Bipolar 2 From Inside and Out

I’ve often bitched about TV (and, I assume, magazine) ads for psychotropics. I’ve said that I despise the fact that they make the entire public their own experts on what they need and shills for “Big Pharma.” I’ve complained that they hamper doctors by encouraging consumers to “ask if drug X is right for you” and to accept no substitutes. I’ve also said that the ads present unrealistic pictures of very serious mental conditions by making depression, for example, no worse than the flu or a hangover.

Nonetheless, I’ve decided that drug commercials do have some beneficial purposes and effects. They aren’t all evil after all. They send messages to the viewing public that are actually positive. These messages contradict the prevailing public conception that people with mental illnesses are different from other people – that the entirety of their lives is taken over by their illness. People with bipolar disorder change from the depths of despair to uncontrollable, laughing lunacy within the span of hours or even minutes. People with OCD are picture-straighteners and tile-counters. People with schizophrenia are violent criminals or raving crazies, often hospitalized for life. None of these brain illnesses can be treated, according to the general wisdom.

Modern drugs have improved people’s lives and improved the general public’s conception of what mental illness is like.

First, more of the commercials now present understandable views of what some mental illnesses are like. They do this primarily when they use analogies or metaphors. Bipolar mania is like climbing a house of cards that is destined to collapse inevitably at some point. Depression is like darkness, and medications can lessen it by bringing light. They even make the symptoms and side effects more understandable: tardive dyskinesia, for example, is depicted with actual twitches, intractable movements, and mobility issues.

Also, the ads do emphasize that there are treatments, if not actual cures, for disorders that the general public views in a stereotypical way. Take schizophrenia, for example. Most people associate schizophrenia with homelessness, psychosis, and/or raving unintelligibly. Yes, those are sometimes the consequences of the disorder, but they’re far from the whole story. I’ve seen commercials for schizophrenia medications that show a man with a family playing guitar, two women with schizophrenia calmly discussing their symptoms, and a comparison of daily pills and twice-yearly injections for treatment. They humanize an illness that too many view as intractable and untreatable.

I stand by most of my criticism of ads for psych meds. They are shallow and simplistic. They do promote self-diagnosing and self-prescription and demands on doctors. They minimize the good that talk therapy can do, concentrating instead on medical and pharmaceutical interventions. At the same time, though, these ads promote more accurate, healthier views of mental illnesses, even the most severe. They portray people who have the illnesses as having alternatives, socially productive lives, and “normal” interactions with others despite their psychiatric conditions.

I have no scientific evidence to support this theory, but my guess is that after viewing these ads, often several times a day, a poll would reveal changes in attitude. That, combined with the public service announcements about depression and even ads for telemedicine therapy sessions, may indeed make it more likely that people who live with these conditions without realizing it to better understand their own possible mental problems and those of their friends and family, and to have greater empathy toward them.

And those are good things. May the trend continue.

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The Three Kinds of Care

December is National Family Caregivers Month, so it seemed like a good time to talk about caregiving. In my view, there are three kinds of caregiving: giving care, receiving care and self-care.

Caregiving

Caregiving is not an easy task, no matter whether you’re a family member or a professional. With an uncommunicative person such as one with depression, it practically takes telepathy. At times it seems impossible to know what kind of care is needed. A hug? Encouragement? Alone time? Help with chores? A listening ear? My husband, who is my principal caregiver, does all those things for me.

One thing about caregiving that I learned from my parents is that caregivers need recognition, too. My mother took care of my father all through the years of the illness that killed him. He wasn’t mentally ill, but his physical needs were many. Once my mother came to me and asked if she was doing a good job of caring for him. Of course, I reassured her. The thing is, objectively she knew that she was meeting his needs well. She just needed to hear it from someone else. You can talk about not looking for external validation, but sometimes it’s the kind you really need.

Receiving Care

All caregivers need recognition, and the best kind comes from the person for whom they care. That’s not always possible. Many therapists find it inappropriate to get gifts from their clients (mine accepted a small plant graciously). But a simple holiday card can be a nice remembrance. Other recipients of care have something to offer their caregivers as well – simple human connection.

