May Update
I fear May has broken my spirit and possibly my brain. Fortunately, I see my brand-new psychiatrist on Saturday and my therapist on Monday.
I fear May has broken my spirit and possibly my brain. Fortunately, I see my brand-new psychiatrist on Saturday and my therapist on Monday.
Sometimes, when I get tired of my complicated life, I imagine what it would be like to start over someplace new, or what it might have been like if I had made different choices. I envision myself, living alone (well, with one cat), in a small town like Benson, AZ. I would have a small used book store or secondhand shop and live in a small apartment over it or behind it. I would have a couple of friends I met in my shop and go out to lunch or dinner once in a while, but mostly spend my free time listening to music, watching TV, or on the Internet.
Sounds simple and peaceful, doesn’t it?
This past week has convinced me that even such a stripped-down existence would not be possible for me. My husband was out of town for nine days, and I could barely manage.
Those of you who follow this blog know that my husband is my rock and my support. I often say I could not get through without him, and my recent experiences only reinforce that.
I didn’t begrudge his leaving, though I wish he had not been gone quite that long. His mother needed him to help her get ready to sell her house and move, and nine days was barely enough time to start on all that needed to be done. There are times she needs him as much as I do.
But coping on my own was difficult. I have paid work I have to do. It matches perfectly with my skill-set and I’m grateful to have it, but sometimes it’s just plain hard to do and hard to make myself do. And I have two blogs (the other is at janetcobur.wordpress.com) that I have made a commitment to posting in once a week, each. Plus, I have started writing a novel.
We have four cats, two of them ancient, and one dog, also ancient. I was afraid that one of them might die while my husband was away. (None did.)
As scary as the idea of coping with a dying or dead animal on my own was, just caring for them was difficult. They keep demanding food several times a day, you see, and they have no thumbs to open cans with. Then there’s the water bowls and the litter boxes. I used to live alone with one cat and manage okay, but that was many years and many meltdowns ago.
Then there was feeding me. Dan had stocked up on things I like before he left, but after the French bread pizzas were gone, I lived largely on salami sandwiches, cheese and crackers, and cereal. (I did eat vegetables. I had a small tray of sliced veggies and dip.) Once I made a couple of baked (frozen) fish sandwiches early in the week, but later I had devolved to the extent that my evening meal was peanut butter on a bagel. Another night I had mashed potatoes and a glass of red wine. Other meals I simply skipped.
Then there was Dealing With Stuff. Life Stuff. You know. The Stuff that happens to everyone sometimes piled up on me. I had to talk to (argue with) the utility company and the IRS. I had to pay bills. Life stuff leaves me exhausted.
Plus, I kept having to Go Out. Deposit my check. See the doctor. Pick up prescriptions. Buy cat food when I ran out. I wore pants more days last week than I had in the previous month. (Dan wanted me to water his butterfly garden daily, but it rained every day or night, so I didn’t have to put on pants and go out for that.) I treated myself to lunch twice when I had to go out to do those errands, but it was nearly impossible to decide where to eat.
Now Dan is back. I had to put on pants again so we could return his rental car.
But you see what I’m getting at here.
My fantasy of retreating to a simpler life is not feasible. It simply wouldn’t work. The everyday tasks and trials of managing a shop, caring for myself and a pet, negotiating all the stuff of life would overwhelm me. Oh, when I’m hypomanic and can sometimes focus, I might do all right for a while, but life – even a very basic one – would eventually overwhelm me. There are so many things I can no longer do, at least not without serious amounts of help and support.
I can muddle through for a while mostly on my own. I am getting better. But not better enough to live independently, at least not right now.
When I was a child, I was often told that I was “too sensitive” – meaning that I took things too much to heart, especially criticism and the taunts and bullying of other children. It was something that I assumed was innately wrong with me, and that I didn’t know how to fix.
These days, however, I’m too sensitive to sensory input.
