

Mental disorders can be like that. Yes, you may improve. Yes, you may become stronger in some ways. You may become more compassionate, more aware of others’ pain, better able to avoid situations that will cause you harm, capable of rebuilding a different life with the parts you want to keep. But it’s just as likely that when your brain breaks, it will never be good as new again. There will be cracks in your emotions or reasoning or moods that will be weaker, not stronger, and more likely to rupture again in the future.

We sufferers need strength, but it won’t come from platitudes and bumperstickers.

And you can’t explain this to people who haven’t been there.

Also, don’t get me started on that thing about God not giving you more than you can handle. We’ll be here all week.

As always, these are my experiences only. Your mileage may vary.

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Maybe Another Manic Monday

The great Abilify experiment continues. I’m still roller-coastering, which is “normal” for me, but I really can’t tell whether the drug is affecting the ups and downs.

The highs and lows do seem to be higher and lower (respectively). I am dubious about this being a Good Thing. For several days I was so thoroughly depressed that I was ready to call Dr. R. and tell him I need to stop taking the drug. Then I leveled out to my usual place on the continuum – functioning, but not spectacularly well or consistently.

Now I think I’m starting to get manicky. One way I can tell is that I actually had fun, laughing and playing with my husband the other night and exulting in getting an old friend to walk straight into an awful joke. (Me: Have you heard the new Ebola joke going around. Him: No, what is it? Me: Eh, you probably won’t get it. Him: No, c’mon, try me. Me: That WAS the joke. Him (in evident pain): Oh! Oh! Oh! Oh! Oh! Oh!)

But the real clue that the upswing may be swinging more than it should. I’m thinking about starting more blogs.

I already have two – this one and a general purpose blog called Et Cetera, etc. (janetcobur.wordpress.com, if you’re interested). For over six months I met my goal of posting something in both of them once a week.

Then the big low hit me. But I’m back on track now, after several weeks’ absence.

The thing is, I have ideas for two other blogs. I just don’t know if I could handle them.

One would be Cats, Etc. – stories and anecdotes about life with cats, cat care and health, and so forth. We have three cats right now (Louise, Garcia, and Dushenka), plus many former fur-family members, so there would be no shortage of material.

The other idea is Books, Etc. I’m an avid reader, and though the bipolar has sapped my concentration so much that it varies between 20 minutes to two hours at a time, I’m starting to see some progress. And I find myself wanting to write about what I’m reading – maybe book reviews, maybe lists or quotations, maybe even some lit crit (my original background).

But could I maintain them? And not have them drain off the limited energy that I should use to do the freelance work that pays the bills.

I think it is a sign that I’m still fairly well anchored that I haven’t rushed off and started them already. But the yearning to do more reading and writing keeps getting stronger. Maybe I could keep my current two at once a week, and do the others on alternate weeks. But that would still mean three blog posts per week, plus the freelance. Frankly, I don’t know if I could handle it. I keep asking myself, should I try? Or should I wait to see if my moods level out on the Abilify and it becomes clear whether they are Good or Bad Ideas, or even possible.

Words – both reading and writing them – have sustained me for most of my life. It was a sign of my most profound depression when I found myself unable to maintain enough focus to read. Now that I can again read and write to some extent, do I dare to push myself, push the boundaries? Can I? Should I?

Good thing I see my psychotherapist today.

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