Certainly, those of us receiving care can be irritable or even angry about needing care, but some recognition from us can go a long way toward keeping our caregivers, well, caring. Kindness is reciprocal. I know it’s hard to remember that or to act on it.

I owe my husband – my primary caregiver – more than I can say. Without him, I wouldn’t be able to do what I can do – take care of paying the bills and work enough to keep us mostly current, for example. And I thank him, appreciate him, and do what I can for him. I try not to be greedy with his time and efforts – I know he has other things he’d rather be doing or needs to do for his own care. I know I don’t do nearly as much for him as he deserves.

Self Care

For people who have a mental illness, self-care can be difficult. We know what we should be doing, but it’s often difficult. It feels like self-care is just another chore, on top of all the other things we’re not able to do. If I can’t keep on top of laundry and dishes, how am I supposed to keep on top of showering? If I can’t manage to get out of bed for more than a couple of hours a day, how am I supposed to find time and motivation to exercise?

I know that self-care is important, but I have trouble doing it sometimes. I know I’m capable of it. I’m on my own while my husband is at work, and I managed to keep up self-care while he was out of town earlier this year. But somehow, I never seem to get beyond the very basics of self-care – eating and sleeping regularly. Never mind the manicures, shopping sprees, and bubble baths that some recommend. Those might require getting dressed, going out among people, and spending money. (Bubble baths don’t, of course, unless you count going out to get the bubble bath, which I do count. I sure don’t have any on hand.)

If you’re able to make even modest efforts toward self-care, make sure you give yourself a metaphorical pat on the back. Believe me, you’ve earned it.

The bottom line is this: No matter whether you give or receive care or care for yourself, you need and deserve recognition and appreciation.

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Stress is a major factor in my life, and I’m sure it is in your life as well. As far as I can tell, there is no one these days that doesn’t suffer stress. I don’t know any millionaires or billionaires, but I imagine that, perhaps counterintuitively, even they suffer stress. There’s the stress of keeping their businesses going, watching their investments shrink when the stock market tanks, and stress in their personal lives. It’s hard to feel sorry for the very rich, but I can at least understand that they do have stress.

Yet, the stress I feel as someone with SMI is different. It’s not just the normal stress that comes with day-to-day life – bills, health, family, and the buildup of petty annoyances, et endless cetera. There are stressors specific to people with mental illness.

There’s the stress of symptoms or waiting for them to come back or get worse. There’s the stress of trying to find a therapy – medication or otherwise – that will help. The stress of trying to make a living or get on disability. Avoiding our triggers. Trying to find or maintain relationships. Remembering to take medication every day. The things we think of as stress relievers can be counterproductive, too. Booze or drugs, overeating, over-shopping, and other compulsive behaviors can actually add to the stress. Even performing self-care activities can cause stress – guilt over not doing the things we “should” do like exercise or meditation.

Having a caregiver can help lessen some stress. Caregivers can’t completely eliminate stress, however. In fact, they can be the cause of certain kinds of stress – worry about whether they’ll show up, whether we’re putting them through too much stress, or whether they resent us, to name a few.

So, what are some ways to relieve stress that don’t cause more stress?

My go-to stress reliever is music. When it all gets to be too much, I have myself a little music party. Usually, I party by myself, but sometimes my husband joins me, at least for the first half hour or so of it. I have plenty of slow, sad songs on my computer, but my music parties emphasize loud, raucous tunes. My playlist also contains silly songs (think Dr. Demento). I am fortunate enough to have a number of friends who are singer-songwriters and who specialize in the ridiculous, so I’m amply supplied. Sometimes I bounce around from song to song as they occur to me. Other times, I let the shuffle feature pick. An hour or two and I’m unwound enough to sleep.

My cats also provide distraction from stress. For some reason, I find it calming to watch cats wash themselves. The sound of purring is a stress reliever, and one of our cats snores (daintily) while she sleeps. Besides, they generate lots of alpha waves, and those are contagious.