I used to be able to write or read or edit with music on (instrumental music, at least). I used to be able to hold a conversation while the television was on. I used to be able to drive a car and look at the scenery around me.
Not anymore.
A fan is about all the sound I can handle while I write, and sometimes quiet is the only thing that will calm my nerves. I can barely process remarks anyone makes about the TV show we’re watching. And if I’m driving, I never even notice a deer in a field off to the side of the road. I doubt that I would notice a hippopotamus.
I’ve written before about my brain being overwhelmed with too much input, meaning too many thoughts, anxieties, and fears. But over the years – at least since my last major meltdown – I have trouble processing more than one sensory signal at a time.
It’s not just a matter of focusing in too completely on just one thing. (I have in the past entered into some movies so thoroughly that I’ve nearly killed my husband when he has asked questions like, “Will you look at this pimple on my back?” or whispered to me, “I think I know what makes that spaceship fly.”)
My ability to focus – to concentrate intensely – has been a casualty of my mental disorder. At my lowest point, I couldn’t even read a book, which is something I’ve been doing since I was three or four. I still can read only one chapter or one magazine article in a sitting
Now that I’m recovering (thank God and Drs. R. and B.), I can concentrate enough to read, and write, and edit. What I can’t do is separate out multiple sources of information on the way from my senses to my brain. If my husband talks while a TV show is on, it’s not just that I can’t make sense of what he’s saying, I can’t process either signal – the TV or him. It’s all a jumble.
If I went to cocktail parties (I don’t), I would be unlikely to have an intelligible conversation because of all the ambient noise and clashing voices. I recently went to a workshop that held a mix-and-mingle event on the first day. Having people chatting all around me was not just distracting, but almost painful and immobilizing. Focusing on one person at a time was the only way I could get through it.
And forget about Chuck E. Cheese or Cici’s Pizza! No. Just no. Video arcades – are you kidding? It’s a good thing I have no reason to frequent places like that. When I go to a regular restaurant, I have to ask not to be seated near any birthday parties or office functions. I wish they had a “no screaming” section.
I understand that sensory processing difficulties sometimes occur in persons with autism spectrum disorders (ASD) and/or ADHD. I have never been diagnosed with ASD, though I may have manifested Asperger-like traits in my youth (well, OK, in my adulthood too). And I have been told by doctors that I have hyper-sensitive nerves. Is that the same as what I experience? I don’t know.
Most of the research and discussion of sensory processing and bipolar disorder occurs in the context of children, though I never noticed such difficulties when I was a child. But just as articles about autistic adults are rare (except, of course, for the high-functioning) and learning disabilities are forgotten about as soon as a person leaves school, it seems that sensory processing problems in adults also get little attention.
I can’t be the only one dealing with this.
As I learn more about my own difficulties and conditions that affect others, there is one conclusion I’m rapidly approaching:
Neurodivergent is neurodivergent. We may have different diagnoses, but there is much we share.
Beautifully Bipolar just resurrected an old piece of mine as a guest post. It’s on hiring and firing a therapist and you can find it here: https://notmydisabilities.com/2016/04/12/hired-help-janet/
With all the talk about cultural appropriation lately, I’m hesitant to wear Kokopelli earrings or eat at the Chinese buffet. I understand that some people object to Canadians playing Englishmen who are pretending to be Japanese for a production of The Mikado is offensive or racist. I don’t always agree, but I understand the principle involved. Even I, a WASP, find Mickey Rooney’s character in Breakfast at Tiffany’s to be egregious, appalling, and insulting to everyone involved, including the audience.
But recently there’s come the claim that those who are not entitled to it are appropriating Spoon Theory language. And in this case, “entitled to it” means someone with an “invisible illness” – chronic pain, chronic fatigue, and other conditions that do not announce themselves to the public with visible cues such as wheelchairs, crutches, missing limbs, or guide dogs.