I do also want to address the use of CBD/THC products for stress relief. I don’t have much experience with this, so I’ll have to defer to people more knowledgeable than I am. And I certainly don’t want to encourage anyone to break any laws. But I understand that one of the difficulties of using CBD in particular can be balancing the relaxing effects with potential paranoia. Still, many people find CBD to be a sleep aid, and good, restful sleep is a major stress reliever. At the moment, in my state (Ohio), PTSD and Tourette’s are the only mental disorders for which medical marijuana can be prescribed. Other forms of CBD such as hemp products are more widely available, including online.

What you actually do for stress relief matters less than that you do something. Maybe for you, that’s a massage or a warm bubble bath. But maybe it’s hugs, music, grounding exercises, meditation, or yoga. Whatever you find relieves your stress, making time for it on a daily basis isn’t a bad idea. That way, you’ll be in practice when the stress does hit.

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My brain is notoriously glitchy. Whatever the current state of thought about what causes bipolar disorder, I feel the illness as residing in my brain. It’s a mood disorder, of course, but I can’t locate my moods in any place except my brain.

It’s taken a lot of time and effort – and money, to tell the truth – to get my brain to the point where I can live with it instead of in spite of it. It was badly in need of repair for so long that I didn’t quite realize that my heart needed repair as well.

Look, I know that bipolar moods come and go with little to no reason. That’s one of the hallmarks of the disorder. But the combination of depression and a train wreck of a relationship left me shattered. It’s hard enough to come out of that kind of depression, but add to it the fact that my first real love relationship had imploded so spectacularly and I was a total mess in both brain and heart.

I met my future husband about a week before I fled that situation, heading back to my hometown. After a couple of years of long-distance getting to know each other, he moved here, and together we started the process of helping me achieve healing.

Dan had experience working in psychiatric facilities, so he had some kind of an idea of what I had been going through. But he couldn’t help me psychologically – though he tried. It didn’t work. I needed professional help, from someone not personally or romantically involved with me. “Don’t come shrinking at me,” I once told him. If I had to rely on him for mental healing, I would become unhealthily dependent on him. What he could do was support me through the process. He was enormously patient, helping me with the small things like driving me to my therapy appointments. He sat with me when I cried and dispensed hugs liberally. It was a long journey to some kind of mental stability.

But my heart needed healing as well as my brain. I was emotionally damaged, as much as I was psychologically impaired. The two problems were intertwined, of course. My thinking and feeling lived in the same space – inside my head. And healing both problems had to happen concurrently.

There’s not a lot of point in having your moods stabilized when you’re hurting so badly inside. But a therapist can only do so much. I learned a lot about myself in therapy, but healing my heart was largely a joint project between my husband and myself.

It wasn’t quick or easy. After my previous relationship, I was not inclined to trust anyone with my heart. That’s one of the side effects of being gaslighted. I needed to relearn trust and renew my ability to let someone inside the barriers I had established. I needed relearn intimacy.

Intimacy isn’t just about sex, though it encompasses that too. Intimacy certainly relies on physical touch, which I definitely had trouble with. In my previous relationship, my bodily autonomy was not respected. Touch was an issue. Fortunately, Dan never uses anything except gentle touch.

Play was an issue, too. True intimacy involves being able to play together, and at some level play involves trust – trust that it won’t go too far, trust that it’s fun and not mean, trust that everyone is playing by the same “rules.” Dan is nothing if not playful.

Talk was always the biggest builder of intimacy for me, though. Call me a sapiosexual, but I find the ability to have deep, meaningful conversations a real turn-on. Dan and I have the best conversations. Sometimes I wake up when he does at 4:00 a.m. and we have tea and oatmeal and just chat in the morning. He helps me with ideas for my blogs and tells me things he read in his Archaeology magazine. We look up songs online and play them and sometimes we chair-dance. It’s play and conversation both, and we build intimacy that way.

So, it has taken a lot of work to heal my brain, but also my heart. Both are much better now.

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Do My Friends Really Like Me?

There have been times in my life when I thought I didn’t have a friend in the world, and my disorder was the cause of it. I was just too weird, too odd – unlovable. I didn’t fit in anywhere, with anyone.

Actually, it started in my childhood. I had the idea that my parents only loved me because they had to – because I was their child. Ergo, if I weren’t their child, they would never love me. This was very untrue and unfair, I now realize, but I lived the early part of my life believing it.

I had very little evidence that I could make friends. I just never seemed to get the hang of it. There were kids in the suburban neighborhood where I lived, but we didn’t form what you would call lasting friendships. As I recall, there were two sisters who tried to humiliate me with a cruel prank involving a Ouija board and tape-recorded “messages” from the beyond.

In third grade, children threw stones at me. I had to have three stitches in my forehead. Another kid chased me around the schoolyard with a hypodermic needle that I hope was imaginary. My “best” friend in junior high school literally kicked me in the ass in front of a group of younger kids, which led to the first major meltdown that I can remember.

Though now, looking back, high school was the time when I began to embrace my oddity. I wasn’t diagnosed yet, so I didn’t know that the depressive and manic episodes were responsible, but I was learning that there were people who would accept me regardless. I had a tight little group of three or four friends, most of whom are still my friends to this day. They taught me that lasting friendship was possible. In college, I acquired another tight little circle of friends – and one disastrous train wreck of a relationship that left me with defective coping mechanisms such as self-harm.

Since my diagnosis, I’ve found more friends. Several have not been able to adjust to my mood disorder and have broken off contact. It hurt badly, of course, but I could see their point. When I was at my lowest point, I was not able to be a good friend to them either.

So, how has bipolar disorder been involved in my friendships (or lack thereof)? First, with all the chaos inside my head and my constant need to deal with it, I didn’t have much energy left to find friends. When I did get close to people, I ended up pushing them away with my erratic behavior. Only a few kindred souls stuck with me.

I suffered from imposter syndrome too. I thought that it might look like I had friends, but they would soon realize how damaged I was and leave. Or I believed that I was faking being a friend and really had no idea how to go about it.

I ghosted people without intending to when I went into a depressive episode. If I met them when I was manicky, I might be the proverbial life of the party, entertaining with my peculiar sense of humor. The next time they saw me, though, I might be an uncommunicative, weepy lump.

Still, there are people who have known me through the whole range of my moods and my disorder, and I am confident that they are my true friends. They really like me (shades of Sally Field!) and some even love me. I have Facebook friends that I keep in touch with regularly. They provide me a link to the outside world. I have IRL friends whom I see occasionally (we tend to live in different states). I even have a few friends nearby.

I love my friends. Because of how hard they’ve been to come by, I value them greatly. They have stood by me. They have invited me to dinner, to their parties, and on their vacations. They have comforted me when I was down, distracted me when I was anxious, and enjoyed my company when I’ve been stable. They’ve cried on my shoulder and I have cried on theirs. They’ve bought my books. Some have even lent me money when I really, really needed it. They have become my family of choice.

I treasure every one of my friends – especially my husband, who is my best friend. I wouldn’t be where I am today without them.

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When a lot of people hear the word “routine,” they think “rut.” My opinion, though, is that routine and rut are completely different. A rut is what you get into when you have nothing else in your life but work and chores, while routine is something that provides structure to your day. Of course, a routine can become a rut, if it’s not flexible enough to make room for variety somewhere.

What I think routines are particularly good for is self-care.

Let’s consider how you develop a routine. The business concept of “time-blocking” will help.

Time-blocking is a method of scheduling that relies on dividing your day into blocks of time (duh!) for each of your tasks or activities. A businessperson might have time blocks reserved for “planning meeting,” “business lunch,” and “create spreadsheet.” They estimate how long each will take and adjust the time blocks accordingly. If their time estimates are off, they revise for the next day or week.

One of the principles of time blocking is grouping similar tasks together. For example, one might have a single time block for making phone calls or answering emails. Another one is to leave some blocks empty so they can be used for tasks that you may not have completed or blocks that had to be shifted because of having to put out fires.