If you don’t already know Spoon Theory, you should. You can find the explanation here: http://www.butyoudontlooksick.com/articles/written-by-christine/the-spoon-theory/. Basically, “spoonies” have only a limited amount of energy units per day, represented by spoons. Spoonies must use a ridiculous amount of spoons to get through tasks that others accomplish normally in the course of life – showering, driving to work, driving home, fixing dinner, et endless cetera.
In fact, on any given day a Spoonie may not have enough spoons to get out of bed and get showered and dressed. It’s not that Spoonies are lazy; they may have only three metaphoric spoons that day, compared to a non-Spoonie’s typical, oh, I don’t know, 20? 30?
A few weeks ago, I wrote about whether bipolar disorder and other mental disorders are invisible illnesses: https://bipolarjan.wordpress.com/2016/03/06/is-bipolar-disorder-an-invisible-illness/. (I said they mostly are.) As far as I’m concerned, we’re Spoonies and “entitled” to Spoonie language. Most of us have had the experience of not having enough spoons to spend on a morning shower, having to choose between hygiene and, say, eating breakfast.
So now, apparently, the general public is picking up Spoonie language – saying “I’m out of spoons” when they simply mean “I’m tired” or “That was an exhausting day. I’m done.” And some Spoonies resent that. See http://m.dailylife.com.au/news-and-views/dl-culture/stop-appropriating-the-language-that-explains-my-condition-20160113-gm4whc.html
I have two things to say about it. The first is that language is always growing and changing. But it does it on its own, without our control. (Unless we’re France. France at least tries.) We may wish to eradicate the “n-word,” but we can’t. It’s less socially acceptable to use in polite company, but you know people still use it. Read the comments section on any social media post about President Obama if you don’t believe me.
The second thing is that at least Spoon Theory and language are entering the mainstream. People without invisible illnesses are at least getting a clue of what it means. They may not have the details right, but at least now when we explain it to them, they won’t be starting from scratch.
And after all, isn’t that how Spoon language started – as a way to begin a conversation on what invisible illnesses are and how they affect our lives? Not a secret language that only those who know the password and handshake can use.
Don’t forget! March 30 is World Bipolar Day!
One of my friends, who is overweight, recently told me that when she was at the gym on the treadmill, a stranger came over to her and told her she was “an inspiration.”
My friend felt insulted. She was working out for herself and for her health, not to inspire anyone else or to be taken as a symbol of I-don’t-know-what – perseverance? attitude? effort? hope?
I feel sort of the same way when people say that because I am open and public with my bipolar disorder that I am “brave.”
I’m not doing this because I’m brave. I’m doing it because I’m stubborn.
I am who and what I am, and I’m willing to reveal a lot of it because, frankly, I can’t hide it and don’t want to. I’m not average or typical. Not normal, mentally or emotionally.
I’ve always had a love-hate relationship with the concept of “normal.” Desperately wanting to appear normal, but knowing viscerally that I am not. Wondering what it’s like, but knowing that I’ll never know. Wondering what it even means, or what it means that I’m not. I haven’t found answers yet, and at this point I don’t think I’m going to. It’s probably a waste of my time to try.
So, if I’m outside the “norm,” which I am, I may as well admit it. And since writing is what I do, I write about it. I’m not doing this because I’m “brave,” I’m doing this because on some level I have to. I’m stubborn.
I’m stubborn enough these days to have made a sort of peace with the concept of “normal,” even though I still don’t understand it.
I’m stubborn enough to acknowledge my difference and give it its proper name – bipolar disorder.
I’m stubborn enough not to care when I say that and some people flinch or back away.
I’m stubborn enough to reveal things that embarrass me because they are part of me and part of what I’ve lived and lived through.
I’m stubborn enough to get tattoos proclaiming my status as “mentally ill” and using them to open conversations and educate others.
I have not come to embrace my stubbornness easily. I’ve tried to fake “normal” and hide my differences. I’ve gone to my shrink and just referred to “doctor appointments.” I’ve made Prozac jokes even though I was taking it at the time. (For this I am truly sorry, as I later learned that one of those jokes made another person afraid to admit that she took Prozac too.)