You can do time-blocking on a daily or weekly paper calendar, but business books recommend using scheduling software. I like the idea of using an erasable board that you can put up on your refrigerator or in another convenient place.

How does this relate to self-care? Well, it’s a good idea to make self-care part of your routine, and time-blocking is one way to develop that routine.

The first things to schedule are good habits that help you manage your disorder. For me, these are medication, food, and sleep. I take my meds as soon as I wake up and on my way to bed. I don’t consider that a time block, more like a habit, something to check off on a mental list.

I usually wake around 7:00, unless I have a work assignment that needs to be turned in early in the morning. I usually go to bed around 9:00. I need lots of sleep.

I have a time block for lunch at 12:00 and for dinner at 6:30. I make sure to have food on hand that is easy to prepare for lunch – cheese and crackers, soup, applesauce, and so on. My husband makes dinner because he wants to make sure that I eat at least one complete meal every day.

The other important time block for me to schedule is work. I’m a gig worker, so my assignments can vary. Generally, though, I work until about 11:00 in the morning and till 4:00 or 5:00 in the afternoon. I try to make working a habit, too. It keeps me from falling too far behind if I have a day when I’m simply not able to face getting out of bed and working.

You may have noticed that there are gaps in my schedule of time blocks. These are when I fit in self-care. In the morning, I have time for checking my email and Facebook. Why are these self-care? They’re the ways I keep in touch with friends and acquaintances – the outside world in general.

In the afternoon, between work and dinner, I watch some TV, usually cooking shows, which I find comforting. After dinner, I have time with my husband to see a movie or binge-watch a favorite series. When I take my meds and go to bed, I read for about half an hour. All these are part of my self-care. A person needs to set aside time for relaxation, which is a vital part of self-care.

Sometimes, I have to set aside a time block for something else. If I have to go out somewhere, I usually schedule an hour before I have to leave. It sometimes takes me that long to shower, dress, put my hair up, and make sure I have everything I need in my purse. I know that, so that’s why I leave an hour for it. Then there’s time for whatever errand it is, or maybe lunch out on my husband’s day off.

That’s my daily schedule of time blocks. I also have a weekly set of time blocks. I try to have a first draft of my blogs done on Thursday, finish them and tag them by Friday, proofread on Saturday, and post on Sunday. This is something that’s not quite work, because I don’t get paid for it. It’s something I do for myself and I get satisfaction from it, so I think of it as a self-care activity.

I also use my Google calendar to keep track of things that need to be done monthly – bills, recycling, doctor appointments for me and my husband, deadlines for my gig work, and so on. That’s self-care too, because I suffer an unhealthy amount of stress if our finances get out of control. Reducing stress is part of keeping me on a steady course. I could use the weekly or daily functions, but those are tasks I’m used to after getting into the habit for so long.

I prefer having these times and tasks in a reasonably consistent schedule, with some room for adjustments. Routine helps me get done what I need to do and enables me to schedule self-care too, rather than leaving it to last.

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What Speech Reveals

What you say says a lot about you. How you say it matters too. You can take a simple sentence and change its meaning just by how you pitch your voice and what words you emphasize.

Try it: Say the sentence, “I want you to love me.” Emphasize the “I” and you’re saying, “I, as opposed to anyone else.” Emphasize “want” and you mean “I want it, even if you don’t believe it.” If you come down hard on “love,” you mean “I want love, not friendship.” An emphasis on “me” translates to “I want you to love me, not that other person.” It works for nearly any sentence: “Please close the door.” “You have my attention.” “Why don’t you care about me?” We translate these meanings naturally and internally, without really thinking about them.

Changes in language can certainly be revealing. In fact, there are several different kinds of speech that have a role in mental illness. They can be indicative of a certain kind of mental illness or of the way that a person is feeling. They can be used in diagnosis. They can be a way to better understand what a friend or loved one is going through.

Pressured speech

Pressured speech means that words seem to just tumble out, without much thought as to what is being said. The words come quickly, packed together like little freight trains of meaning that will zoom by if you don’t pay attention. Listening to pressured speech can be both confusing and overwhelming, difficult to understand.

Pressured speech is common in bipolar disorder, especially in manic episodes. People who are experiencing mania feel a compelling, urgent need to share thoughts, ideas, comments, or emotions. They don’t wait for replies, as one would in a normal conversation. They can also speak inappropriately loudly or at inappropriate times, such as in church or during a lecture or concert. Pressured speech can last for an hour at a time or even longer.

Because they are speaking so fast, people with pressured speech may even have difficulty expressing their own thoughts. There can be a lack of a clear thought process in what the manic person is saying, as they may talk about many things that don’t connect to each other. Their speech may include jokes or rhymes, song lyrics, and such.

It does no good to ask a person with pressured speech to slow down or stop talking. They may feel like they must keep talking, as if they can’t stop.

While pressured speech is most often associated with the mania or hypomania of bipolar disorder, it can also happen with schizoaffective disorder, autism, psychosis, ADHD, or an anxiety disorder.

Flat affect/emotional blunting

Flat affect means that you’re not demonstrating much of an emotional reaction to a situation. Inside, you may feel happy, for example, but it doesn’t show on your face or in your speech. The inside and the outside don’t match.

Emotional blunting is a little different from flat affect, though. With emotional blunting, you don’t feel an emotion internally at all. You might not feel at all interested in a book or a movie that once gave you pleasure or laughter, for example. This results in flat, unemotional, dull speech patterns.

Flat affect and emotional blunting are in some ways the opposite of pressured speech. They may occur when a person is depressed, in shock, or suffering from PTSD or other conditions. It’s a symptom of some illnesses, but not an illness in itself.

Word salad

“Word salad,” also called “schizophasia,” means a confused mixture of seemingly random words and phrases. It happens as a result of a neurological disorder like dementia or a stroke, or a psychiatric condition like schizophrenia. The words can be grammatically correct or not, but they make no sense. One example of word salad would be a person saying, “That clock has a headache.” It’s a real sentence, but it has no meaning that a listener can discern. The person producing word salad may not be aware that they are not speaking coherently.

There are several ways that schizophasia can be expressed. “Graphorrhea” is word salad in writing. “Logorrhea” means excessive talking, but without the attempt at clarity of pressured speech. A “clanging” speech pattern uses rhymes or other sound associations rather than trying to construct meaning in the usual way.

As for me, a person with bipolar disorder, I have experienced emotional blunting often and pressured speech a couple of times. My hypomania tends to have other manifestations such as reckless spending. My husband can tell when I’m nearing or in a depressive episode when I speak mostly in a monotone, with single-syllable responses to most questions. But my lifelong fascination with language has made me aware of the psychological and psychiatric implications of speech. And my lifelong experience with bipolar disorder has made me keenly conscious of the way in which speech interacts with mental illness.

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What Is Mental Wellness?

Seeing that I spend so much time in my blog discussing mental illness, a friend challenged me to say what “mental wellness” looks like. I’ve decided to take a crack at it.

First, I have to say that I’m not sure mental wellness really exists. Everyone (at least everyone I know) seems to have assorted neuroses and minor phobias. These are generally subclinical, though, so they don’t really count as mental illness. Anyone with them, therefore, could be defined as mentally well, I guess.

But really, who is mentally well? A lot of people – maybe most – believe they are mentally well. Not all of them are, given that many people with mental illness can be in denial. Of course, mentally well people can also be in denial about various things. They could be in denial about their own personality traits or those of their friends and loved ones. They may, for example, overlook the fact that they are quick to take offense or that Aunt Nancy is very judgmental. Those may be character traits or even character flaws, but they aren’t mental illnesses.

I have a mood disorder myself, so I’m particularly attuned to how people deal with their moods. Everyone has them. Let’s consider depression. Everyone feels depressed from time to time. (There are people who insist that they are constantly positive or at least aspire to that state, but I do believe that in their heart of hearts they occasionally feel down when no one’s looking.) The hallmark of clinical depression is how long it lasts and to whether it descends at random on a person who has no “reason” to be depressed. But how long is “too long”?