I’m not trying to be an “inspiration.” I’m not trying to prove anything to anyone else. I’m doing what I have to do for me. If someone else finds some good in it, that’s fine. But that’s not why I do it.
I am bipolar.
I am a writer.
I am stubborn.
Taken together, you get this blog.
Bipolar Me.
And who is sane?

These are questions you don’t hear much anymore, at least outside of judicial proceedings. Even there, the phrase “guilty but mentally ill” is gaining currency. “Not guilty by reason of insanity” made people think a criminal was getting away with something. And indeed, the “insanity defense” has been misused.
We’re much more comfortable talking about health and illness, concepts we all understand, than about seemingly fixed states like sanity and insanity. They sound so final. At least illness can be treated; health can improve.
Before the deluge of psychiatric labels and the DSM, how to tell if a person was sane or insane was a vital question. The insane were put away – in an asylum if they were poor or kept discreetly out of sight at home if they were wealthy.
But were all the people in asylums insane? And what kind of treatment did they receive? Investigative journalist Nellie Bly determined to find out. Her 1887 exposé Ten Days in a Madhouse was a muckraking revelation.
Bly feigned amnesia and delusional fears, was reported to the police by her landlady, and declared incurably insane.
While she was at the Women’s Lunatic Asylum on Blackwell’s Island, she experienced cold, hunger, brutality, and no diagnosis or treatment. Several of the other inmates were, like Bly, sane by any modern standard, but poor, friendless and alone. The newspaper she worked for arranged to have Bly released, but the other women remained to be beaten, choked, starved, humiliated, not treated and driven insane if they weren’t already.
Bly’s ordeal and testimony did prompt a grand jury to recommend an increase in funding of $850,000 – quite a large sum in those days – for the Department of Charities and Corrections, which oversaw asylums. (It is ironic to note that the word “asylum” originally meant a place of protection, safety, or shelter.) But it mainly went for better physical conditions – warmer clothes, edible food, more and better-trained nurses – rather than actual diagnosis and treatment of the women’s “insanity.”
The question of who is sane and how you can tell was revisited in 1973 by psychologist David Rosenhan. A professor at Stanford University, he devised a simple experiment. He sent eight volunteers, including both women and men, to psychiatric hospitals. Each person complained of hearing a voice saying three words – and no other symptoms.
All – all – were admitted and diagnosed, most of them as schizophrenic. Afterward, the “pseudopatients” reported to their doctors and nurses that they no longer heard the voices and were sane. They remained in the psychiatric wards for an average of 19 days, beating Nellie Bly’s experience by nine days. They were required to take antipsychotic drugs as a condition of their release.
Rosenhan’s report, “On being sane in insane places,” created quite a stir. Indignant hospital administrators claimed that their staff were actually quite adept at identifying fakes and challenged Rosenhan to repeat the experiment.
This time hospital personnel were on their guard. They identified over 40 people as being “pseudopatients” who were faking mental illness. Rosenhan, however, had sent no volunteer pseudopatients this time. It was a dismal showing for the psychiatric community.
Times have changed, of course. Few people are confined in locked wards for life. Diagnosis is, if not yet a science, less of a guessing game, backed up by the DSM and assorted checklists of symptoms. And insurance companies hold the keys to psychiatric units as much as medical personnel do.
Still, the fundamental questions remain. Are neurotics sane and psychotics insane? I have bipolar 2. Am I mentally ill? I would have to say I am, since my condition will require treatment, barring any dramatic scientific advances, for the rest of my life. And my illness does affect my ability to function “normally.” Yet I think that few would consider me insane (unless I were suddenly to start shooting people in a public place, of course).
Speaking freely about mental illness and mental health is, presumably, supposed to make such disorders more understandable, less fearsome, less stigmatized. I suspect, however, that there are those who would rather we remained out of sight – if not locked away in asylums, then restrained in the virtual straitjackets of strong psychotropic medication.