I would guess that people who are mentally well seldom experience more than a few days to a week of depression, unless they are experiencing particularly – well, depressing – circumstances, such as not getting a job or being rejected by a romantic partner.

The time limit criterion breaks down in the case of the death of a loved one. Grief takes as long as it takes, and depression is often a component of grief. My mother-in-law, for example, suffered such grief after her husband of 50+ years died that she was virtually incapacitated for months. And her depression continued for some months after that. Yet I would not say that she was mentally ill. To me, she still fit in the category of mentally well. Reactive depression is different from clinical depression.

I would say that one definition of mental wellness is the ability to cope. With most things. For the most part. Most of the time. I know that sounds wishy-washy, but the fact is that no one, mentally well or not, copes well with everything all of the time. It’s just not in human nature. I think of it this way – just as it’s said that you have a drinking problem when your drinking causes problems (financial, legal, relationship, or whatever sort of problems), you have a mental problem if your lack of coping causes you problems in the same areas. Certainly, mentally well people can get overwhelmed at times by the demands that life places on them. And some people with mental illness can cope relatively well. I like to think that I do, now that I’m reasonably stable on medication and with therapy.

I’m starting to get to the point where I say that someone who is mentally well is simply someone who is not mentally ill. But that’s not really a good answer.

I can say that mental wellness is not a matter of being “shiny, happy people.” Everyone’s life is filled with trials and darkness as well as joy and light. Everyone struggles at some time. But not everyone is mentally ill. So, the question really becomes not what is the definition of mental wellness, but what the definition of mental illness is. We have the DSM, but it’s made up of descriptions rather than true definitions. And you get into some gray areas. Are personality disorders mental illnesses? (I don’t know.) Is autism a mental illness just because it’s listed in the DSM-V? (No. Just no.)

So, to the person who challenged me to say what mental wellness is, I would ask in turn what your definition is. Does anyone else have a better idea of what mental wellness means? I’d love to hear it.

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What’s Really Scary

It’s very nearly Halloween and there are lots of scary things out there, from costumes to movies. But here’s what I find scary.

My number one fear is the return of my bipolar symptoms, especially the depression. I’ve been mostly stable for years now, with only occasional and relatively mild symptoms when I relapse. But I still remember what it was like and I don’t want to go back there. The misery and the hopelessness. The numbness and the pain. The lack of joy, or contentment or, for that matter, even blankness.

Hypomania isn’t as scary, though I know it can and does recur from time to time. I don’t have a history of extreme symptoms and, with my husband’s help, I’m able to navigate the ones that do occur.

I can handle it if I get mild “breakthrough” symptoms when I encounter triggers. I have coping mechanisms in place, including simply waiting for them to pass, because I know they will. That trust in my resiliency – and my medications – has grown over the years.

Still, there’s always the thought in the back of my mind that the efficacy of my meds could wane. I could crash again. There’s no guarantee.

Then there’s the fear that I could develop a batch of new symptoms, triggered by God only knows what. I know that some people with bipolar disorder have hallucinations, hearing or seeing things that aren’t there. One friend of mine has heard voices for years, and another one is visited at times by an imaginary animal. (He doesn’t mind it; he says it’s always been pleasant.) Again, not likely, but then again, my brain has already been proven to be glitchy.

Of course, I do find other things scary. I am terrified of bees, wasps, ticks – anything that impinges on my dermal boundaries. I’ve been stung once and suffered no symptoms beyond the usual, but it did nothing to allay my fears. In fact, I took beekeeping in college, hoping that I would get over the fear. That didn’t work either. I still freeze, shake, scream, cover my head, or run. It’s a phobia, though not a crippling one. It doesn’t bother me enough to try eradicating it via therapy. Besides, if the beekeeping class didn’t help with desensitization, I’m not sure what would.

But there are less personal fears that I have too.

Some are societal problems. Stigma regarding serious mental illness still exists. And although people increasingly seem to be concerned about “mental health,” it turns out what they really mean is usually substance abuse or crime. Initiatives and funding tend to focus on those problems, sometimes to the exclusion of actual brain illnesses – except maybe schizophrenia, and then only as it relates to violence or homelessness. Of course, those are real problems, but there are a lot more people who need to be helped that aren’t getting attention, funding, or treatment.

Speaking of treatment, that’s another subject that’s frightening. It just isn’t available in many locations. I don’t know what the situation is regarding available beds in my geographic area, but I doubt there are many, given national trends and the complete lack of an inpatient ward at the hospital nearest me. If I did experience more extreme symptoms, I’m not altogether sure I could get good, prompt treatment.

Finding a psychiatrist or a therapist can also be difficult, bordering on impossible. When Dr. R., my longtime psychiatrist, retired, I tried to find a new one. I called the doctors he recommended, but none had openings. I turned to my primary care physician, who at least agreed to continue my psychotropics until I could find a psychiatrist. Six months later, I got in to see someone. And that was only for med checks. I had slightly better luck finding a therapist, but it was by no stretch of the imagination a breeze. Fortunately, both have managed to avoid retiring.

Call me a pessimist (okay, I’m a pessimist), but I also fear that things aren’t going to get much better anytime soon.

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On My Own

Earlier this month, my husband went away for 11 days to visit his 96-year-old mother, leaving me at home to fend for myself. I didn’t object to his going (though that hasn’t always been the case on other occasions). But it left us both concerned about how I was going to manage without him for nearly two weeks.

My husband helps me with most of my self-care needs. I guess I shouldn’t even call it self-care because he does so much of it. He makes sure I eat regularly, shops for food, and usually prepares dinner. He recognizes when I’m overwhelmed and gives me a hug. He helps me get ready if I have to go out. He does most of the physical chores. (I do the ones involving a computer, like correspondence, bill-paying, and scheduling appointments.) He calls me twice a day to make sure I haven’t fallen and been unable to get up. If I don’t answer the phone, he rushes home on his break to help me. I really don’t know what I would do without him.

For 11 days, though, I was going to have to. We hadn’t been apart this long for years.

Since one of my major self-care problems is forgetting to eat or not having the energy to make myself something to eat, he stocked up with all the things I like that were easy to fix and eat: juice, cola, ginger ale, yogurt, cans of soup, whole wheat bread, bologna and salami, assorted kinds of cheese, applesauce, and those little frozen meals for useless people like me. There were muffins and frozen waffles for breakfast, peanut butter and mac-n-cheese and spaghetti for lunch and dinner, and even jello and pudding for dessert. Everything that needed heating was microwaveable.

I often eat in my study, where there is a little tray table, so we devised a strategy for getting to and from the refrigerators. The time when I trip and fall most often is when I’m carrying several items and lose my balance. He came up with the idea that I should carry my food items in a plastic grocery bag to and from my room. We have hundreds of those bags. And it worked. I didn’t fall once. I don’t know why we didn’t think of that before.

He still called me every day, though of course there was nothing he could do for me if I fell. In fact, he called me much more often than twice a day, just to talk. We found the thing we miss most when we’re away from each other is simply shared conversation.

I developed a little routine to see me through the days. In the morning, I would have breakfast and watch a cooking show till I was awake and alert enough to start my day. Then I would do my work in the mid-morning until lunch. After lunch, more writing. After dinner, music or TV, or more work, if I had an especially pressing assignment. Go to bed early. Lather, rinse, repeat. Repetitive, certainly, but it seemed to work.

So, what did I learn from this exercise? Well, first of all, I found out that 11 days on my own is a doable thing – if we anticipate difficulties and prep for them. That I am able to continue my daily rhythms and keep up with my work, eating, and sleeping. That I experienced no recurrence of my bipolar symptoms even though my usual environment had changed. (I had been worried about depression or anxiety setting in.) That the loss of my husband’s presence wasn’t crippling. That we managed to retain our important connection despite the physical distance between us.

That photo with this post isn’t entirely accurate, though. I didn’t meet my own needs completely on my own. My continuing self-care still required my husband’s help. But once the systems were in place, I managed. On my own.

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