And while group homes and other sorts of assisted living situations are now more available (though not nearly as accessible as the need for them would require), the general public prefers that such facilities, along with halfway houses for addicts and parolees, be constructed “NIMBY” – Not In My Back Yard.
Out of sight, out of mind.
Maybe the conversations surrounding such issues are reducing the stigma of mental illness, or insanity, or whatever you choose to call it, but I’m dubious about the level of success. There’s still a long way to go.
Bipolar disorder comes with highs and lows – mania and depression, for those who still call it manic-depressive illness. Bipolar 2 comes with plenty of depression (trust me on this), but mania that doesn’t reach the heights of regular mania. Hence the term “hypomania” – low mania. Like “hypoglycemia” – low blood sugar. (Actually, low blood sugar can affect the bipolar person’s – or anyone’s – moods, but that’s a story for another time.)
So. Mania. Mania comes with pluses – exuberance, euphoria, ambition, confidence, and other good feelings. It also comes with minuses – risk-taking behaviors that can ruin relationships, careers, finances, lives.
Hypomania, however, is usually not so extreme. Sometimes you don’t even realize that you have hypomania at all, because it comes out sideways, as anxiety. This is what happened to me, and is the reason it took me so long to get the proper diagnosis of bipolar type 2.
Recently I have been exploring the realm of hypomania, and I’m here to report that, similar to regular mania, hypomania has its attractions and its drawbacks. And they are intertwined.
On the plus side, I have more energy – more spoons to spend. I can go longer between naps. I have now gotten out of bed, dressed, and out of the house for three days in a row. I can concentrate longer on the books I’m reading and spend more time with my husband and do some actual paying work.
On the minus side, I pay for that energy. It’s like borrowing spoons – you can’t keep doing it. Sooner or later the spoons have to be replaced. Right before my most recent spurt of energy, I had a need for a nap that turned into a mega-nap – almost six hours. I woke up just in time to get ready for bed. Then I slept at least ten hours more – maybe 12. It’s impossible to schedule these things, but I have left tomorrow open just in case my body and brain decide that’s payback day for the three days of activity.
Another plus is that my creative juices are flowing. I’m working ahead on blog posts because I know at the end of the month I have a huge commitment that will keep me from writing something for that Sunday. I’ve also taken steps to spiff up my posts with visuals. And I’ve been thinking that I ought to write some fiction.
However, there’s a however. The last time I had a creative spurt I almost talked myself into starting two new blogs, for a total of four. I have plenty on my plate already, what with these blogs and paying work and trying to find an agent for my book and getting ready for a writer’s conference. This is no time to start a big new project that could easily devour my time and my ability to do the things I already need and want to do. But I do now have a computer file set aside for notes and ideas that flit through my busy brain. Call that file “Later.”
And let’s not forget anxiety. It’s hard to find the pluses there, except that anxiety, if properly harnessed, helps me prepare. I suppose it sounds better if I call it anticipation instead of anxiety. Anticipating my upcoming dental work spurred me into putting together the financing for it. Anticipating the writers’ workshop allows me to prep for all the details – wardrobe, business cards, directions, strategies to cope with exhaustion – that would make my nerves fray even more at the last minute.
I assume I needn’t discuss the minuses of anxiety. Let’s just say that for me, they include regrettable and appalling physical symptoms that no one wants to hear about.
Any way you look at it, the dental procedures are going to be a low and the workshop a high. I can already predict some of the difficulties that will accompany the workshop boost. It’s harder to think of pluses related to the dental work. Except that I really need it done, and with luck it will (eventually) improve my looks, my breath, my health, my pain level, and my self-esteem. At least that’s what I’m telling myself now.
Bipolar disorder is often compared to a seesaw (or teeter-totter, if you prefer) or a swing set or a roller coaster – for some reason, usually as a form of amusement that involves ups and downs. The amusement is debatable and fleeting. But the ups and downs are with us always. Better to learn to ride this beast rather than let it ride us.
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